Jan and Ana

Jan and Ana Visit During Hospice

by 26 comments

Home for Hospice

Estimated reading time: 11 minutes, 53 seconds

The Truth, Nothing but the Truth

“Mike, I am in my car and ready to call Dr. Strair. Do I need to call Jon, or can the two of you use the speakerphone?” Mike responded that he and Jon were going on the deck and could use the speakerphone. I had pulled out of the parking deck and was on the side of the road.

“Hold on; I will call the doctor and connect the calls.”

Dr. Strair answered on the second ring.

“Dr. Strair, how are you? Thanks for taking the time to talk with us. I wanted to introduce Mike and Jon, our two sons. We wanted to speak to you about the next steps in treating Jan’s lymphoma and how best to ensure her next discharge goes smoothly.

After Dr. Strair welcomed the boys to the call, he moved directly to the topic.

“I will tell you what I would tell my wife, our children, or a loved one. We cannot treat lymphoma effectively because of COVID, and the lymphoma keeps us from treating COVID. Her lymphoma is very aggressive, and we have tried three treatments. Each time we do a new treatment, the efficacy declines. If there was no COVID, there is little we could do.

He paused as Jan’s Prius turned itself onto Shunpike. Was I driving the car, or was it self-driving?

“I wish I did not have to say this, but the only option left for Janice is hospice.”

My stomach flipped, and I was sure it had jumped out of the window. The call had been to plan for Jan’s recovery, and now we discussed her death.

“There is no other option,” Jon asked. 

Dr. Strair said no.

“How long does she have left,” Mike queried.

I suspect she only has a few weeks to live.”

We continued talking while the car proceeded to its parking space.

“Thank you, Dr. Strair, for your honesty,” I said as the car parked itself and ended the call. 

I knew I needed to get out of the car, but I was too weak to move. 

My iPhone’s ring jolted me out of my panic state. 

“Dad, Jon, and I are on the way to being with you. You shouldn’t be alone now.

Next Page

Pages: 1 2 3 4 5

26 comments add your comment

Share your thoughts and ideas

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Previous Post:

Next Post:

The Jan Lilien Education Fund!

Donate Now!
Finding Peace, One Piece at a Time

Read: September 2021

Get this book

Finding Peace, One Piece at a Time

by Rachel Blythe Kodanaz

Finding Peace, One Piece at a Time by Rachel Blythe Kodanaz is a book I wish I had long before Jan died. It provides helpful information on maintaining an organized lifestyle and handling a loved one’s possessions.

Having lost almost everything I had except for the clothes on my back after a house fire in 1972, I thought I had adopted a view that possessions were not significant. With Jan’s death, the truth is that she and I had collected essential possessions, and now it was my responsibility to decide what to do with them.

Rachel’s book is a practical guide, offering a comprehensive understanding of the significance of possessions and a step-by-step plan to manage them. Chapter 3, in particular, is a treasure trove of practical advice, focusing on Building Your Game Plan: The Ten Essentials and covering all the crucial topics – triggers, building a team, and creating a timeline, among others.

Magic of the Six Piles is a well-designed plan that will help most of us confront the possessions of our loved ones. The piles are:

  1. Keep
  2. Share
  3. Donate
  4. Sell
  5. Dispose
  6. Ponder

Having absorbed the book’s wisdom, I am ready to transition from contemplation to action. This is how I sort my wife’s possessions into six piles. I am optimistic that it will also help me streamline my possessions, making books my trusted company more accessible for my sons.

Ms. Kodanaz has presented at my bereavement groups and has been an inspiration. She has also encouraged me to write about my love for Jan in a journal.

Subscribe

Contact Us

×
The Peacekeeper

Read: May 2022

Get this book

The Peacekeeper: A Novel

by B.L. Blanchard

The Peacekeeper: A Novel by B.L. Blanchard is about North America, where The United States and Canada do not exist. After reading about Ethiopia during the ill-fated Italian invasion, I looked for an alternative history of my continent. An independent Ojibwe nation surrounding the Great Lakes is the change in venue that I was seeking.

Although crime mysteries are not my preferred genre, I found The Peacekeeper: A Novel by B.L. Blanchard a pageturner and a highly recommended book. Chibenashi’s works resolve a second murder twenty years after his mothers. The victim is his mother’s best friend. The search for truth will change his life and those close to him.

The Goodreads summary:

Against the backdrop of a never-colonized North America, a broken Ojibwe detective embarks on an emotional and twisting journey toward solving two murders, rediscovering family, and finding himself.

In the village of Baawitigong, a Peacekeeper confronts his devastating past.

Twenty years ago, Chibenashi’s mother was murdered, and his father confessed. Ever since caring for his still-traumatized younger sister has been Chibenashi’s privilege and penance. Now, another woman is slain on the same night of the Manoomin harvest—his mother’s best friend. The murder leads to a seemingly impossible connection that takes Chibenashi far from the only world he’s ever known.

The central city of Shikaakwa is home to the victim’s cruelly estranged family—and to two people Chibenashi never wanted to see again: his imprisoned father and the lover who broke his heart. As the questions mount, the answers will change his and his sister’s lives forever because Chibenashi is about to discover that everything about those lives has been a lie.

Subscribe

Contact Us

When you buy a book or product using a link on this page, I receive a commission. Thank you for supporting Sharing Jan’s Love blog.

×
Invisible Child

Read: December 2021

Get this book

Invisible Child: Poverty, Survival & Hope in an American City

by Andrea Elliott

Invisible Child: Poverty, Survival & Hope in an American City by Andrea Elliott was a gift from my son Jon. The New York Times selected “Invisible Child” as one of the best books published this year. It is indeed one of the top books on my all-time list.

GoodReads summary provides a good overview,

The riveting, unforgettable story of a girl whose indomitable spirit is tested by homelessness, poverty, and racism in an unequal America—from Pulitzer Prize-winning journalist Andrea Elliott of The New York Times

Invisible Child follows eight dramatic years in the life of Dasani Coates, a child with imagination as soaring as the skyscrapers near her Brooklyn homeless shelter. Born at the turn of a new century, Dasani is named for the bottled water that comes to symbolize Brooklyn’s gentrification and the shared aspirations of a divided city. As Dasani grows up, moving with her tight-knit family from shelter to shelter, this story goes back to trace the passage of Dasani’s ancestors from slavery to the Great Migration north. When Dasani comes of age, New York City’s homeless crisis explodes as the chasm deepens between rich and poor.

In the shadows of this new Gilded Age, Dasani must lead her seven siblings through a thicket of problems: hunger, parental drug addiction, violence, housing instability, segregated schools, and the constant monitoring of the child-protection system. When, at age thirteen, Dasani enrolls at a boarding school in Pennsylvania, her loyalties are tested like never before. As she learns to “code switch” between the culture she left behind and the norms of her new town, Dasani starts to feel like a stranger in both places. Ultimately, she faces an impossible question: What if leaving poverty means abandoning the family you love?

By turns heartbreaking and revelatory, provocative and inspiring, Invisible Child tells an astonishing story about the power of resilience, the importance of family, and the cost of inequality. Based on nearly a decade of reporting, this book vividly illuminates some of the most critical issues in contemporary America through the life of one remarkable girl.

Jan and I were involved and knew that child poverty and homelessness needed repair. In addition, Jan lived on Washington Park across from Ft. Greene Park in 1974-75. We knew the neighborhood where much of the book’s story takes place. 

Before meeting Jan in 1973, I was both a community/tenant organizer and a youth worker. In the latter role, I made weekly hostel trips for eight to ten young boys from East Williamsburg during 1973. The trips were the first the boys had ever been outside of their neighborhood.

Many of them had imaginations like Dasani. They also had her instinct to fight. One of my first tasks was to check for any weapons.

Decades later, when I would see any of them, now adults, they would ask when we were going on another trip. I wish I had met Jan when I made those trips. She would have helped me improve them and document the impact. If I could re-write history, I would have her join me as the second adult on the hostel trips.

After that summer, it was clear my primary skills were as a community/tenant organizer. Over the next few years, my work focused on creating affordable and supportive housing.

Jan and I did meaningful work that made a difference, yet the need for a permanent solution to the crisis remains. The book highlights the crucial role of resilience, the importance of family, and the cost of inequality. As a nation, we cannot undermine those values by breaking up families, impeding resilience, and maintaining racial and economic inequality. 

The current debate in Washington over the Build Back Better legislation needs to focus not on how much we spend but on its impact on children and families. 

David Brooks, a conservative commentator, has supported these expenditures for what they can do to address this country’s cultural and economic crisis. 

These packages say to the struggling parents and the warehouse workers: I see you. Your work has dignity. You are paving your way. You are at the center of our national vision.

This is how you fortify a compelling moral identity, which is what all of us need if we’re going to be able to look in the mirror with self-respect. This is the cultural transformation that good policy can sometimes achieve. Statecraft is soulcraft.

If you can only read one book this year, this is the one to read. Child poverty, homelessness, and inequality impact all of us. Ending child poverty and homelessness will make us a healthier and more inclusive nation. It is time for a compelling moral call to action!

Subscribe

Contact Us

When you buy a book or product using a link on this page, I receive a commission. Thank you for supporting Sharing Jan’s Love blog.

×
The Essential Hamilton: Letters & Other Writings: A Library of America Special Publication

Read: February 2019

Get this book

The Essential Hamilton: Letters & Other Writings

by Edited by Joanne B. Freeman

The Essential Hamilton: Letters & Other Writings, edited by Joanne B. Freeman, Professor of History and American Studies at Yale University, is a must-read in our times when a constitutional crisis is the watchword of our day. Compared to reading all 27 volumes of Hamilton’s writings, this book provides the essential texts that offer a clear understanding of both the revolutionary era, the debates over the constitution, Hamilton’s impact as Secretary of the Treasury, and his downfall and eventual downfall death in Weehawken.

Professor Freeman’s introductions and chronology help place the writings into a historical context.

The Essential Hamilton is one of four books that I purchased after my first One Day University class.

Subscribe

Contact Us

×
The Surgeon's Daughter

Read: July 2022

Get this book

The Surgeon’s Daughter

by Audrey Blake

I did something I had not done in decades. After finishing the Big Library Read of 2022, The Girl in His Shadow, by Audrey Blake, I immediately started reading the sequel, The Surgeon’s Daughter. The protagonist, Nora Beady, was such a strong female lead that I could not wait to find out what happened next. In the sequel, Nora Beady, the only female student at a prestigious medical school in Bologna, is a rarity. Nora’s tenacity and passion reminded me of Jan, the love of my life.

In the 19th century, women were supposed to remain at home and raise children, so her unconventional, indelicate ambitions to become a licensed surgeon offended the men around her.

Ms. Blake has a split personality— because she is the creative alter ego of writing duo Jaima Fixsen and Regina Sirois, two authors who met as finalists of a writing contest and have been writing together happily ever since.

The pen name – Audrey Blake – was in response to the publishers recommending a more straightforward author’s name. Regina’s daughter is named Audrey, and Jaima’s son is Blake.

The Surgeon’s Daughter is the forty-fourth book I have read this year and the ninety-ninth since the beginning of 2019. My Goodreads goal for 2022 was twenty-two books.

The Goodreads summary provides an overview.

Under constant scrutiny, Nora’s successes are taken for granted; her mistakes used as proof that women aren’t suited to the field.

Everything changes when she allies herself with Magdalena Morenco, the sole female doctor on-staff. Together the two women develop new techniques to improve a groundbreaking surgery: the Cesarean section. It’s a highly dangerous procedure and the research is grueling, but even worse is the vitriolic response from men. Most don’t trust the findings of women, and many can choose to deny their wives medical care.

Already facing resistance on all sides, Nora is shaken when she meets a patient who will die without the surgery. If the procedure is successful, her work could change the world. But a failure could cost everything: precious lives, Nora’s career, and the role women will be allowed to play in medicine.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

×
Wintering: The Power of Rest and Retreat in Difficult Times

Read: October 2021

Get this book

Wintering: The Power of Rest and Retreat in Difficult Times

by Katherine May

Wintering: The Power of Rest and Retreat in Difficult Times by Katherine May is “an intimate, revelatory book exploring the ways we can care for and repair ourselves when life knocks us down.”

Two quotes that resonated with me were:

That’s what grief is – a yearning for that one last moment of contact that would settle everything.

We are in the habit of imagining our lives to be linear, a long march from birth to death in which we mass our powers, only to surrender them again, all the while slowly losing our youthful beauty. This is a brutal untruth. Life meanders through the woods. We have seasons when we flourish and seasons when the leaves fall upon us, revealing our bare bones. Given time they grow again.

May writes in a clear voice that conveys the importance of accepting the cycles of life instead of fighting them.

Sometimes you slip through the cracks: unforeseen circumstances like an abrupt illness, the death of a loved one, a breakup, or a job loss can derail a life. These periods of dislocation can be lonely and unexpected. For May, her husband fell ill, her son stopped attending school, and her own medical issues led her to leave a demanding job. Wintering explores how she not only endured this painful time but embraced the singular opportunities it offered.

A moving personal narrative shot through with lessons from literature, mythology, and the natural world, May’s story offers instruction on the transformative power of rest and retreat. Illumination emerges from many sources: solstice celebrations and dormice hibernation, C.S. Lewis and Sylvia Plath swimming in icy waters, and sailing arctic seas.

Ultimately Wintering invites us to change how we relate to our own fallow times. May models an active acceptance of sadness and finds nourishment in deep retreat, joy in the serene beauty of winter, and encouragement in understanding life as cyclical, not linear. A secular mystic, May forms a guiding philosophy for transforming the hardships that arise before the ushering in of a new season.

I recommend this book without reservation.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

×

Discover more from Sharing Jan’s Love

Subscribe now to keep reading and get access to the full archive.

Continue reading