Jan and her Soul Sisters Blanket

by Richard W. Brown April 3, 2022 5 comments

Help Me Help, Jan

Estimated reading time: 10 minutes, 41 seconds

Jan’s Health Deteriorates

“Jan, I love you! I am here to help you out of bed,” I said beside her. It was 4 am on the second of April, and I had been trying to help her get out of bed for over two hours. We had already done this twice since 10 pm.

“You need to work with me to get to the bathroom.”

“I am helping.”

“Honey, you have not moved at all.”

Jan slowly rolled over toward me as I lifted the sheets off her.

I used my right hand to lift her while holding onto the walker.

“I can’t do this,” she moaned.

“You said you needed to go to the bathroom, and I am here to help.”

Pain painted her face with streaks of fear.

“Let me lift you into a sitting position.”

“I’m too heavy.”

“You are not too heavy. You are the love of my life. I can do it.”

I lifted her so she could sit on the bed.

My back hurt, but I did not want to admit it.

“All we need to do now is get you to stand up.”

Standing before the walker, I reached for her arms to help her slide off the bed.

“Take it slow and easy.”

“I am afraid.”

“Just sit for a minute.”

I moved the walker to my left and stood in front of her.

“I will lift you, and once you are standing, I will position the walker for you.”

Jan screamed as I placed my arms under her and lifted her.

I am not trying to hurt you,” I cried.

I was able to get her feet on the floor, but my back hurt. I bit my lip to hold back a primal scream.

“Here is the walker; let’s move slowly to the bathroom.”

Richard W. Brown

After almost 48 years, I recently lost my wife, Jan Lilien. Like The Little Prince, Jan and I believed that “The most beautiful things in the world cannot be seen or touched, they are felt with the heart.” This blog is a collection of my random thoughts on love, grief, life, and all things considered.

5 comments add your comment

Share your thoughts and ideasCancel reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.

My random thoughts on love, grief, life and all things considered.

My Midnight Lifeline Call
We can navigate life's unexpected twists and turns with courage and wisdom, even when traveling alone. However, there's no denying that the support of friends makes us even more vital as we face the inevitable ups and downs of life. […]
Twelve Hundred Days
I promise not to accept aging gracefully but to face it with an unwavering determination to make the most of the opportunities in my life. I will listen attentively, embrace wholeheartedly, and courageously step into the future! […]
Grief’s Lesson: Serving and Blessing the Living!
I have noticed various changes within me sparked by the transformative power of grief. It's a testament to the resilience of the human spirit and the potential for positive change. […]
Is Grief Narcissistic?
Despite the deep pain of missing my beloved wife daily, I have come to understand that it is essential that I continue living and finding joy in the present moment. […]
How Did I Grieve?
If grief has made me a better person, it's because God gave me the ability to listen, embrace, and move forward into the future. Although I miss Jan dearly, I am committed to living with courage, honoring her memory, and being my best father, grandfather, friend, and neighbor. […]

The Jan Lilien Education Fund!

Donate Now!

Lincoln in the Bardo: A Novel

Read: August 2024

Lincoln in the Bardo: A Novel

by George Saunders

My journey with “Lincoln in the Bardo: A Novel” by George Saunders began with recognition as one of The New York Times’ 100 Best Books of the Century. As I turned its pages, I was immersed in its profound exploration of living and loving in the face of inevitable endings. The book, which struck a personal chord with me after a loss, is a testament to Saunders’ storytelling prowess and a must-read for those interested in Abraham Lincoln.

February 1862. The Civil War is less than one year old. The fighting has begun in earnest, and the nation has already realized it is in for a long, bloody struggle. Meanwhile, President Lincoln’s beloved eleven-year-old son, Willie, lies upstairs in the White House, gravely ill. In a matter of days, despite predictions of a recovery, Willie dies and is laid to rest in a Georgetown cemetery. “My poor boy, he was too good for this earth,” the president says at the time. “God has called him home.” Newspapers report that a grief-stricken Lincoln returns, alone, to the crypt several times to hold his boy’s body.

From a seed of historical truth, George Saunders weaves an unforgettable tale of familial love and loss that transcends its realistic, historical framework. The story takes a daring leap into a realm that is hilarious and terrifyingly supernatural. Willie Lincoln’s journey in a strange purgatory, where ghosts mingle, gripe, commiserate, quarrel, and enact bizarre acts of penance, is a testament to Saunders’ imaginative prowess. The monumental struggle over young Willie’s soul in this transitional state, known as the bardo in the Tibetan tradition, is a narrative that will leave you spellbound.

Lincoln in the Bardo is an astonishing feat of imagination and a bold step forward from one of his generation’s most important and influential writers. Formally daring, generous in spirit, and deeply concerned with matters of the heart, it is a testament to fiction’s ability to speak honestly and powerfully about the things that matter to us. Saunders has invented a thrilling new form that deploys a kaleidoscopic, theatrical panorama of voices to ask a timeless, profound question: How do we live and love when we know everything we love must end?

Richard W. Brown

After almost 48 years, I recently lost my wife, Jan Lilien. Like The Little Prince, Jan and I believed that “The most beautiful things in the world cannot be seen or touched, they are felt with the heart.” This blog is a collection of my random thoughts on love, grief, life, and all things considered.

Breathe

Read: September 2021

Breathe

by Joyce Carol Oates

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

If there is no one to love, do we merit existence?
Never come to the end of kissing.
The first principle of life is; Breathe.
Shy in the language of intimacy.
As if a life lived with strangers could compensate for the emptiness in your heart.
No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

Subscribe

Contact Us

When you buy a book or product using a link on this page, I receive a commission. Thank you for supporting Sharing Jan’s Love blog.

Richard W. Brown

After almost 48 years, I recently lost my wife, Jan Lilien. Like The Little Prince, Jan and I believed that “The most beautiful things in the world cannot be seen or touched, they are felt with the heart.” This blog is a collection of my random thoughts on love, grief, life, and all things considered.

God Shot

Read: December 2021

God Shot by Chelsea Bieker

by Chelsea Bieker

God Shot by Chelsea Bieker, one of NPR’s Books We Love from 2020, is about the town of Peaches, California, where drought has settled in for the long term. The area of the Central Valley where fourteen-year-old Lacey May and her alcoholic mother live was once an agricultural paradise. Now it’s an environmental disaster, a place of cracked earth and barren raisin farms.

In their desperation, residents have turned to a cult leader named Pastor Vern for guidance. Everybody is praying for survival through secret “assignments” to bring the rain.

God Shot is an enjoyable read. However, I first found it challenging to accept Pastor Vern’s assignments, especially to Lacey May and her fellow teenage girls. Would people believe in a cult leader and get “assignments” that involve women fully accepting male domination in the twenty-first century? When I had doubts, I would wake up, listen to the news, or read the papers and discover that it is plausible and does happen in our world.

After being god-shot, Lacey May becomes one day at a time feminist as she has to rely on herself and other women who do not accept Pastor Vern’s divine leadership. Slowly but surely, she and her friends find a miracle to help them escape not only the environmental disaster caused by the drought but the moral depravity of Pastor Vern.

Goodreads provides this overview of the God Shot.

Lacey has no reason to doubt the pastor. But then her life explodes in a single unimaginable act of abandonment: her mother, exiled from the community for her sins, leaves Lacey and runs off with a man she barely knows. Abandoned and distraught, Lacey May moves in with her widowed grandma, Cherry, who is more concerned with her taxidermy mouse collection than her own granddaughter. As Lacey May endures the increasingly appalling acts of men who want to write all the rules and begins to uncover the full extent of Pastor Vern’s shocking plan to bring fertility back to the land, she decides she must go on a quest to find her mother no matter what it takes. With her only guidance coming from the romance novels she reads and the unlikely companionship of the women who knew her mother, she must find her own way through unthinkable circumstances.

Possessed of an unstoppable plot and a brilliantly soulful voice, Godshot is a book of grit, humor, and heart, a debut novel about female friendship and resilience, mother loss and motherhood, and seeking salvation in unexpected places. It introduces a writer who gives Flannery O’Connor’s Gothic parables a Californian twist and who emerges with a miracle that is all her own.

I recommend this novel without reservations!

Subscribe

Contact Us

When you buy a book or product using a link on this page, I receive a commission. Thank you for supporting Sharing Jan’s Love blog.

Richard W. Brown

After almost 48 years, I recently lost my wife, Jan Lilien. Like The Little Prince, Jan and I believed that “The most beautiful things in the world cannot be seen or touched, they are felt with the heart.” This blog is a collection of my random thoughts on love, grief, life, and all things considered.