Home for Hospice

Estimated reading time: 11 minutes, 53 seconds

The Truth, Nothing but the Truth

“Mike, I am in my car and ready to call Dr. Strair. Do I need to call Jon, or can the two of you use the speakerphone?” Mike responded that he and Jon were going on the deck and could use the speakerphone. I had pulled out of the parking deck and was on the side of the road.

“Hold on; I will call the doctor and connect the calls.”

Dr. Strair answered on the second ring.

“Dr. Strair, how are you? Thanks for taking the time to talk with us. I wanted to introduce Mike and Jon, our two sons. We wanted to speak to you about the next steps in treating Jan’s lymphoma and how best to ensure her next discharge goes smoothly.

After Dr. Strair welcomed the boys to the call, he moved directly to the topic.

“I will tell you what I would tell my wife, our children, or a loved one. We cannot treat lymphoma effectively because of COVID, and the lymphoma keeps us from treating COVID. Her lymphoma is very aggressive, and we have tried three treatments. Each time we do a new treatment, the efficacy declines. If there was no COVID, there is little we could do.

He paused as Jan’s Prius turned itself onto Shunpike. Was I driving the car, or was it self-driving?

“I wish I did not have to say this, but the only option left for Janice is hospice.”

My stomach flipped, and I was sure it had jumped out of the window. The call had been to plan for Jan’s recovery, and now we discussed her death.

“There is no other option,” Jon asked. 

Dr. Strair said no.

“How long does she have left,” Mike queried.

I suspect she only has a few weeks to live.”

We continued talking while the car proceeded to its parking space.

“Thank you, Dr. Strair, for your honesty,” I said as the car parked itself and ended the call. 

I knew I needed to get out of the car, but I was too weak to move. 

My iPhone’s ring jolted me out of my panic state. 

“Dad, Jon, and I are on the way to being with you. You shouldn’t be alone now.


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Sing, Unburied, Sing

Read: October 2024

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Sing, Unburied, Sing

by Jesmyn Ward

I started reading Jesmyn Ward‘s novel Sing, Unburied, Sing today. The New York Times selected it as one of the best books of the 21st century and awarded it the National Book Award. According to The New York Times, Jesmyn Ward‘s historic second National Book Award winner is “perfectly poised for the moment.” It’s an intimate portrait of three generations of a family and an epic tale of hope and struggle.

Jojo is thirteen years old and is trying to understand what it means to be a man. He has several father figures to learn from, including his Black grandfather, Pop. However, Jojo’s understanding is complicated by other men in his life: his absent White father, Michael, who is being released from prison; his absent White grandfather, Big Joseph, who refuses to acknowledge him; and the memories of his deceased uncle, Given, who died as a teenager.

His mother, Leonie, is inconsistent in her and her toddler daughter’s lives. She is a flawed mother in constant conflict with herself and those around her. She is Black, and her children’s father is White. She wants to be a better mother but struggles to prioritize her children over her own needs, particularly her drug use. Tormented and comforted by visions of her deceased brother, which only come to her when she’s high, Leonie is embattled in ways that reflect the harsh reality of her circumstances.

When their father is released from prison, Leonie takes her kids and a friend in her car and drives north to Mississippi and Parchman Farm, the State Penitentiary. At Parchman, there is another thirteen-year-old boy, the ghost of a deceased inmate who carries the ugly history of the South with him in his wanderings. With his supernatural presence, this ghostly figure also has something to teach Jojo about fathers and sons, legacies, violence, and love.

Described as a majestic and unforgettable family story, ‘Sing, Unburied, Sing‘ is rich with Ward‘s distinctive, lyrical language. As noted by The Philadelphia Inquirer, her unique narrative style takes readers on ‘an odyssey through rural Mississippi’s past and present.’

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Summer a Novel

Read: October 2021

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Summer: A Novel

by Ali Smith

Summer: A Novel by Ali Smith is a fascinating book about the times in which we live.

In the present, Sacha knows the world’s in trouble. Her brother Robert just is trouble. Their mother and father are having trouble. Meanwhile the world’s in meltdown – and the real meltdown hasn’t even started yet.

In the past, a lovely summer. A different brother and sister know they’re living on borrowed time.

This is a story about people on the brink of change.

They’re family, but they think they’re strangers.

So: where does family begin? And what do people who think they’ve got nothing in common have in common?

Summer.

Because of the two different periods and the multiple characters, I had some difficulty following the plot until about halfway to the end. Suddenly it all fit together and made sense.

The book revealed information about the internments during World War II in England that I had not fully comprehended.

Sacha’s focus on the environmental degradation augmented by the COVID pandemic provided an emotional undertow in the book.

I now must begin to read the other three novels in this Seasonal Quartet.

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Self-Portrait with Ghost: Short Stories

Read: December 2022

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Self-Portrait with Ghost: Short Stories

by Meng Jin

Self-Portrait with Ghost: Short Stories by Meng Jin was written during the turbulent years of the Trump administration and the first year of the pandemic, these stories explore intimacy and isolation, coming of age, and coming to terms with the repercussions of past mistakes, fraying relationships, and surprising moments of connection. I highly recommend Self-Portrait with Ghost: Short Stories!

Each story speaks so clearly to the loneliness epidemic that confronts our world. I would read one short story and promise to stop and wait until another day to read the next one. Instead

One phrase that will always remain with me is: “The hallucinatory quality of grief.” As a widow, the phrase struck a chord that will forever resonate in my soul.

This is the seventy-third book I have read this year.

The Goodreads summary provides an overview,

Meng Jin’s critically acclaimed debut novel, Little Gods, was praised as “spectacular and emotionally polyphonic (Omar El-Akkad, BookPage), “powerful” (Washington Post), and “meticulously observed, daringly imagined” (Claire Messud). Jin turns her considerable talents into short fiction in ten thematically linked stories.

Moving between San Francisco and China, and from unsparing realism to genre-bending delight, Self-Portrait with Ghost considers what it means to live in an age of heightened self-consciousness, seemingly unlimited access to knowledge, and little actual power.

Page-turning, thought-provoking, and wholly unique, Self-Portrait with Ghost further establishes Meng Jin as a writer who “reminds us that possible explanations in our universe are as varied as the beings who populate it” (Paris Review).


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Evergreen

Read: October 2022

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Evergreen by Kirsten Robinson

by Kirsten Robinson

Evergreen by Kirsten Robinson is a tribute to the enduring resilience of human nature as we cycle through times of light and darkness, much like nature itself. In her debut book, Kirsten Robinson (@NakedWriting) lays her heart bare in a raw, relatable, and inspirational way to describe the journey of growth born out of finding beauty in breakage and love after loss.

Albeit a cliche, the book jumped off the shelf and into my hands when I saw it in Hickory & Hill General Store in Cranford.

This artfully honest collection embodies and expands upon the poetry and prose Robinson began writing under the famous social media pseudonym Naked Writing.

I highly recommend this book and intend to keep it at my bedside for a pick-me-up.

Although I have only started reading the poems, I want to share two that resonated with me.

The first one is on giving thanks.

Give thanks for all
that is good and beautiful;
the gifts you carry
people who lift you up
your big, big love
faith and trust that your life
is unfolding as it should

Give thanks for all
that has been difficult and hard;
trials tribulations tears
tests of self strength fears
all of the unknowns and days
that broke you

Without the darkness
you would not have
learned to appreciate the light

A second one on bravery.

Bravery
is not about standing tall
after you’ve climbed up
the top of a mountain

Bravery
is looking
fear
heartache
rejection
terror
loss
death
in the eye
and saying, “no,
not today”

Bravery
is standing back up
after you’ve been brought down
to your knees


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love.

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Anxious People

Read: June 2022

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Anxious People

by Fredrik Backman

Anxious People by Fredrik Backman, a poignant comedy about a crime that never occurred. A would-be bank robber disappears into thin air, and eight highly anxious strangers find they have more in common than they ever imagined. Anxious People is a novel that Jan and I would have both enjoyed reading. It jumped off the e-book shelf while looking for a new book to read.

Although Anxious People is a humorous comedy, it is really about the enduring power of friendship, forgiveness and hope, which are the key to our survival as individuals, couples and communities. It is the core of what made the love that Jan and I shared special and unique, but it is also what I gain from my participation in my various grief groups as well as Friday night Shabbat services.

I highly recommend this book.

The Goodreads summary provides an overview.

Viewing an apartment usually doesn’t turn into a life-or-death situation. Still, this particular open house becomes just that when a failed bank robber bursts in and takes everyone in the apartment hostage. As the pressure mounts, the eight strangers slowly open up to one another and reveal long-hidden truths.

First is Zara, a wealthy bank director who has been too busy to care about anyone else until tragedy changed her life. Now, she’s obsessed with visiting open houses to see how ordinary people live—perhaps, setting an old wrong to the right. Then there’s Roger and Anna-Lena, an Ikea-addicted retired couple who are on a never-ending hunt for fixer-uppers to hide the fact that they don’t know how to fix their failing marriage. Julia and Ro are a young lesbian couple and soon-to-be parents who are nervous about their chances for a successful life together since they can’t agree on anything. And there’s Estelle, an eighty-year-old woman who has lived long enough to be unimpressed by a masked bank robber waving a gun. And despite the story she tells them all, Estelle hasn’t come to the apartment to view it for her daughter, and her husband isn’t outside parking the car.

As police surround the premises and television channels broadcast the hostage situation live, the tension mounts, and even deeper secrets are slowly revealed. Before long, the robber must decide which is the terrifying prospect: going out to face the police or staying in the apartment with this group of impossible people.

Rich with Fredrik Backman’s “pitch-perfect dialogue and an unparalleled understanding of human nature” (Shelf Awareness), Anxious People’s whimsical plot serves up unforgettable insights into the human condition and a gentle reminder to be compassionate to all the anxious people we encounter every day.


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Us Fools

Read: November 2024

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Us Fools: A Novel

by Nora Lange

Today, I embarked on the journey of Us Fools by Nora Lange. This poignant and personal American narrative is about two remarkable sisters who, against all odds, come of age during the Midwestern farm crisis of the 1980s. In her debut novel, Nora Lange has crafted a lively, ambitious, and heart-wrenching portrait of two unique sisters determined to persevere despite the harsh realities of capitalism and their circumstances. After a pivotal national election, this seemed like the perfect book to read.

Joanne and Bernadette Fareown, born and raised on a family farm in rural Illinois, are deeply impacted by their parents’ tumultuous relationship and mounting financial debt, haunted by the unsettling history of the women in their family. Left to fend for themselves, the sisters delve into Greek mythology, feminism, and Virginia Woolf. As they grapple with these trying circumstances, they must devise unique coping mechanisms and question the validity of the American Dream. At the same time, the rest of the nation disregards their struggling community.

Jo and Bernie’s imaginative efforts to escape their parents’ harsh realities ultimately fall short, prompting the family to relocate to Chicago. There, Joanne—free-spirited, reckless, and struggling to manage her inner turmoil—rebels in increasingly desperate ways. After undergoing her most significant breakdown yet, Jo goes into exile in Deadhorse, Alaska. Bernadette takes it upon herself to apply everything she has learned from her sister to rekindle a sense of hope in a failing world.

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