I Have Covid!

Estimated reading time: 7 minutes, 49 seconds

We Remained Optimistic While 
Jan’s Health Deteriorated

“I have COVID,” Jan disclosed over tears that flowed like a broken water main. “I do not want to die,” her voice echoed around the cabin of our Prius. Her words were the most frightening ones I had ever heard her say. After leaving her in the emergency room at Robert Wood Johnson University Hospital in New Brunswick, I was driving home when the love of my life called me. 

All of the air in my lungs vanished when I exhaled. My heartbeat so rapidly it felt as if it would burst out of my chest. Somehow, I spoke the only phrase I could, “I love you.”

Miraculously, the car continued to drive without my intervention. We stayed in the correct lane, stopped at traffic lights, and proceeded home.

“We will get thru this,” I finally responded with words deeply ingrained in the deepest recesses of my mind

“How?”

I took a deep breath and held it before responding. 

“I will call Dr. Strair, and I am sure his team will know how to treat both COVID and Lymphoma.”

“I have to go; they are moving me to a bed in the hospital.”

As soon as she finished the call, my tear ducts opened and covered my face in salty water. 

Jan was alone and afraid. My tears stopped flowing, and I knew I needed to hug her and comfort her. I wanted to make a U-turn, but the Prius continued to drive automatically toward our empty home. In the end, the car understood COVID restrictions better than I did. 

February 5, 2021

“Sweetheart, I will bring the car around to the front,” I said to Jan. “After I park, I will come upstairs and help you.” She shook her head no. “OK, come with me now, and you can wait in the lobby for me.”

Walking to the parking lot, I reminded myself that we were in the second month since she had gotten the PET scan results indicating the cancer was in remission. Today is only a routine follow-up, and there is no need to worry. Her tiredness was expected, considering all that she had been through over the last year. 

“I wish you could stay with me,” Jan said in a subdued voice. 

“I agree.”

“Wish you did not have to drive two roundtrips. For you, my dear, I would drive to the end of the earth and back!”

“Not a problem, my dear.”

We arrived in front of the Cancer Center, and I called to let them know we were here. COVID protocols required a nurse to come down and meet her.

When we saw the nurse walking down the stairs, I got out of the car and opened the door for Jan. 

“I love you; I love you!”

I kissed her as she got out of the car. 

“I will call you once I know that I am almost finished.”

Bag of Blood

“I will be here most of the day,” Jan said in a voice that showed no anxiety. “My blood numbers are down, and they will give me a bag of blood.” She had had transfusions before, and they always brought the numbers up and gave her an energy boost. 

“OK, my love, I will be ready, willing, and able to pick you up as soon as you call me.”

We chatted for a few minutes about dinner plans and other mundane topics. 

After we ended the call, I took a deep breath and focused on cleaning our apartment and making dinner plans. 

Jan was going to be OK; I kept reminding myself. She has an excellent medical team. I did everything I could to convince myself that there was no need to worry.

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12 comments add your comment

    • Penny, thank you so very much. My writings are from my heart and, in many ways, are an extended love letter to Jan. As I have described in other posts and comments, the words flow from me like an incoming tide at the Jersey shore.

      This quote by Helen Keller has always resonated with me.

      “What we have once enjoyed we can never lose. All that we love deeply becomes a part of us.”

      I hope to see you on April 24th to Celebrate Jan Day.

      Thanks so very much for reading this post. Please feel free to share this post and others with anyone interested.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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The Book of Love: A Novel

Read: March 2024

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The Book of Love: A Novel

by Kelly Link

I started reading “The Book of Love: A Novel” by Kelly Link today. The book showcases her exceptional writing skills, where she channels different forms of love, including friendships, romance, and family ties, with her trademark compassion, wit, and literary prowess. Readers can expect to experience joy, a little terror, and an affirmation that love endures despite challenges.

The story revolves around Laura, Daniel, and Mo, who mysteriously vanished from their hometown in Lovesend, Massachusetts, and were presumed dead. However, almost a year later, they find themselves in a high school classroom with their unremarkable music teacher. The teacher seems to know why they disappeared and what brought them back. They agree to undertake magical tasks to reclaim their lives, allowing them to return to their families and friends, but they can’t reveal where they’ve been. The tasks would lead to winners and losers.

Their resurrection attracts the attention of other supernatural beings with their agendas, which puts the community in danger and chaos. As Laura, Daniel, and Mo try to piece their lives together, and Laura’s sister Susannah tries to make sense of what she remembers, they must solve the mystery of their deaths to prevent a looming disaster.

The story takes place in Lovesend, where readers will experience love and loss, laughter and dread, magic, karaoke, and some delicious pizza.

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Great Expectations: A Novel

Read: March 2024

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Great Expectations: A Novel

by Vinson Cunningham

Today, I began reading “Great Expectations: A Novel” by Vinson Cunningham, a staff writer and theatre critic at The New Yorker. David, the protagonist, had seen the Senator speak a few times before my life got caught up, however distantly, with his. Still, the first time I can remember paying real attention was when he delivered the speech announcing his run for the Presidency.

Upon hearing the Senator from Illinois speak, David experiences conflicting emotions. He is fascinated by the Senator’s idealistic language yet ponders the balance between maintaining solid beliefs and making the necessary compromises to become America’s first Black president.

The book Great Expectations narrates David’s experience working for eighteen months on a Senator’s presidential campaign. During his journey, David encounters diverse individuals who raise questions about history, art, race, religion, and fatherhood. These inquiries prompt David to introspect his life and identity as a young Black man and father living in America.

Meditating on politics, religion, family, and coming-of-age, Great Expectations is a novel of ideas and emotional resonance, introducing a prominent new writer.

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Can You Feel This?

Read: January 2023

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Can You Feel This?

by Julie Orringer

Today I read Can You Feel This? by Julie Orringer. This short story rekindled so many memories. In the chaos of a maternity ward, memories of tragedy and grief come flooding back for an anxious mother-to-be as she struggles to balance her child’s needs with her healing. Although Jan and I did not have the shadows of tragedy and grief when our sons were born, this short story was more than a page-turner. Can You Feel This? reminded me of the power of the love Jan and I shared.

When our second son was born, we almost had him at home or in the as we waited too long. In Can, You Feel This? , that was not the case. Both children had two loving parents but also grandparents.

When Jan had the first of several hospitalizations, she was in the hospital where her mother died. Jan told me her feelings, and I comforted her, but I could not fully comprehend her angst.

Can You Feel This? is part of Inheritance, a collection of five stories about secrets, unspoken desires, and dangerous revelations between loved ones. Each Inheritance piece can be read or listened to in a single setting. By yourself, behind closed doors, or shared with someone you trust. This is the second one in the series I have read. The previous one was Everything That my Mother Taught Me.

The Goodreads summary provides an overview,

Rushed into an emergency cesarean section, a woman finds herself in the same hospital where her suicidal mother died. She’s buried the trauma of her mother’s last hours—and also the dread that she might be just as vulnerable to breaking. As the new mother relives one crisis in the midst of another, prize-winning author Julie Orringer turns the joyous event of birth into a harrowing, poignant short story.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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The Book of Goose

Read: October 2022

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The Book of Goose: A Novel

by Yiyun Li

The Book of Goose: A Novel by Yiyun Liis a gripping, heartbreaking new novel about female friendship, art, and memory by the award-winning author of Where Reasons End. The Book of Goose: A Novel is a story of disturbing intimacy, obsession, exploitation, and strength of will. I highly recommend this book as it was not only a page-turner but a novel that helped me on my grief journey

The novel focuses on many issues that interest me and intrigue me during my grief journey. Jan was anxious that she was not as successful in her work or personal life. I always reassured her not to be concerned. 

After Jan died, I had similar feelings. Over time, I have heard words of wisdom and regained my self-confidence.

The Goodreads summary provides an overview,

Fabienne is dead. Her childhood best friend, Agnès, receives the news in America, far from the French countryside where the two girls were raised–the place that Fabienne helped Agnès escape ten years ago. Now, Agnès is free to tell her story.

As children in a war-ravaged, backwater town, they’d built a private world, invisible to everyone but themselves–until Fabienne hatched the plan that would change everything, launching Agnès on an epic trajectory through fame, fortune, and terrible loss.

A magnificent, beguiling tale winding from the postwar rural provinces to Paris, from an English boarding school to the quiet Pennsylvania home where Agnès can live without her past, The Book of Goose is a haunting story of friendship, art, exploitation, and memory by the celebrated author Yiyun Li.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

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Fire Exit: A Novel

Read: June 2024

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Fire Exit: A Novel

by Morgan Talty

Today, I started reading the novel “Fire Exit” by Morgan Talty. The book is the debut novel of the award-winning author of “Night of the Living Rez,” Morgan Talty. “Fire Exit” is a compelling story that explores the themes of family, legacy, culture, and our complex obligations toward one another. These are themes that I have focused on after losing my wife.

The protagonist, Charles Lamosway, lives by a river near Maine’s Penobscot Reservation. He watches his neighbor Elizabeth grow up, from her early days to her twenties, but he holds a secret: Elizabeth is his daughter, a truth he can no longer conceal.

Charles becomes anxious when he hasn’t seen Elizabeth for weeks. As he tries to hold on to his home, look after his friend Bobby and his mother Louise, and grapple with his past, Charles is forced to confront painful memories and ask himself difficult questions. Is it his place to share the secret about Elizabeth, and would she want to know the truth even if it means losing everything she has ever known?

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