Jan and Ana

Jan and Ana Visit During Hospice

by 26 comments

Home for Hospice

Estimated reading time: 11 minutes, 53 seconds

Jan Runs Out of Options

“Your mom was very frustrated today,” I told Jon as we set the table for dinner after I visited with his mom on Monday. “I had hoped she would have been as vibrant as she was when I saw her in the ICU on Saturday after the emergency stent surgery. I remain optimistic and want to focus on getting her home and keeping her here.”

Jon looked pensive as he queried me, “What can we do?”

“Well, from what I had seen when she was home, she was weak, and I could not always help her. We may need to look into rehab or more intensive physical therapy at home.”

While we ate dinner, we left those suggestions on the sideboard. They were thoughts that might be easier to discuss on a full stomach. 

We were sitting on the couch after cleaning the dinner dishes. 

“Those are the only options I can see,” said Jon. 

“We should talk to both of the oncologists. They might have ideas.”

Can you reach out to them to set up a call so Mike and I can discuss the next steps?

“Yes, I will text Dr. Strair in the morning and schedule a call.”

“Is the physical therapist downstairs the one Mom used?”

I said yes. “I will reach out to Karyn in the morning.”

Next Steps Planning

“Jon, let’s see if we can chat with Karyn for a few minutes before getting Mom her milkshake.” I pulled my mask up and stepped into the office of Keating Physical Therapy. As soon as she saw me, Karyn came over to me.

“Do you have a minute to chat with my two sons about the next steps for Jan?”

“Yes, how is she?”

As we walked outside, I gave her a quick update on Jan’s recent hospitalization and surgery. 

After introducing my sons, Jon asked, “We are trying to make the best plans for Mom’s return home. Is there a time we could talk to you about rehab or more physical therapy?

Yes, I would be happy to help with discharge plans,” said Karyn. Your Mom is wonderful, and I would be happy to do what I can to help.

Thanks; let us know the best time for you.

We stopped to get Jan a chocolate milkshake, and the mood was upbeat and optimistic. 

While they prepared the shake, I texted Dr. Strair. 

Both of our sons are in NJ this week. They are concerned, and if it is OK, they might appreciate a brief call to understand the next steps better.

April 6, 2021, 10:13 am

Dr. Strair responded and said we could talk this evening. 

“I will be at Mike’s for dinner,” said Jon.

I nodded as I got into the car and drove to visit Jan. 

Next Page

Pages: 1 2 3 4 5

26 comments add your comment

Share your thoughts and ideas

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Previous Post:

Next Post:

The Jan Lilien Education Fund!

Donate Now!
The Furrows- A Novel

Read: October 2022

Get this book

The Furrows: A Novel

by Namwali Serpell

The Furrows: A Novel by Namwali Serpell is a bold exploration of memory and mourning that twists unexpectedly into a story of mistaken identity, double consciousness, and the wishful—and sometimes willful—longing for reunion with those we’ve lost. Namwali Serpell’s remarkable new novel captures the uncanny experience of grief, the way the past breaks over the present like waves in the sea. I highly recommend this book.

The Furrows: A Novel reminded me of my longing to be reunited with Jan. I know it is impossible, but that does not keep me from desiring the unattainable. Reading this novel helped me remind me that Jan is still with me in spirit and that is far better than reuniting with her.

The Goodreads summary provides an overview,

Cassandra Williams is twelve, and her little brother Wayne is seven. One day, an accident happens when they’re alone together, and Wayne is lost forever. Or so it seems. Though his body is never recovered, their mother, unable to give up hope, launches an organization dedicated to missing children. Their father leaves and starts another family somewhere else.

As C grows older, she sees her brother everywhere: in coffee shops, airplane aisles, subway cars, and cities on either coast. Here is her brother’s more aging face, the light in his eyes, his lanky limbs, the way he seems to recognize her too. But it can’t be, of course. Or can it? Disaster strikes again, and C meets a man, both mysterious and strangely familiar, who is also searching for someone and his place in the world. His name is Wayne.

Namwali Serpell’s remarkable novel captures the ongoing and uncanny experience of grief–the past breaking over the present like waves in the sea. The Furrows is a bold and beautiful exploration of memory and mourning that twists unexpectedly into a masterful story of black identity, double consciousness, and the wishful and sometimes willful longing for reunion with those we’ve lost.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

×
Impossible to Forget

Read: January 2022

Get this book

Impossible to Forget

by Imogen Clark

Impossible to Forget by Imogen Clark is a poignant novel from the bestselling author of Where the Story Starts, an extraordinary final wish that brings five lives together forever.

Just turned eighteen, Romany is on the cusp of taking her first steps into adulthood when tragedy strikes, and she finds herself suddenly alone without her mother, Angie, the only parent she has ever known. In her final letter, Angie has charged her four closest friends with guiding Romany through her last year of school—but is there an ulterior motive to her unusual dying wish?

When I started reading the book’s initial chapters on Amazon, I found myself in an unexpected page-turner. I had been looking for a relaxing read and instead found a novel that is truly impossible to forget.

The book’s premise that a mother would assign her four closest friends to shared guardianship of her daughter is an unusual answer to a question that Jan and I often debated. Who would we designate to raise our children if something had happened to us? If only we could have had the imagination of Angie and her belief that this strange arrangement would be the answer.

Three of the friends were ones that Angie met at University.

  • Maggie, an attorney, is designated to focus on the tasks that need order.
  • Leon is given the culture assignment, although he has denied his talents.
  • Tiger, a nomad, is in charge of travel.

The fourth guardian, Hope, a former model, is in charge of relationships. But none of the others know her or why Angie would assign her that portfolio.

I very much enjoyed reading this novel. However, despite knowing it is about Angie’s death, I did not expect to find myself weeping uncontrollably in the closing chapters as Romany grapples with the beneficial outcomes of her mum’s plans.

Goodreads provides this overview.

As the guardians reflect on their friendship with Angie, it becomes apparent that this unusual arrangement is as much about them as it is about Romany. Navigating their grief individually and as a group, what will all five of them learn about themselves, their pasts—and the woman who’s brought them all together?

I recommend this book without reservation.

Impossible to Forget is the second time I have gotten a book from Amazon First Reads. Impossible to Forget is not scheduled to be published until February 1, 2022.

Subscribe

Contact Us

×
Martyr! A Novel

Read: October 2024

Get this book

Martyr! A Novel

by Kaveh Akbar

Today, I started reading “Martyr! A Novel” by Kaveh Akbar, the last of one of the five finalists for the 2024 National Book Award for Fiction I have read. This is also the 79th book I have read this year, surpassing my record from last year. Kaveh Akbar‘s “Martyr!” is a tribute to our pursuit of meaning in faith, art, ourselves, and others. The story follows Cyrus Shams, the newly sober, orphaned son of Iranian immigrants.

He is guided by the voices of artists, poets, and kings as he embarks on a search for a family secret, which leads him to a terminally ill painter living out her final days in the Brooklyn Museum.

Cyrus Shams, our protagonist, grapples with an inheritance of violence and loss. His mother’s tragic death and his father’s limited life in America have left him with scars. He’s a drunk, a person with a substance use disorder, and a poet, but above all, he’s a human being on a journey of self-discovery. His fascination with martyrs leads him to explore the mysteries of his past, including his uncle’s inspiring yet haunting role on Iranian battlefields and a painting that suggests his mother may not have been who or what she seemed.

“Martyr!” is a novel that’s not just electrifying and funny but also wholly original. It’s a testament to Kaveh Akbar‘s unique storytelling and heralds the arrival of an essential new voice in contemporary fiction. Get ready to be captivated by his narrative prowess.

×
Demon Copperhead: A Novel

Read: December 2022

Get this book

Demon Copperhead: A Novel

by Barbara Kingsolver

Demon Copperhead: A Novel by Barbara Kingsolver is a must-read page-turner! Set in the mountains of southern Appalachia, this is the story of a boy born to a teenage single mother in a single-wide trailer, with no assets beyond his dead father’s good looks and copper-colored hair, a caustic wit, and a fierce talent for survival. Demon Copperhead speaks for a new generation of lost boys and all those born into beautiful, cursed places they can’t imagine leaving behind.

With more knowledge about the devastation of an economy that works for a few and the opioid crisis, I felt as if I was reading about people I knew. Although the book focuses on the impact on boys, it also details the devastation that girls experience.

If Jan had read Demon Copperhead, she would have encouraged me to read it. It reminds us of the work we must do to repair the world.

As a widow, it was a reminder of the long road that we must all take even after we have hit bottom.

WNYC’s All of it hosted an interview with Barbara Kingsolver in which she speaks about Demon Copperhead and her writing.

Demon Copperhead is one of the NYTimes’ top five fiction books of 2022. I have read three of them, The Candy House, The Furrows, and Checkout 19.

The Goodreads summary provides an overview.

In a plot that never pauses for breath, relayed in his unsparing voice, he braves the modern perils of foster care, child labor, derelict schools, athletic success, addiction, disastrous loves, and crushing losses. Through all of it, he reckons with his invisibility in a popular culture where even the superheroes have abandoned rural people in favor of cities.

Many generations ago, Charles Dickens wrote David Copperfield from his experience as a survivor of institutional poverty and its damage to children in his society. Those problems have yet to be solved in ours. Dickens is not a prerequisite for readers of this novel, but he provided its inspiration. In transposing a Victorian epic novel to the contemporary American South, Barbara Kingsolver enlists Dickens’ anger and compassion and, above all, his faith in the transformative powers of a good story. Demon Copperhead speaks for a new generation of lost boys and all those born into beautiful, cursed places they can’t imagine leaving behind.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

×
The Shadow King: A Novel

Read: April 2022

Get this book

The Shadow King: A Novel

by Maaza Mengiste

The Shadow King: A Novel by Maaza Mengiste is a book happened to offer two often overlooked threads of history. The first is Mussolini’s 1935 invasion of Ethiopia. The second one I am most interested in is the women soldiers who were left out of the historical record. I highly recommend The Shadow King. It is a gorgeously crafted and unputdownable exploration of female power and what it means to be a woman at war.

Hirut and Aster come alive in Maaza Mengiste talented writing. Their struggles to be seen as equal in a society at war is engaging. Hirut’s plan to create a shadow kingpin the absence of Emperor Haile Selassie is one that turns defeat into victory.

Goodreads provides a good overview of the book.

With the threat of Mussolini’s army looming, recently orphaned Hirut struggles to adapt to her new life as a maid in Kidane and his wife Aster’s household. Kidane, an officer in Emperor Haile Selassie’s army, rushes to mobilize his most muscular men before the Italians invaded. His initial kindness to Hirut shifts into flinty cruelty when she resists his advances. Hirut finds herself tumbling into a new world of thefts and violations, betrayals, and overwhelming rage. Meanwhile, Mussolini’s technologically advanced army prepared for an easy victory. Hundreds of thousands of Italians―Jewish photographer Ettore among them―march on Ethiopia seeking adventure.

As the war begins in earnest, Hirut, Aster, and the other women long to do more than care for the wounded and bury the dead. When Emperor Haile Selassie goes into exile and Ethiopia quickly loses hope, Hirut offers a plan to maintain morale. She helps disguise a gentle peasant as the emperor and soon becomes his guard, inspiring other women to take arms against the Italians. But how could she have predicted her war as a prisoner of one of Italy’s most vicious officers, who would force her to pose before Ettore’s camera?

What follows is a gorgeously crafted and unputdownable exploration of female power, with Hirut as the fierce, original, and brilliant voice at its heart. In incandescent, lyrical prose, Maaza Mengiste breathes life into complicated characters on both sides of the battle line, shaping a heartrending, unforgettable exploration of what it means to be a woman at war.

Subscribe

Contact Us

When you buy a book or product using a link on this page, I receive a commission. Thank you for supporting Sharing Jan’s Love blog.

×
A Game Called Dead

Read: November 2021

Get this book

A Game Called Dead

by Michael Stephen Daigle

A Game Called Dead by Michael Stephen Daigle is the sequel to “The Swamps of Jersey,” the first Frank Nagler Mystery. Having read the fourth one – The Red Hand, I recently read the first one and thought this was an excellent time to read the second in this impressive deceptive series.

Reading the Frank Nagler Mysteries is rare when this reviewer knows the author. Mr. Daigle wrote this is the overview of A Game Called Dead.

Nagler is called to investigate the brutal attack on two women at the local college. It begins a tale of urban terror, which seems to be directed at Nagler and his associates.

The story introduces the mysterious terrorist #ARMEGEDDON, who taunted the police from cyberspace.

The story also digs deeper into Nagler’s past, especially the old Charlie Adams serial-killer case, and his relationship with Lauren Fox, who played a crucial role in exposing the political corruption in “Swamps.” She is back and steps into the front of Nagler’s life.

The story also introduced Harriet Waddley-Jones, a college dean, Nagler’s nemesis, and later ally.

Each book is a challenge to write a “better” book. In this case, I wanted tighter, faster action to develop a theme and flow to help carry the story. Sound and the description of sound are keys.

I also wanted Nagler to confront aspects of his past. Can he reconcile them, or will they always haunt him?

This reviewer’s opinion was a more substantial plot than the first book in the Frank Nagler Mysteries. Like all good mysteries, the suspense built page by page, and I figured out who the villain was late in the novel.

The one part that was difficult for me to read was the ending and the potential reigniting of the relationship with Lauren Fox. Having lost Jan, my wife, this year, I am aware of Frank Nagler’s pain in the first book about losing his wife. Ms. Fox only appeared in The Swamps of Jersey as a lost friend. I understand that some widows need to find love again to feel happy, which is not what I need or am seeking. The next book may provide some difficult moments on this topic, but I look forward to reading the next Frank Nagler Mystery.

Subscribe

Contact Us

When you buy a book or product using a link on this page, I receive a commission. Thank you for supporting Sharing Jan’s Love blog.

×

Discover more from Sharing Jan’s Love

Subscribe now to keep reading and get access to the full archive.

Continue reading