Visiting Jan During COVID

Estimated reading time: 7 minutes, 32 seconds

Morning Alone

The alarm goes off, but I have already been awake for hours—the thought of seeing Jan had kept all of the synapses in my brain working at quantum speed. The inflatable mattress squishes as I stand up. My legs are wobbly as the bed is so close to the floor.

I devour breakfast; I am not sure what I ate.

Standing in the shower stall, I almost turn the water on again as I cannot remember if I showered. Soaking wet, I decide I must have showered. Today is essential, but it is not our first date.

Last night, I ordered food from Jerusalem Pizza, but they do not open until eleven. I pace aimlessly around the apartment.

I look at the NY Times again. None of the news in the paper version, good or bad, has changed. I debate checking my iPhone but decide to let it be.

At 9:30, I pull on my coat and start to leave to walk to her car. That takes ten minutes. The drive to pick up the food is only thirty minutes. Should I wait here or there? I decide to leave in hopes they open early.

Jerusalem Pizza

“I am here to pick up an order,” I say as I stand by the counter. “We have it almost ready,” the staff person responds. My heart sinks at the thought that I will see my wife late. He seems not to notice my angst.

He explains they are missing one salad. He recites the list of salads I can see in front of me.

“The Israeli salad will do.”

“You already have one already in the order.”

“I know,” I respond quickly. Will two of the same salad work?

“That’s fine; she likes the Israeli Salad.”

“Very good.”

They finish the order while I grab utensils and napkins.

His eyes focus on my left hand. “Is this for your wife?”

“Yes, she is in the hospital.”

“Is she OK?”

“My wife has been in the hospital for a month, and I am unsure how she is doing, but I can visit her.”

 I hear him whispering words in Hebrew.

“I just said a prayer for her recovery.”

I nod, as I cannot speak. I sign the charge slip and doubled the tip.

The Hospital

“Hi, how are you,” I say to the staff person at the table at the lobby entrance. I am here to see my wife, Jan Lilien.” I want her to check my temperature as quickly as possible. It has been 97.1 on every other visit, and she writes the same number and my name on the slip. I must look puzzled.

“I remembered your name as you have been here every day,” she says.

“Yes.”

I mouth or say thank you as my mind spins while she calls the COVID unit.

“I have Mr. Brown here to see his wife, Jan Lilien.”

I can’t understand what they are saying, but everything seems to go smoothly.

She gives me directions to the COVID unit.

“Thank you.”

With each step I take, I move faster.

The staff tells me to slow down.

“I am going to see my wife!”

“OK. But you cannot run in the hospital.”

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Being Mortal

Read: August 2019

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Being Mortal

by Atul Gawande

Before departing for Toronto to celebrate our 44th Wedding Anniversary, I went through the e-library. Everything on my list that I wanted to read was not available except for this book. Being Mortal by Atul Gawande is the book I read on our vacation before Jan’s diagnosis of non-Hodgkins Large B cell Lymphoma.

Selecting Being Mortal might seem an accidental choice to some, and I believe it was a divine intervention. It prepared me to be a caregiver to my wife over the nineteen months of her fight with cancer. It helped me focus on the good life that my wife lived and not the pain and suffering.

Atul Gawande describes his book as “riveting, honest, and humane, Being Mortal shows that the ultimate goal is not a good death but a good life – all the way to the very end.”

When I read the book, I wondered what I could have done to help my mother in her final years. The book provides an excellent overview of how nursing homes and assisted living have not been able to meet the needs of the residents.

Dr. Gawande provides an extensive overview of the benefits of hospice. Although I knew of this option, reading this book helped me understand that I was ready for hospice when my wife came home for the last time.

He reminds us that “when it comes to the inescapable realities of aging and death, what medicine can do often runs counter to what it should.” As he writes in the book, the current system does not work and, in many cases, actually shortens life.

This book has had a lasting impact on my life. It allowed me to be a loving caregiver to my wife when she needed it more than anything else. I read it when it would be most beneficial to me.

I highly recommend this book.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Remarkably Bright Creatures

Read: January 2024

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Remarkably Bright Creatures

by Shelby Van Pelt

Today, I recommended reading “Remarkably Bright Creatures” by Shelby Van Pelt. It’s a charming, witty, and compulsively readable exploration of friendship, reckoning, and hope. The novel traces the unlikely connection of a widow with a giant Pacific octopus, making it perfect for fans of “A Man Called Ove.” Shelby Van Pelt’s debut novel is a gentle reminder that sometimes, looking at the past can help uncover a future that once felt impossible.

The story follows Tova Sullivan, who works the night shift at the Sowell Bay Aquarium after her husband dies. Tova has been coping with loss since her eighteen-year-old son, Erik, mysteriously vanished on a boat in Puget Sound over thirty years ago.

While at the aquarium, Tova becomes acquainted with Marcellus, a grumpy giant Pacific octopus who refuses to cooperate with his human captors. However, Marcellus forms a remarkable friendship with Tova and helps her uncover the truth about her son’s disappearance.

As a detective, Marcellus uses his invertebrate body to deduce what happened when Tova’s son disappeared. Together, they embark on a journey to unearth the truth before it’s too late.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Move Like Water: My Story of the Sea

Read: October 2023

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Move Like Water: My Story of the Sea

by Hannah Stowe

I recently started reading a book called “Move Like Water: My Story of the Sea” by Hannah Stowe. It’s a captivating book that immerses you in a world of water, whales, storms, and starlight, allowing you to experience what it’s like to sail for weeks and live life to a new rhythm.

Hannah Stowe, a marine biologist and sailor in her mid-twenties, grew up on the Pembrokeshire coast of Wales, where she fell asleep to the sound of the lighthouse beam. Drawing upon her experiences sailing tens of thousands of miles in various seas, including the North Sea, North Atlantic, Mediterranean, Celtic Sea, and the Caribbean, she explores the human connection to the wild waters. Stowe ponders why she and others are drawn to life at sea and what we can learn from the water around us.

Stowe intertwines her narrative and illustrations with stories of six keystone marine creatures: the fire crow, sperm whale, wandering albatross, humpback whale, shearwater, and barnacle. Through these stories, she invites readers to fall in love with the sea and its inhabitants and to discover the majesty, wonder, and fragility of the underwater world.

If you enjoy the works of Rachel Carson and Annie Dillard, then “Move Like Water: My Story of the Sea” is a must-read. It’s an inspiring and heartfelt tribute to the sea, a testimony to pursuing and achieving a dream, and an unforgettable introduction to a talented new nature writer.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Read: April 2024

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The Cemetery of Untold Stories

by Julia Alvarez

Today, I began reading Julia Alvarez‘s novel “The Cemetery of Untold Stories.” The book explores whose stories deserve to be told and whose should remain buried. In the end, Alma, the main character, finds meaning in the power of storytelling. Julia Alvarez reminds us that our stories are never truly finished, even at the end.

Alma Cruz, a famous writer, doesn’t want to suffer the same fate as her friend, who became mentally unstable after struggling to finish a book. So, when Alma inherits a small plot of land in her native Dominican Republic, she turns it into a cemetery for her unfinished stories. She hopes her characters will finally be able to rest in peace.

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Daughter: A Novel

Read: September 2023

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Daughter: A Novel

by Claudia Dey

I started reading “Daughter: A Novel” by Claudia Dey today. According to Mona Dean, to be loved by your father is to be loved by God. Mona is a playwright, actress, and daughter of a man who is famous for a great novel. However, her father’s needs and insecurities significantly impact the women in his family, including Mona, her sister, her half-sister, and their mothers.

Mona’s father’s infidelity shattered her childhood, causing her to be in opposition to her stepmother, who also suffered from his actions. Mona’s father begins a new affair, and he confides in her. She enjoys his attention painfully and parasitically. When he confesses to his wife, Mona is blamed for the disruption, punished for her father’s actions, and kicked out of the family.

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Claudia Dey provides penetrating insight and devilish humor to chronicle our most intimate lives in “Daughter.” It’s an obsessive and blazing examination of the forces that drive us to become, create, and break free.

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