Perplexed But Devoted

Estimated reading time: 14 minutes, 46 seconds

Abandonment?

Six months after the cancer diagnosis, I was beginning to feel comfortable as Jan’s caregiver. I had wrapped her in the blanket from her Soul Sisters, which had all their names inscribed. Let me know if you need anything,” I asked as Jan rested on the loveseat while I finished the dishes. Why don’t you ask Siri to play your playlist or a favorite artist?” Jan complied, and Joni Mitchell’s voice soon filled our tiny apartment. 

I whispered thank you, Siri, for playing music that would soothe Jan’s soul.

Closing the dishwasher, I opened the pill box and selected the medicine she needed tonight. I walked over with a glass of water.

I never thought I would be taking so many pills.

“If you want to regain your health, the pills are unavoidable.” 

She nodded her head and took the four pills one after the other.

“My love, what can I do to help you?”

She shook her head negatively as she handed me the glass. 

“I want to be cancer free, and there is nothing more you can do to help me achieve that.”

As I returned the glass to the kitchen, I said, “I am ready, willing, and able to do whatever is required to help you.”

“Richard, you already do so much to help me; I am afraid you will hate me one day.” I started to speak, but she did not give me a chance. 

“You are doing everything for me. You shop, cook, clean, and help me up the sta rs. You even made Matzo Brei better than I can,” Jan exclaimed. “I could not fight cancer without you. But I worry you are overwhelmed and will decide that I am too much to manage.”

She paused for a moment, and I shook my head and said, “I love you, and I always will.”

“I know you love me. Over the years, I have been mean to you, and you never stopped loving me. But my cancer is an enormous burden that you are carrying on your shoulders. Many people leave their spouses when they are sick. I would understand if you wanted to leave me.

Jan started weeping, and I tried to hold my tears inside my eyelids.

I knew what I wanted to say, but I was voiceless. I knew I would not deal with Jan’s comment about being mean to me as I had always ignored her claims.

I kneeled in front of Jan and kissed her lips.

Finally, I could form words and have them exit my mouth.

“I am not like some generic guy; I am your husband. I may not have said sickness and health when in my wedding vows, but I am here and will always be here for you. I am not going anywhere today, tomorrow, or ever.”

Jan smiled as tears flowed down her cheeks. 

Between sobs, she repeated, “I love you! I love you!”

I embraced her and kissed the top of her head.

“I still remember when we met, and you kissed the top of my head. No one had ever kissed me there.”

“Yes, I remember that night. When I kissed you, I promised myself and God that I would love, honor, and cherish you throughout my life. I have kept that promise daily, and I am not changing my mind because you have cancer.”

“There is no way I could fight cancer without your love.”

I held her as tight as I could, and between mutual sobs, we kissed each other like we did the night we met.


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12 comments add your comment

  1. Excellent story…I never heard of any couple making almost the same salary!!

    Funny and sad story, but I enjoyed it!!

    • Thanks, Hugo, for your comment.

      Jan and I chose similar work focused on repairing the world. As a result, our salaries were both modest. That we ended with wages almost the same at the end is not all that surprising. If Jan had lived and continued to work at the YWCA for the last two years, her total compensation would have surpassed mine.

      I agree that the story, like life, is humorous and sad simultaneously. I write from my heart, and the articles reflect the complexity of the lives Jan and I lived and how life is complicated.

      The love that Jan and I shared will never die.

      In closing I wanted to share share a poem from Evergreen by Kirsten Robinson. Her poems are a tribute to the enduring resilience of human nature as we cycle through times of light and darkness, much like nature itself.

        Give thanks for all
        that is good and beautiful;
        the gifts you carry
        people who lift you up
        your big, big love
        faith and trust that your life
        is unfolding as it should

        Give thanks for all
        that has been difficult and hard;
        trials tribulations tears
        tests of self strength fears
        all of the unknowns and days
        that broke you

        Without the darkness
        you would not have
        learned to appreciate the light

      Thanks for your friendship and support.

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God Shot

Read: December 2021

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God Shot by Chelsea Bieker

by Chelsea Bieker

God Shot by Chelsea Bieker, one of NPR’s Books We Love from 2020, is about the town of Peaches, California, where drought has settled in for the long term. The area of the Central Valley where fourteen-year-old Lacey May and her alcoholic mother live was once an agricultural paradise. Now it’s an environmental disaster, a place of cracked earth and barren raisin farms.

In their desperation, residents have turned to a cult leader named Pastor Vern for guidance. Everybody is praying for survival through secret “assignments” to bring the rain.

God Shot is an enjoyable read. However, I first found it challenging to accept Pastor Vern’s assignments, especially to Lacey May and her fellow teenage girls. Would people believe in a cult leader and get “assignments” that involve women fully accepting male domination in the twenty-first century? When I had doubts, I would wake up, listen to the news, or read the papers and discover that it is plausible and does happen in our world.

After being god-shot, Lacey May becomes one day at a time feminist as she has to rely on herself and other women who do not accept Pastor Vern’s divine leadership. Slowly but surely, she and her friends find a miracle to help them escape not only the environmental disaster caused by the drought but the moral depravity of Pastor Vern.

Goodreads provides this overview of the God Shot.

Lacey has no reason to doubt the pastor. But then her life explodes in a single unimaginable act of abandonment: her mother, exiled from the community for her sins, leaves Lacey and runs off with a man she barely knows. Abandoned and distraught, Lacey May moves in with her widowed grandma, Cherry, who is more concerned with her taxidermy mouse collection than her own granddaughter. As Lacey May endures the increasingly appalling acts of men who want to write all the rules and begins to uncover the full extent of Pastor Vern’s shocking plan to bring fertility back to the land, she decides she must go on a quest to find her mother no matter what it takes. With her only guidance coming from the romance novels she reads and the unlikely companionship of the women who knew her mother, she must find her own way through unthinkable circumstances.

Possessed of an unstoppable plot and a brilliantly soulful voice, Godshot is a book of grit, humor, and heart, a debut novel about female friendship and resilience, mother loss and motherhood, and seeking salvation in unexpected places. It introduces a writer who gives Flannery O’Connor’s Gothic parables a Californian twist and who emerges with a miracle that is all her own.

I recommend this novel without reservations!

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Losing Earth: A Recent History

Read: October 2019

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Losing Earth: A Recent History

by Nathaniel Rich

Losing Earth: A Recent History by Nathaniel Rich reminds us how close we were to halting the climate emergency, and our failure has resulted in our passing the tilting point. The book “reveals, in previously unreported detail, the birth of climate denialism and the genesis of the fossil-fuel industry’s coordinated effort to thwart climate policy through misinformation propaganda and political influence.”

By 1979, we knew nearly everything we understand today about climate change – including how to stop it. Over the next decade, a handful of scientists, politicians, and strategists, led by two unlikely heroes, risked their careers in a desperate, escalating campaign to convince the world to act before it was too late. Losing Earth is their story and ours.

The New York Times Magazine devoted an entire issue to Nathaniel Rich’s groundbreaking chronicle of that decade, which became an instant journalistic phenomenon – the subject of news coverage, editorials, and conversations all over the world. In its emphasis on the lives of the people who grappled with the significant existential threat of our age, it made vivid the moral dimensions of our shared plight.

Losing Earth tells the human story of climate change in even richer, more intimate terms. It reveals, in previously unreported detail, the birth of climate denialism and the genesis of the fossil-fuel industry’s coordinated effort to thwart climate policy through misinformation propaganda and political influence. The audiobook carries the story into the present day, wrestling with the long shadow of our past failures and asking crucial questions about how we make sense of our past, our future, and ourselves.

Like John Hersey’s Hiroshima and Jonathan Schell’s The Fate of the Earth, Losing Earth is the rarest of achievements: a riveting work of dramatic history that articulates a moral framework for understanding how we got here and how we must go forward.

Losing Earth is a must-read book!

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A Seperation

Read: January 2022

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A Separation: A Novel

by Katie Kitamura

A Separation by Katie Kitamura is about a young woman who has agreed with her faithless husband: it’s time for them to separate. All I could think about from the opening page until I finished the book was how Jan and I, despite one messy period, never dealt with infidelity or separation. Our love was pure as the driven snow. The subject matter would typically not have interested me enough to read the book. However, it is written in a hypnotic manner that mesmerizes the reader into turning the next page.

I highly recommend this book.

Goodreads provides an overview.

As she begins her new life, she gets word that Christopher has gone missing in a remote region in the rugged south of Greece; she reluctantly agrees to look for him, still keeping their split to herself. As her search comes to a shocking breaking point, she discovers she understands less than she thought she did about her relationship and the man she used to love. In her heart, she’s not even sure if she wants to find him.  For the moment, it’s a private matter, a secret between the two of them.

Adrift in the wild landscape, she traces the disintegration of their relationship and discovers she understands less than she thought about the man she used to love.

A story of intimacy and infidelity, A Separation is about the gulf that divides us from the lives of others and the narratives we create for ourselves. As the narrator reflects upon her love for a man who may never have been what he appeared, Kitamura propels us into the experience of a woman on the brink of catastrophe. A Separation is a riveting stylistic masterpiece of absence and presence that will leave the reader astonished and transfixed.

In closing, I highly recommend this book.

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Fourteen Days: A Collaborative Novel

Read: February 2024

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Fourteen Days: A Collaborative Novel

by Authors Guild

I started reading Fourteen Days: A Collaborative Novel today. It is set in a Lower East Side tenement during the early days of the COVID-19 lockdowns. Fourteen Days is a unique collaborative novel from the Authors Guild with a twist. A different, prominent literary voice has secretly written each character in this diverse cast of New York neighbors. These voices range from Margaret Atwood and Celeste Ng to Tommy Orange and John Grisham.

The novel’s story begins one week into the COVID-19 shutdown, where tenants of a Lower East Side apartment building in Manhattan have gathered on the rooftop to tell stories. As the nights pass, more and more neighbors join in, bringing chairs, milk crates, and overturned pails. Gradually, the tenants, some of whom have barely spoken to each other, become neighbors.

In this Decameron-like serial novel, general editors Margaret Atwood and Douglas Preston and a star-studded list of contributors create a beautiful ode to those trapped when the pandemic hit. Fourteen Days is a dazzling, heartwarming, and ultimately surprising narrative that reveals how some communities managed to become stronger despite the loss and suffering brought about by the pandemic.

Includes writing from: Charlie Jane Anders, Margaret Atwood, Joseph Cassara, Jennine Capó Crucet, Angie Cruz, Pat Cummings, Sylvia Day, Emma Donoghue, Dave Eggers, Diana Gabaldon, Tess Gerritsen, John Grisham, Maria Hinojosa, Mira Jacob, Erica Jong, CJ Lyons, Celeste Ng, Tommy Orange, Mary Pope Osborne, Douglas Preston, Alice Randall, Ishmael Reed, Roxana Robinson, Nelly Rosario, James Shapiro, Hampton Sides, R.L. Stine, Nafissa Thompson-Spires, Monique Truong, Scott Turow, Luis Alberto Urrea, Rachel Vail, Weike Wang, Caroline Randall Williams, De’Shawn Charles Winslow, and Meg Wolitzer!

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The Rest Is Memory: A Novel

Read: January 2025

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The Rest Is Memory: A Novel

Today, I dove into “The Rest Is Memory: A Novel” by Lily Tuck, and it’s already leaving a powerful impression. This poignant tale follows a young Catholic girl’s harrowing journey to Auschwitz, woven in a captivating Rashomon-style narrative showcasing Tuck’s brilliance as a storyteller. Esquire has rightly placed it on their list of Best Books for Fall 2024, and I can see why.

In Tuck‘s skilled hands, “The Rest Is Memory” transforms into an unforgettable piece of historical reclamation, breathing life into an innocent soul who has long been remembered only through a haunting triptych of photographs. It’s a journey that promises to linger in my thoughts long after I’ve turned the last page.

In this mesmerizing novel by Lily Tuck, we first glimpse fourteen-year-old Czeslawa riding on the back of a boy’s motorcycle. Tuck imagines Czeslawa’s upbringing in a small Polish village before her world imploded in late 1942. Stripped of her modest belongings, she arrives at Auschwitz shorn and bearing the tattoo number 26947. Shortly after, she is photographed. Three months later, she is dead.

How did this happen to an ordinary Polish citizen? This is the question Tuck grapples with in this haunting narrative, which frames Czeslawa’s story within the tragic context of the six million Poles who perished during the German occupation. A decade before writing The Rest Is Memory“, Tuck read an obituary of the photographer Wilhelm Brasse, who took over 40,000 pictures of Auschwitz prisoners—including three of Czeslawa Kwoka, a Catholic girl from rural southeastern Poland. Tuck cut out these photos and kept them, determined to learn more about Czeslawa. However, she could only gather the barest facts: the village she came from, the transport she was on, that she was accompanied by her mother and neighbors, her tattoo number, and the date of her death. Tuck crafts a remarkable kaleidoscope of imagination from this scant evidence, something only our greatest novelists can achieve.

Susanna Moore described the novel as “Beautifully written, all the while instilling a sense of horror.” Tuck’s language swirls around the reader, yet no word is out of place. The subtly rotating images tumble forth, accelerating as we learn about Czeslawa’s tragic time in Auschwitz, as well as the lives of real individuals, including the brutal Commandant Rudolf Höss, his unconscionable wife Hedwig, psychiatrist and child rescuer Janusz Korczak, and the sharp Polish short story writer Tadeusz Borowski. Although we know Czeslawa’s fate, we must keep turning the pages, thoroughly captivated by Tuck’s nearly otherworldly prose.

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Orbital

Read: December 2023

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Orbital: A Novel

by Samantha Harvey

Today, I started reading “Orbital” by Samantha Harvey. “Orbital” is a slender novel with epic power that captures a single day in the lives of six women and men hurtling through space. The author’s prose is poetic and impossible to put aside. Watching the Earth through the eyes of space travelers is refreshing. If I finish reading it by Sunday, it will be the 78th book I’ve read this year or the first one of 2024.

They are not going towards the moon or the vast unknown but are orbiting our planet. These astronauts and cosmonauts come from various countries, including America, Russia, Italy, Britain, and Japan. They are selected for one of the last space station missions before the program is dismantled. They have left their lives behind to travel over seventeen thousand miles an hour as the earth reels below.

Throughout the book, we catch glimpses of their earthly lives through brief communications with their families, photos, and talismans. We watch them whip up dehydrated meals, float in gravity-free sleep, and exercise in regimented routines to prevent their muscles from atrophying. We also witness them form bonds that will stand between them and utter solitude. Most importantly, we are with them as they behold and record their silent blue planet. Their experiences of sixteen sunrises and sunsets and the bright, blinking constellations of the galaxy are breathtakingly beautiful and surprisingly intimate. Additionally, we get to see the marks of civilization far below, encrusted on the planet on which we live.

It is a profound, contemplative, and gorgeous book that eloquently meditates on space. Moreover, it is a moving elegy reflecting our humanity, environment, and planet.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. For gifts made this month, I will match dollar for dollar. All donations are tax-deductible.

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