Home for Hospice

Estimated reading time: 11 minutes, 53 seconds

How do we tell Jan?

Walking home, I could not feel my legs or my feet. My legs moved correctly, but each step felt like a mile. When I stood in front of the building, Mike and Jon were parking. I texted Rabbi Renee while I waited for them to cross the street. 

Rabbi, do you have time for a quick call?

April 6, 8:45 pm

Before we entered the apartment, the Rabbi was calling me. 

Rabbi Renee, how are you? My sons are here. Can I put you on speakerphone?”

With every ounce of strength, I had left, I explained what we had heard from Dr. Strair.

“She is coming home soon for hospice and only has a few weeks to live.”

Jan is such a strong woman and has fought her cancer with all her heart. I cannot believe this!”

The boys filled her in on what Dr. Strair had said while I tried to eat. I was hungry, but each bite was tasteless. 

We need to talk about how we will tell her tomorrow,” I interjected. With the COVID restrictions, only I can be with her.

“Rabbis are always allowed in the hospital.”

“Dr. Strair said he would work with Dr. Saksena to allow Mike and I to be there.”

I am sure the doctor had said that, but I could not remember much about the call. 

We agreed that we would coordinate a time with the two doctors so that we could support Jan once she heard the news.

“I could not do this without the three of you.”

I love Jan and your sons; we will all be there to help you!

We ended the call, and we all attempted to sleep.As much as I knew the lymphoma was aggressive, I had never anticipated that the love of my life would not surviveThree days ago, I was sure she was on the road to recovery. 

“Listening to her talk to Jon and feeling the warmth of her smile, she seemed like the healthiest she had been in years. Her voice was like the one I heard the day we met. Strong, confident, reassuring, and soothing.” 

Help Me Help Jan

What had changed in seventy-two hours?

I lay in bed in a cold sweat the rest of the night. I need to be fully present for Jan. I thought I was about to cry, but nothing came out of my tear ducts. I kept repeating that I must be fully present for Jan. I have to love her more now than ever. 


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Year of Wonders: A Novel

Read: November 2024

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Year of Wonders: A Novel

by Geraldine Brooks

I started reading Year of Wonders: A Novel” by Geraldine Brooks today. It is a compelling story set in 17th-century England about a village that quarantines itself to stop the spread of the plague. The book is written by the author of “The Secret Chord” and “March,” both of which won the Pulitzer Prize. Inspired by the events in Eyam, a village in the rugged hill country of England, “Year of Wonders” offers a richly detailed portrayal of a significant historical moment.

The plot begins when an infected bolt of cloth arrives from London, bringing the plague to an isolated village. A housemaid named Anna Frith emerges as an unlikely heroine and healer. Through Anna’s perspective, we experience the fateful year of 1666 as she and her fellow villagers confront the outbreak of disease and the rise of superstition. As death visits each household and villagers turn from prayer to fear-driven witch-hunting, Anna must find the strength to face the breakdown of her community and the temptations of forbidden love. Her struggle for survival and growth transforms a disastrous year into an extraordinary “year of wonders.

Written with remarkable emotional depth, the novel introduces, according to The Wall Street Journal, “an inspiring heroine” and skillfully weaves themes of love and learning, loss and renewal into a captivating and unforgettable narrative.

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Never Forget Our People Were Always Free

Read: March 2024

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Never Forget Our People Were Always Free

by Ben Jealous

Today, I started reading “Never Forget Our People Were Always Free: A Parable of American Healing” by Ben Jealous, the Executive Director of the Sierra Club. The book highlights how the path to healing America’s broken heart begins with each of us having the courage to heal ourselves. According to Mr. Jealous, it would be transformative if every American treated each other as cousins.

Ben Jealous is the son of parents who had to leave Maryland because their cross-racial marriage was illegal.

I briefly met Ben Jealous last May when I went to Washington with the Religious Action Center of Reform Judaism‘s Day of Action. When I saw Mr. Jealous speaking at Temple Emanu-El in neighboring Westfield, I immediately signed up to attend in person. He is an inspiration as an advocate for the environment, civil rights, and the healing of America’s broken heart.

His lively, courageous, and empathetic storytelling calls on every American to look past deeply cut divisions and recognize that we are all in the same boat now. Along the way, Jealous grapples with hidden American mysteries, including:

  • Why do white men die from suicide more often than black men die from murder?
  • How did racial profiling kill an American president?
  • What happens when a Ku Klux Klansman wrestles with what Jesus said?
  • How did Dave Chappelle know the DC Snipers were Black?
  • Why shouldn’t the civil rights movement give up on rednecks?
  • When is what we have collectively forgotten about race more important than what we know?
  • What do the most indecipherable things our elders say tell us about ourselves?

The book Never Forget Our People Were Always Free is told through parables. It features intimate glimpses of political and faith leaders such as Jack Kemp, Stacey Abrams, and the late Archbishop Desmond Tutu. The book also highlights unlikely heroes such as a retired constable, a female pirate from Madagascar, a long-lost Irishman, a death row inmate, and a man with a Confederate flag over his heart.

Never Forget Our People Were Always Free offers readers hope that America’s oldest wounds can heal and her oldest divisions can be overcome.

Although I have only read a handful of pages of the book, I highly recommend it!

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The Quiet Tenant

Read: August 2023

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The Quiet Tenant

by Clémence Michallon

Today, I commenced reading The Quiet Tenant by Clémence Michallon. It is not my typical genre, as it is a pulse-pounding psychological thriller about a serial killer narrated by those closest to him: his 13-year-old daughter, his girlfriend—and the one victim he has spared.

Aidan Thomas is a hard-working family man and a somewhat beloved figure in the small upstate New York town where he lives. He’s the man who always lends a hand and has a good word for everyone. But Aidan has a dark secret he’s been keeping from everyone in town and those closest to him. He’s a kidnapper and serial killer. Aidan has murdered eight women, and there’s a ninth he has earmarked for death: Rachel, imprisoned in a backyard shed, fearing for her life.

When Aidan’s wife dies, he and his thirteen-year-old daughter Cecilia are forced to move. Aidan has no choice but to bring Rachel along, introducing her to Cecilia as a “family friend who needs a place to stay. Aidan is betting on Rachel, after five years of captivity, being too brainwashed and fearful to attempt to escape. But Rachel is a fighter and survivor and recognizes Cecilia might be the lifeline she has waited for all these years. As Rachel tests the boundaries of her new living situation, she begins to form a tenuous connection with Cecilia. And when Emily, a local restaurant owner, develops a crush on the handsome widower, she finds herself drawn into Rachel and Cecilia’s orbit, dangerously close to discovering Aidan’s secret.

Told through the perspectives of Rachel, Cecilia, and Emily, The Quiet Tenant explores the psychological impact of Aidan’s crimes on the women in his life—and the bonds between those women that give them the strength to fight back. A searing thriller and an astute study of trauma, survival, and power dynamics, The Quiet Tenant is an electrifying debut thriller by a significant talent.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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How to Love Your Daughter

Read: August 2023

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How to Love Your Daughter

by Hila Blum

I started reading a novel called “How to Love Your Daughter,” written by Hila Blum and translated by Daniella Zamir today. The book explores a complicated relationship between a mother and her grown daughter. It raises the question of how much harm we can do to our loved ones when love blinds us.

The story takes place thousands of miles away from home, where a woman finds herself peeking through well-lit windows at her two granddaughters. She has never met them before, as they are the daughters of her estranged daughter, whom she hasn’t seen in years.

The book’s central theme revolves around the woman’s attempt to understand how a once-loving relationship between her and her daughter ended up in such a distant and unfathomable state. The story shifts past and present as the woman unravels her memories and long-buried emotions. She tries to make sense of the seemingly insignificant moments of parental care that, combined, may have undermined what she valued most.

The author, Blum, skillfully delves into the complexities of family life, where a parent can easily cross the line between protectiveness and possession without even realizing it. The story leaves us wondering whether it’s possible ever to find our way back from such a point.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Man's Search for Meaning

Read: January 2022

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Man’s Search for Meaning

by Viktor E. Frankl

I remember reading portions of Man’s Search for Meaning by Viktor E. Frankl at different times, but I never finished the book. However, recently, eight and a half months after the passing of Jan, the book came up for discussion in one of my groups. Frankl’s theory of logotherapy, which derives from the Greek word for “meaning,” centers around the idea that the primary human drive is not pleasure, as Freud believed, but rather the search for what gives life meaning. I now have a framework for my life without Jan.

For those like me who are widows, Frankl understands suffering,

In some ways, suffering ceases to be suffering at the moment it finds a meaning, such as the meaning of a sacrifice.

Jan and I lived meaningful lives. My challenge now is to continue to find meaning in my life without Jan.

As Frankl writes,

Those who have a ‘why’ to live, can bear with almost any ‘how’.

The love Jan and I shared was one of my primary sources of meaning. In addition, I stopped working full-time at the end of 2018 and struggled to replace the purpose I had gained from repairing the world. After Jan died, I suffered the “provisional existence of an unknown limit.” Frankl experienced that when he was in the concentration camps.

I have replaced the loss of meaning and purpose with a series of activities:

  1. Planning to Celebrate Jan Day on her birthday this year;
  2. Writing my random thoughts on Jan, love, grief, life, and all things considered;
  3. Reading more than ever, including my Goodreads 2022 Reading Challange; and
  4. Walking more than I probably should.

I am also beginning to serve on the board of a few non-profits. It is time to transition from hands-on work to providing leadership differently.

Will this be enough to give my life meaning?

Ultimately, man should not ask what the meaning of his life is, but rather must recognize that it is he who is asked. In a word, each man is questioned by life; and he can only answer to life by answering for his own life; to life he can only respond by being responsible.

I must continue focusing on my search for meaning, as life will change over time.

My grief journey has taught me that love never dies,

For the first time in my life, I saw the truth as it is set into song by so many poets, proclaimed as the final wisdom by so many thinkers. The truth – that Love is the ultimate and highest goal to which man can aspire. Then I grasped the meaning of the greatest secret that human poetry and human thought and belief have to impart: The salvation of man is through love and in love.

My path forward is to keep Jan’s love alive and continue to share it with others.

I recommend this book without reservation.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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The Immortal Irishman

Read: October 2019

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The Immortal Irishman

by Timothy Egan

 

The Immortal Irishman: The Irish Revolutionary Who Became an American Hero by Timothy Egan is a book I started reading as The Worst Hard Timesincluded the first fifty pages.

I often only read a few pages and then return the book to the e-library. The Immortal Irishman was not the case, and I could not stop reading and borrowed the book immediately.

I had never heard of Thomas Francis Meagher or his life in Ireland or America. The story was fascinating, unique, and essential.

The Irish-American story, with all its twists and triumphs, is told through the improbable life of one man. A dashing young orator during the Great Famine of the 1840s, in which a million of his Irish countrymen died, Thomas Francis Meagher led a failed uprising against British rule, for which he was banished to a Tasmanian prison colony. He escaped and six months later was heralded in the streets of New York – the revolutionary hero, back from the dead, at the dawn of the great Irish immigration to America.

Meagher’s rebirth in America included his leading the newly formed Irish Brigade from New York in many of the fiercest battles of the Civil War – Bull Run, Antietam, Fredericksburg. Twice shot from his horse while leading charges, left for dead in the Virginia mud, Meagher’s dream was that Irish-American troops, seasoned by war, would return to Ireland and liberate their homeland from British rule.

The hero’s last chapter, as territorial governor of Montana, was a romantic quest for a true home in the far frontier. His death has long been a mystery to which Egan brings haunting, colorful new evidence.

I recommend this book.

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