Sliding Doors

Estimated reading time: 3 minutes, 54 seconds

Jan Has a Blood Cancer

The sliding doors opened and closed as if by magic. No one entered, and no one exited. Our bodies were in the penumbra of the beam for the door’s automatic opening apparatus. Jan and I stood like frozen figurines in front of the Carol G. Simon Cancer Center threshold, and I squeezed her hand and whispered how much I loved her. 

I don’t have cancer,” she said. “Why am I here?”

My nervousness was difficult to hide as my voice attempted to reassure her that we were only going into the cancer center to meet with a doctor who could help us understand why her blood results were so low.

Slowly we moved forward and over the threshold into the center. Like most first-time visitors, we went to the wrong check-in desk. We turned right and found the correct one, and I said my wife was here to see Dr. Saksena.

After processing the medical and personal information, we found adjacent chairs in the waiting room. They called her name before I could speak, and I got up to go with her, but they told me to wait. I held Jan’s hand and wanted to reassure her I loved her and that this was one more step in getting an answer so that she could regain her health.

She has to get blood work first, and then we will call you to join her.

I paced around the waiting room not to get my hourly steps but to keep myself busy. I had not done this when our children were born, as I was next to her all the time. I heard them call my name and almost ran to the door to join her. I held her hand as we walked down a short hallway and into an examination room. 

Dr. Rujuta Saksena was very professional, personable, and knowledgeable. After asking Jan a few questions about her work, life, and interests, she explained that she was both an oncologist and a hematologist. 

She explained that she had examined Jan’s blood and did not have a definitive answer to the cause of the low blood counts. However, she said that it was a blood cancer and that they would know more, including the type of cancer and how to treat it, after further analysis.

I started to cry, and Jan began to shut down and hold her emotions inside of her. Dr. Saksena handed me tissues and reassured us that we need not be concerned as we still needed to determine the type of cancer. She stressed we found cancer early enough that it was very likely treatable.

We exited the room after a few questions and scheduled a follow-up appointment. We discovered it had rained when we left the center, and steam rose from the street. Without an umbrella, we stood under the awning and waited for the last drops to fall.

Jan and Richard Hugging
Jan and Richard hugging

I pulled her toward me and hugged her tightly. “We are going to be OK, dear,” I said. I know I should not have cried, but I could not help it.

Jan started talking about her favorite role in life, being a bulldozer. “That’s how I will manage this,” she said. I could feel her pulling away and bottling up her feelings and emotions inside of her.

This time, that will not work,” I said. We will need all the support and help we can get.

She kept repeating her mantra. It’s worked every other time, and it will work this time.

We talked without resolving anything. We agreed to keep talking. 

That is how Jan’s nineteen-month cancer journey began precisely two years ago today. Until the end, I showered her with love and encouraged her to accept help from family and friends.

Despite my tears, I was confident she would be OK then. We had an excellent medical team and would soon have a treatment plan. Loving and taking care of her was a commitment I made to Jan not only on the day we married but every day from the day we met

Taking on the caregiver’s constantly changing role, I committed to doing these tasks better than ever. I am not sure if I was a good caregiver, but I know that the love, care, and support I provided helped my wife during the most challenging days of her life. Two years later, I know I did the best I could as a caregiver.

I miss her and always will. Love never dies!


Subscribe
Contact Us
Creative Commons License

This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

8 comments add your comment

Share your thoughts and ideas

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Previous Post:

Next Post:

The Jan Lilien Education Fund!

James: A Novel

Read: June 2024

Get this book

James: A Novel

by Percival Everett

I started reading “James: A Novel” by Percival Everett, my fiftieth book this year. After reading only a few pages, I knew I had selected the perfect novel. The story revolves around an enslaved man named Jim who overhears that he is about to be sold to a man in New Orleans, separating him from his wife and daughter forever. In response, he decides to hide on nearby Jackson Island while formulating a plan.

Simultaneously, we encounter Huck Finn, who has staged his death to flee his abusive father and has recently resurfaced in town. The narrative unfolds as they embark on a perilous journey, navigating the Mississippi River on a raft. Each turn brings floods, storms, and unexpected encounters, including a run-in with the Duke and Dauphin.

While the familiar elements of ‘Adventures of Huckleberry Finn‘ are present, ‘James: A Novel‘ offers a unique perspective. It illuminates Jim’s agency, intelligence, and compassion, challenging our preconceived notions and offering a fresh take on a classic narrative.

James: A Novel‘ is not just a book; it’s a cornerstone of twenty-first-century American literature. It’s a testament to Everett’s literary prowess, solidifying his status as a true icon in the literary world.

×
Old Babes in the Wood: Stories

Read: March 2023

Get this book

Old Babes in the Wood: Stories

by Margaret Atwood

Old Babes in the Wood: Stories by Margaret Atwood is a collection of remarkable tales, which delight, illuminate, and are quietly devastating. I especially found the stories about Nell and Tig compelling and engaging. Widow describes a letter Nell almost wrote to a friend after Tig is gone. Nell sounded like me when she said, “the warping or folding of time. In some parts of this refolded time, Tig still exists, as much as he ever did.”

The letter Nell is writing to a friend she will never be sent because it speaks to the harsh reality that grief imposes upon us.

Margaret Atwood writes as Nell,

Have I gone into the dark tunnel, dressed in mourning black with gloves and a veil, and come out the other end, all cheery and wearing bright colors and loaded for bear?

No. Because it’s not a tunnel. There isn’t any other end. Time has ceased to be linear, with life events and memories in a chronological row, like beads on a string. It’s the strangest feeling, or experience, or rearrangement. I’m not sure I can explain it to you.

As much as it might have appeared that I was in a dark tunnel after Jan died, I was not and am not now. There is indeed no defined end to the grief journey.

We all must learn how to live without our loved ones. The pathway I have chosen may not work for anyone else.

The earlier Nell and Tig stories are memories about their lives, reminding me of how I wrote about how Jan and I met and eventually married.

I have always enjoyed reading Atwood‘s writing, including The Handmaid’s Tale and The Testaments. I highly recommend Old Babes in the Wood: Stories by Margaret Atwood!

Old Babes in the Wood was my twenty-third book of the year and fulfilled my Goodreads 2023 Reading Challenge, but it will not end my reading this year. 

The Goodreads summary provides an overview,

Margaret Atwood has established herself as one of the world’s most visionary and canonical authors. This collection of fifteen extraordinary stories–some of which have appeared in The New Yorker and The New York Times Magazine–explores the full warp and weft of experience, speaking to our unique times with Atwood’s characteristic insight, wit, and intellect.

The two brave sisters of the title story grapple with loss and memory on a perfect summer evening; “Impatient Griselda” explores alienation and miscommunication with a fresh twist on a folkloric classic; and “My Evil Mother” touches on the unbelievable, examining a mother-daughter relationship in which the mother purports to be a witch. At the heart of the collection are seven extraordinary stories that follow a married couple across the decades, the moments big and small that make up a long life of uncommon love–and what comes after.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



×
The Garden of Letters

Read: June 2021

Get this book

The Garden of Letters

by son Richman

The Garden of Letters by Alyson Richman was one of the first books I read after Jan died. It was the perfect love story to read after the loss of the love of my life. The love Jan and I shared was because we shared a portion of the soul of the other, and thus we were meant for each other from day one. 

The two primary characters – Elodie Bertolotti and Angelo Rosselli – resonated with me as they were also people who shared souls. The book “captures the hope, suspense, and romance of an uncertain era, in an epic intertwining story of first love, great tragedy, and spectacular bravery.

As I turned every page, the story filled my heart with love and happiness as it reminded me of the love that Jan and I shared.

Portofino, Italy, 1943. A young woman steps off a boat in a scenic coastal village. Although she knows how to disappear in a crowd, Elodie is too terrified to slip by the German officers while carrying her poorly forged identity papers. She is frozen until a man she’s never met before claims to know her. In desperate need of shelter, Elodie follows him back to his home on the cliffs of Portofino.

Only months before, Elodie Bertolotti was a cello prodigy in Verona, unconcerned with world events. But when Mussolini’s Fascist regime strikes her family, Elodie is drawn into the burgeoning resistance movement by Luca, a young and passionate bookseller. As the occupation looms, she discovers that her unique musical talents, and her courage, have the power to save lives.

In Portofino, young doctor Angelo Rosselli gives the frightened and exhausted girl sanctuary. He is a man with painful secrets of his own, haunted by guilt and remorse. But Elodie’s arrival has the power to awaken a sense of hope that Angelo thought was lost to him forever.

I not only recommend this book, but I am also looking forward to reading more of her novels.

Subscribe

Contact Us

×
The Girl in His Shadow

Read: July 2022

Get this book

The Girl in His Shadow

by Audrey Blake

I completed the Big Library Read of 2022, The Girl in His Shadow, by Audrey Blake. I highly recommend it. The Girl in His Shadow is historical fiction about one woman who believed in scientific medicine before the world believed in her. Ms. Blake has a split personality— because she is the creative alter ego of writing duo Jaima Fixsen and Regina Sirois, two authors who met as finalists of a writing contest and have been writing together happily ever since.

The pen name – Audrey Blake – was in response to the publishers recommending a more straightforward author’s name. Regina’s daughter is named Audrey, and Jaima’s son is Blake.

I cannot praise this book enough. It was well written, and the characters, especially Nora Beady, jumped off the page. I recommend The Girl in His Shadow by Audrey Blake and encourage you to read the book and share your thoughts.

For more information and to start reading The Girl in His Shadow by Audrey Blake, visit: Big Library Read.

The Goodreads summary provides an overview.

Raised by the eccentric surgeon Dr. Horace Croft after losing her parents to a deadly pandemic, the orphan Nora Beady knows little about conventional life. While other young ladies were raised to busy themselves with needlework and watercolors, Nora was trained to perfect her suturing and anatomical illustrations of dissections.

Women face dire consequences if caught practicing medicine, but in Croft’s private clinic Nora is his most trusted–and secret–assistant. That is until the new surgical resident Dr. Daniel Gibson arrives. Dr. Gibson has no idea that Horace’s bright and quiet young ward is a surgeon more qualified and ingenuitive than even himself. In order to protect Dr. Croft and his practice from scandal and collapse Nora must learn to play a new and uncomfortable role–that of a proper young lady.

But pretense has its limits. Nora cannot turn away and ignore the suffering of patients even if it means giving Gibson the power to ruin everything she’s worked for. And when she makes a discovery that could change the field forever, Nora faces an impossible choice. Remain invisible and let the men around her take credit for her work, or let the world see her for what she is–even if it means being destroyed by her own legacy.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

×
Checkout 19: A Novel

Read: December 2022

Get this book

Checkout 19: A Novel

by Claire-Louise Bennett

Checkout 19: A Novel by Claire-Louise Bennett, a New York Times Best Ten Best Books of 2022; the newspaper highlights the novel’s “unusual setting: the human mind — a brilliant, surprising, weird and very funny one. All the words one might use to describe this book — experimental, autofictional, surrealist — fail to convey the sheer pleasure of ‘Checkout 19.'” I fully agree with this description and found myself living in my mind.

Since Jan died in May of 2021, I have found myself with no one to talk to about the day-to-day events that consume so much of our lives. Checkout 19: A Novel reminded me that I have only been carrying those intimate conversations in my mind. Is it surreal? Yes. Yes, it is. Reading this novel helped me to accept the importance of those conversations. The new characters and scenarios I conjure are less creative than Ms. Claire-Louise Bennett’s

Goodreads describes Checkout 19: A Novel as the adventures of a young woman discovering her genius through the people she meets–and dreams up–along the way. Checkout 19 is a radical affirmation of the power of the imagination, and the magic escapes those who master it open to us all.

I recommend this book.

The Goodreads summary provides an overview,

In a working-class town in a county west of London, a schoolgirl scribbles stories in the back pages of her exercise book, intoxicated by the first sparks of her imagination. As she grows, everything and everyone she encounters become fuel for a burning talent. The large Russian man in the ancient maroon car who careens around the grocery store where she works as a checkout clerk, and slips her a copy of Beyond Good and Evil. The growing heaps of other books in which she loses-and finds-herself. Even the derailing of a friendship, in a devastating violation. The thrill of learning to conjure characters and scenarios in her head is matched by the exhilaration of forging her own way in the world, the two kinds of ingenuity kindling to a brilliant conflagration.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



×
In Praise of Walking

Read: April 2023

Get this book

In Praise of Walking

by Shane O'Mara

I recently received a book from my family that combines two interests: walking and reading. The book, “In Praise of Walking” by Shane O’Mara, celebrates the joys, health benefits, and mechanics of walking. It emphasizes the importance of getting out of our chairs and discovering a happier, healthier, more creative self.

One of the most important insights I gained from this book is that walking can lead to mind wandering, focusing on autobiographical memory rather than the immediate environment. This realization helped me accept and appreciate Jan’s love and move forward with her passion.

The book also explores the significance of walking to our human identity. Walking upright has given us many advantages, including the freedom of our hands and minds. Walking has enabled us to spread worldwide and has many benefits for our bodies and minds, such as protecting and repairing organs, aiding digestion, and sharpening our thinking.

Overall, “In Praise of Walking” inspires us to start walking again and recognize its many benefits to our lives and societies.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



×

Discover more from Sharing Jan’s Love

Subscribe now to keep reading and get access to the full archive.

Continue reading