Home for Hospice

Estimated reading time: 11 minutes, 53 seconds

Jan Runs Out of Options

“Your mom was very frustrated today,” I told Jon as we set the table for dinner after I visited with his mom on Monday. “I had hoped she would have been as vibrant as she was when I saw her in the ICU on Saturday after the emergency stent surgery. I remain optimistic and want to focus on getting her home and keeping her here.”

Jon looked pensive as he queried me, “What can we do?”

“Well, from what I had seen when she was home, she was weak, and I could not always help her. We may need to look into rehab or more intensive physical therapy at home.”

While we ate dinner, we left those suggestions on the sideboard. They were thoughts that might be easier to discuss on a full stomach. 

We were sitting on the couch after cleaning the dinner dishes. 

“Those are the only options I can see,” said Jon. 

“We should talk to both of the oncologists. They might have ideas.”

Can you reach out to them to set up a call so Mike and I can discuss the next steps?

“Yes, I will text Dr. Strair in the morning and schedule a call.”

“Is the physical therapist downstairs the one Mom used?”

I said yes. “I will reach out to Karyn in the morning.”

Next Steps Planning

“Jon, let’s see if we can chat with Karyn for a few minutes before getting Mom her milkshake.” I pulled my mask up and stepped into the office of Keating Physical Therapy. As soon as she saw me, Karyn came over to me.

“Do you have a minute to chat with my two sons about the next steps for Jan?”

“Yes, how is she?”

As we walked outside, I gave her a quick update on Jan’s recent hospitalization and surgery. 

After introducing my sons, Jon asked, “We are trying to make the best plans for Mom’s return home. Is there a time we could talk to you about rehab or more physical therapy?

Yes, I would be happy to help with discharge plans,” said Karyn. Your Mom is wonderful, and I would be happy to do what I can to help.

Thanks; let us know the best time for you.

We stopped to get Jan a chocolate milkshake, and the mood was upbeat and optimistic. 

While they prepared the shake, I texted Dr. Strair. 

Both of our sons are in NJ this week. They are concerned, and if it is OK, they might appreciate a brief call to understand the next steps better.

April 6, 2021, 10:13 am

Dr. Strair responded and said we could talk this evening. 

“I will be at Mike’s for dinner,” said Jon.

I nodded as I got into the car and drove to visit Jan


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Funny Story

Read: November 2024

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Funny Story: A Novel

by Emily Henry

Today, I began reading Emily Henry‘s Funny Story, a delightful new novel about a pair of opposites connected by an unexpected bond. It was featured in The New York Times 100 Notable Books of 2024. The narrator, Daphne, finds herself single after being dumped following her fiancé’s bachelor party, and she ends up moving in with her ex-fiancé’s former boyfriend.

Daphne always enjoyed how her fiancé, Peter, told their love story: they met on a blustery day, fell in love over an errant hat, and moved back to his lakeside hometown to start their life together. He was great at telling their story—until he realized he was in love with his childhood best friend, Petra.

This is where Daphne begins her new chapter: stranded in beautiful Waning Bay, Michigan, without friends or family, but with a dream job as a children’s librarian (which barely pays the bills). She proposes to room with the only person who might understand her situation: Miles Nowak, Petra’s ex.

Miles is scruffy and chaotic, finding comfort in the sounds of heartbreak ballads. He is the opposite of practical, buttoned-up Daphne, whose coworkers know so little about her that they have a running bet whether she is in the FBI or witness protection. The two roommates initially avoid each other, but one day, while mourning their circumstances, they develop a fragile friendship and devise a plan. Their plan includes posting misleading photos of their summer adventures together—who could blame them for wanting to create a better story?

But it’s all just for show, of course, because there’s no way Daphne would start this new chapter by falling in love with her ex-fiancé’s new fiancée’s ex… right?



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The Fire and the Ore

Read: September 2022

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The Fire and the Ore

by Olivia Hawker

The Fire and the Ore by Olivia Hawker is a novel set in 1856 when three women—once strangers—come together in unpredictable Utah Territory. Hopeful, desperate, and willful, they’ll allow nothing on earth or Heaven to stand in their way. I have always enjoyed the history of the movement of people across the plains. Tamar, Jane, and Tabitha, along with their shared husband, Thomas Ricks, were real people, and Olivia Hawker compellingly describes them as people living in difficult times.

Olivia Hawker is a descendant of Jane and a former Mormon. She writes eloquently about the unnecessary Utah War (AKA Buchanan’s Blunder) and how the sister-wives grow to love and support each other. Tamar’s sister Patience, although a minor character, wrote a memoir of the time that the author used as a resource.

Reading a compelling historical fiction novel about family, sisterhood, and survival about three women like Jan was an easy choice. It was a page-turner from the first page to the last.

The Washington Post bestselling author of One for the Blackbird, One for the Crow is a compelling novel of family, sisterhood, and survival.

The Goodreads summary provides a good overview,

Following the call of their newfound Mormon faith, Tamar Loader and her family weather a brutal pilgrimage from England to Utah, where Tamar is united with her destined husband, Thomas Ricks. Clinging to a promise for the future, she abides a surprise: Thomas is already wedded to one woman—Tabitha, a local healer—and betrothed to another.

Orphaned by tragedy and stranded in the Salt Lake Valley, Jane Shupe struggles to provide for herself and her younger sister. Out of necessity, with no love lost, she too must bear the trials of a sister-wife. She is no member of the Mormon migration, yet Jane agrees to marry Thomas.

But when the US Army’s invasion brings the rebellious Mormon community to heel, Tamar, Jane, and Tabitha are forced to retreat into the hostile desert wilderness with little in common but the same man—and the resolve to keep themselves and their children alive. What they discover, as one, is redemption, a new definition of family, and a bond stronger than matrimony that is tested like never before.


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Mercy Street: A Novel

Read: February 2023

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Mercy Street: A Novel

by Jennifer Haigh

Mercy Street: A Novel by Jennifer Haigh is a tense, riveting story about the disparate lives intersecting at a Boston women’s clinic. The novel was named Best Book of the Year by the Washington Post, the New Yorker, and the Boston Globe. Mercy Street is a novel for right now, a story of the polarized American present. Ms. Haigh is a gifted storyteller who has written a very readable book that I highly recommend. 

I truly enjoyed Mercy Street. I had read her short story Zenith Man, and I enjoyed her storytelling skill and wanted to read her most recent novel. Until the last few pages, I was unsure how Ms. Haigh‘s intricate storylines could conclude the story. Usually, I can predict how a story will unfold well before I finish reading it. Mercy Street was a rare exception to that rule.

I have never had to run the gauntlet in front of a women’s clinic, but Ms. Haigh has made that experience so real that I could taste it. The day-to-day work of the staff and the clients was detailed and believable. The male characters, Timmy, the affable pot dealer; Anthony, a lost soul; and Excelsior11-the screenname of Victor Prine, were drafted n a credible way.

As stated earlier, I highly recommend this book.

The Goodreads summary provides an overview,

Claudia has counseled patients for almost a decade at Mercy Street, a clinic in the city’s heart. The work is consuming the unending dramas of women in crisis. For its patients, Mercy Street offers more than health care; for many, it is a second chance.

But outside the clinic, the reality is different. Anonymous threats are frequent. A small, determined group of anti-abortion demonstrators appears each morning at its door. As the protests intensify, fear creeps into Claudia’s days, a humming anxiety she manages with frequent visits to Timmy, an affable pot dealer amid his existential crisis. At Timmy’s, she encounters a random assortment of customers, including Anthony, a lost soul who spends most of his life online, chatting with the mysterious Excelsior11–the screenname of Victor Prine. This anti-abortion crusader has set his sights on Mercy Street and is ready to risk it all for his beliefs.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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An American Marriage

Read: September 2024

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An American Marriage

by Tayari Jones

Today, I started reading “An American Marriage” by Tayari Jones. It is a masterpiece of storytelling that delves into people’s souls as they confront the past and move forward into the future with hope and pain. The book, which has won numerous awards and was selected as one of The New York Times’ 100 Best Books of the 21st Century, is a must-read for any contemporary fiction enthusiast.

Newlyweds Celestial and Roy embody both the American Dream and the New South. He is a young executive, and she is an artist on the brink of an exciting career. But as they settle into their routines, they are ripped apart by circumstances neither could have imagined. Their story reflects the complexities of modern relationships and the impact of the criminal justice system on individuals and families.

Roy’s arrest and subsequent twelve-year sentence for a crime he didn’t commit shatters their world. Though fiercely independent, Celestial finds herself adrift, seeking solace in Andre, her childhood friend and the best man at their wedding. As Roy’s time in prison stretches on, she struggles to hold on to the love that has always been her anchor. When Roy’s conviction is finally overturned after five years, he returns to Atlanta, ready to pick up the pieces of their shattered life, a testament to their resilience and enduring love.

This stirring love story is a profoundly insightful look into the hearts and minds of three people who are at once bound and separated by forces beyond their control. “An American Marriage” is a masterpiece of storytelling—an intimate look deep into people’s souls who must reckon with the past while moving forward—with hope and pain—into the future.



When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!


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The Ferryman: A Novel

Read: May 2023

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The Ferryman: A Novel

by Justin Cronin

The novel, “The Ferryman,” by Justin Cronin, is set in the beautiful archipelago of Prospera. People lead long and fulfilling lives in this society until their forearm monitors drop below 10%. Then, they retire to the Nursery. Their memories are wiped clean, and they start a new life as sixteen-year-olds.

Although the book was recently published, I hesitated to read it due to the unsettling notion of having my memories wiped clean. However, my curiosity got the best of me, and I’m glad it did. Proctor Bennett, the protagonist, works as a ferryman, assisting people through retirement. But things worsen when Proctor starts dreaming, which is impossible in Prospera, and his monitor percentage rapidly decreases. Are these dreams fragments of a past that they cannot recall?

Amidst all this, rumors about the Arrivalists, who oppose the societal structure, and even the Support Staff, who keep Prospera functioning, are questioning their roles. Proctor finds himself caught up in a more significant cause than expected and sets out to uncover the truth.

Without giving away too much, things are not always what they seem in Prospera.

As a widow, I found this line particularly poignant: “That loss was love’s accounting, its unit of measure, as a foot was made of inches, a yard was made of feet.

I thoroughly enjoyed reading this book; it kept me engaged and excited, and my Kindle was my go-to device for reading it. I highly recommend this novel.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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The Lion's Den

Read: January 2023

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The Lion’s Den

by Anthony Marra

Today, I read The Lion’s Den by Anthony Marra. After a four and one-half Zoom meeting, I was looking for a book I could finish tonight, and the third book in the Inheritance, a collection of five stories about secrets, unspoken desires, and dangerous revelations between loved ones, seemed like the book to read. The Lion’s Den is the story of Michael, a son, his father’s transgressions in a tell-all were the ethical, righteous—and profitable—thing to do. What’s left but to slink back home for a humbling face-to-face with the man whose secrets he sold?

It was the perfect novel to read this evening. In the opening paragraph, when Michael’s father describes the automated customer service computer voice.” Siri’s dimwitted stepsister,” I knew I could enjoy this book.

Michael’s last-minute invitation to be the Ethics Symposium speaker at his parochial school was written in a way that was both bluntly honest and humorous.

Michael’s visits with his father to the lion’s den at the National Zoo were profoundly moving, and when the wheelchair was left there after his father’s death brought tears to my eyes.

I highly recommend The Lion’s Den, part of Inheritance, a collection of five stories about secrets, unspoken desires, and dangerous revelations between loved ones. Each Inheritance piece can be read or listened to in a single setting. By yourself, behind closed doors, or shared with someone you trust. This is the third one in the series I have read. The previous two were Everything My Mother Taught Me and Can You Feel This?

I have enjoyed all three and look forward to reading the final two.

The Goodreads summary provides an overview,

Exposing his father’s transgressions in a tell-all was the ethical, righteous—and profitable—thing to do. What’s left but to slink back home for a humbling face-to-face with the man whose secrets he sold?

He was a notorious government whistle-blower. Depending on whom you ask, he’s a treasonous felon, a folk hero, a validated patriot, or a national disgrace. To his son, Michael, he’s the father who threw his family into upheaval. Now, having moved back home at thirty-four, Michael is getting to know him as a man and getting nearer to understanding his motivations that have remained a mystery in this darkly humorous short story of sacrifice and betrayal by New York Times bestselling author Anthony Marra.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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