Visiting Jan During COVID

Estimated reading time: 7 minutes, 32 seconds

We Kiss After a Month Apart

“It is so good to hear your voice,” Jan said as I stood in the hospital’s lobby, dropping off lunch. “I have good news. Dr. Strair said you can come to visit me tomorrow.” I am sure she said more, but between our mutual tears and the ambient noise of the hospital, all I could say and hear were a crescendo of mutual love messages.

Except for three days, she had been in the hospital for a month.

I drove to New Brunswick to drop off food and clean clothes daily. I would call to let her know I had made the delivery each time. Because Jan had COVID, the lobby was as close as I was allowed.

Along with calls every evening and text message, these brief calls became our only lifeline.

Most were brief and exacerbated our mutual loneliness and anxiety. Today’s call was the first that gave us hope.

I can’t wait to see you,” my voice was so loud I was sure she could hear me without her iPhone.

“Me too; bring enough lunch for both of us.”

We discussed options and agreed on what we would have for lunch.

“I have to go. The nurses are doing vitals.”

I placed my iPhone in my pocket and danced out of the hospital.

I texted the boys and their partners when I got to Jan’s car.

When I dropped off lunch today, Jan had exciting news. I have been approved to visit her tomorrow. We are both delighted 😃 to be able to see each other!

March 17, 2021, 11:48 am

Hope Springs Eternal

Arriving home, I race thru the house, ensuring everything is in order. In the month she has been in the hospital, I have only used the kitchen and the spare bedroom. My footprint has shrunken to the smallest possible space. Yet, I am worried that if she came home, something might be amiss.

Then I remind myself that she is not coming home. I can visit her tomorrow, but her discharge date remains undetermined.

A buzzing noise arouses me from chores. Is it a bee in the house?

No, my iPhone is ringing.

“Dr. Strair, how are you?”

I understand you will be visiting Janice tomorrow.

“Yes, I am. Thank you for making it possible for me to visit my wife.”

I was worried about her mental health. I knew you were the only one who could cheer her up.”

I want to tell him how worried I have been about Jan. I love her; I need her; I can’t lose her. 

“I will do my best….” I can’t finish the sentence. Tears filled my throat, and the water washed against my molars.

“I understand. I will be visiting with the two of you in the afternoon. I believe we have found something in Janice’s blood work that might be her lucky break.

I want to ask, but will it ruin her chances?

Can you share anything with me now,” I ask despite my fears.

“I should be able to share more tomorrow. But Janice’s pathology report indicated that she had an expression of CD30, which is very treatable.”

“Thank you. My wife needs a lucky break.”

Tears formed in my throat like I had swallowed all the ocean water.

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Hey, Zoey

Read: June 2024

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Hey, Zoey: A Novel

by Sarah Crossan

Today, I enjoyed immersing myself in the captivating and thought-provoking world of Sarah Crossan‘s novel ‘Hey, Zoey.’ As Sarah Dunn eloquently puts it, this book is a masterful blend of brilliance and dark humor. The story revolves around Dolores O’Shea, whose life turns surprising when she discovers her husband’s AI sex doll, Zoey, in the garage.

A profound and heartfelt journey of self-discovery unfolds for Dolores as she and ‘Zoey‘ develop an unconventional bond, unearthing deeply buried emotions and memories. Dolores O’Shea, a 43-year-old woman, is a beacon of strength, juggling her job, ailing mother, and social life with remarkable efficiency.

Her marriage with an anesthesiologist, David, is in turmoil, but she’s determined to confront the issues. Her world is completely upended when she uncovers Zoey, the $8,000 AI sex doll that David had been concealing in the garage. At first, Dolores’ response to Zoey is a whirlwind of anger and confusion, throwing her meticulously organized life into chaos.

As the narrative unfolds, Dolores and Zoey embark on a series of conversations that unearth unexpected emotions and memories, profoundly influencing all of Dolores’ relationships, particularly her relationship with herself. Dolores’ journey is a rollercoaster of events and emotions that resonates with us all. ‘Hey, Zoey‘ is a novel that enthralls and challenges our perception of modern-day connections and the diverse forms that love can assume in a lifetime.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Reluctantly Home

Read: June 2022

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Reluctantly Home

by Imogen Clark

Reluctantly Home by Imogen Clark is about dealing with the past—and finally facing the future-a topic that was appealing to me. Thirteen months into my grief journey, I live between a perfect past and an unknowable future. Will Reluctantly Home by Imogen Clark help me manage these two worlds?

Surprisingly it did. Unlike the two protagonists, I am mourning losing Jan, the love of my life. However, the neuromapping in my brain made it impossible to understand how to continue to love Jan and separate that from the time and space connections that made me believe she would return at any moment.

Reluctantly Home by Imogen Clark helped me understand that grief should and cannot define us forever. I recommend this book to all readers, not only those on a grief journey like mine.

The Goodreads summary provides an overview.

Pip Appleby seems to have it all, with her prestigious job as a human rights lawyer and her enviable London home. But then a tragic accident stops her life in its tracks, and everything changes instantly. Retreating to her family’s rural farm and the humble origins she has been trying to hide, Pip is haunted by what she has done.

When she discovers the diary of actress Evelyn Mountcastle in a box of old books, Pip revels in the opportunity to lose herself in someone else’s life rather than focus on the disaster that is her own. But soon, she sees parallels—Evelyn’s life was also beset by tragedy, and, like Pip, she returned to Southwold under a dark cloud.

When Pip and Evelyn’s paths cross in real life, they slowly begin to reveal the hidden stories holding them back. Can they help each other forgive what happened in the past and, perhaps, find happiness in the future?


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Four Spirits

Read: July 2021

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Four Spirits

by Sena Jeter Naslund

Four Spirits by Sena Jeter Naslund is a book that I could not put down. It is a page-turner. The title is from the four girls killed at Sunday School in Birmingham. When that happened in 1963, I was only a few years older and the impact brought home to me that we lived in a broken world that required repair. Like Stella Silver in the novel, my life changed as a result of the bombing. 

As my reading list may indicate, I have always preferred non-fiction with a preference for history. Picking this novel up combined my prior reading habits with my desire to read books that my wife, Jan, recommended.

Weaving together the lives of blacks and whites, racists and civil rights advocates, and the events of peaceful protest and violent repression, Sena Jeter Naslund creates a tapestry of American social transformation at once intimate and epic.

In Birmingham, Alabama, twenty-year-old Stella Silver, an idealistic white college student, is sent reeling off her measured path by the events of 1963. Combining political activism with single parenting and night-school teaching, African American Christine Taylor discovers she must heal her own bruised heart to actualize meaningful social change. Inspired by the courage and commitment of the civil rights movement, the child Edmund Powers embodies hope for future change. In this novel of maturation and growth, Naslund makes vital the intersection of spiritual, political, and moral forces that have redefined America.

Stella’s idealism reminded me of how I became the person I am. Change is not easy but, it takes all of us to risk our lives to repair the world so, it works for all of us.

The book’s critical focus on the “intersection of spiritual, political, and moral forces that have redefined America” makes this a must-read. The redefinition has made America a better country but, we may be retreating from that ideal.

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Chain Gang All Stars

Read: December 2023

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Chain Gang All Stars

by Nana Kwame Adjei-Brenyah

Today, I started reading “Chain Gang All Stars” by Nana Kwame Adjei-Brenyah. The story revolves around Loretta Thurwar and Hamara “Hurricane Staxxx” Stacker, the main characters of the Chain-Gang All-Stars, a highly controversial and top-rated program in America’s private prison industry. The program is called Criminal Action Penal Entertainment (CAPE), where prisoners compete for the ultimate prize- their freedom. It’s similar to the return of the gladiators but in a modern-day setting.

The story is set in a prison called CAPE, where inmates are forced to participate in death matches as a part of a chain-gang. These matches are held in front of cheering crowds, while the prison authorities claim it to be a righteous act. Among the participants, Thurwar and Staxxx are the most popular as they are also lovers. Thurwar is just a few matches away from her freedom, which she carries with a heavy heart and lethal hammer. Thurwar contemplates how she can help her fellow inmates preserve their humanity despite being forced into these brutal games. However, the owners of CAPE are determined to safeguard their status quo, and they will go to extreme lengths to stop anyone who challenges them. Thurwar’s attempts to resist the system have devastating consequences.

Chain-Gang All-Stars” is a powerful book that sheds light on the American prison system’s problematic alliance with systemic racism, unchecked capitalism, and mass incarceration. It critically examines the situation from various perspectives, from the Links in the field to the protestors, the CAPE employees, and beyond. The book offers a clear-eyed reckoning of what freedom really means in America. It is a noteworthy contribution from a “new and necessary American voice,” as described by Tommy Orange in The New York Times Book Review.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Regarding gifts made this month, I will match dollar for dollar. All donations are tax-deductible.

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The Spoiled Heart: A Novel

Read: May 2024

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The Spoiled Heart: A Novel

by Sunjeev Sahota

Today, I started reading The Spoiled Heart: A Novel by Sunjeev Sahota. Nayan Olak has been seeing Helen Fletcher around town. She has returned to live in the run-down house at the end of the lane with her teenage son. Though she seems guarded, Nayan cannot help but be drawn to her. He has not risked love since losing his young family in a terrible accident twenty years ago.

After Nayan’s tragedy, his labor union, a pillar of his community, became his refuge and purpose. It was his way of striving for a better and fairer world. Now, Nayan wants to become the leader of the union, a decision that sets the stage for a gripping conflict. His opponent, Megha, a newcomer, is a more formidable challenger than he could have anticipated. Nayan is now in a battle that could redefine his life and community. The differences between Nayan and Megha escalate and threaten the ideals he holds dear. He finds solace in his growing bond with Helen. Unbeknownst to him, their connection is not just a product of their present circumstances but a thread that weaves through their lives, holding secrets that could shatter them. The suspense builds, leaving the readers on the edge of their seats and eager to uncover the truth.

In one sense, The Spoiled Heart is a tragedy in the classic mold, tracing one man’s seemingly inevitable fall. However, it is also an explosively contemporary story of how a few words or a single action, which may appear careless to one person, can be charged for another, triggering a cascade of unimaginable consequences. It is a blazing achievement from one of Britain’s foremost living writers, a vivid and multilayered exploration of the mysteries of the heart, how community is forged and broken, and the shattering impact of secrets and assumptions alike.

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