Breathe

Estimated reading time: 3 minutes, 9 seconds

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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An American Marriage

Read: September 2024

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An American Marriage

by Tayari Jones

Today, I started reading “An American Marriage” by Tayari Jones. It is a masterpiece of storytelling that delves into people’s souls as they confront the past and move forward into the future with hope and pain. The book, which has won numerous awards and was selected as one of The New York Times’ 100 Best Books of the 21st Century, is a must-read for any contemporary fiction enthusiast.

Newlyweds Celestial and Roy embody both the American Dream and the New South. He is a young executive, and she is an artist on the brink of an exciting career. But as they settle into their routines, they are ripped apart by circumstances neither could have imagined. Their story reflects the complexities of modern relationships and the impact of the criminal justice system on individuals and families.

Roy’s arrest and subsequent twelve-year sentence for a crime he didn’t commit shatters their world. Though fiercely independent, Celestial finds herself adrift, seeking solace in Andre, her childhood friend and the best man at their wedding. As Roy’s time in prison stretches on, she struggles to hold on to the love that has always been her anchor. When Roy’s conviction is finally overturned after five years, he returns to Atlanta, ready to pick up the pieces of their shattered life, a testament to their resilience and enduring love.

This stirring love story is a profoundly insightful look into the hearts and minds of three people who are at once bound and separated by forces beyond their control. “An American Marriage” is a masterpiece of storytelling—an intimate look deep into people’s souls who must reckon with the past while moving forward—with hope and pain—into the future.



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Never Forget Our People Were Always Free

Read: March 2024

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Never Forget Our People Were Always Free

by Ben Jealous

Today, I started reading “Never Forget Our People Were Always Free: A Parable of American Healing” by Ben Jealous, the Executive Director of the Sierra Club. The book highlights how the path to healing America’s broken heart begins with each of us having the courage to heal ourselves. According to Mr. Jealous, it would be transformative if every American treated each other as cousins.

Ben Jealous is the son of parents who had to leave Maryland because their cross-racial marriage was illegal.

I briefly met Ben Jealous last May when I went to Washington with the Religious Action Center of Reform Judaism‘s Day of Action. When I saw Mr. Jealous speaking at Temple Emanu-El in neighboring Westfield, I immediately signed up to attend in person. He is an inspiration as an advocate for the environment, civil rights, and the healing of America’s broken heart.

His lively, courageous, and empathetic storytelling calls on every American to look past deeply cut divisions and recognize that we are all in the same boat now. Along the way, Jealous grapples with hidden American mysteries, including:

  • Why do white men die from suicide more often than black men die from murder?
  • How did racial profiling kill an American president?
  • What happens when a Ku Klux Klansman wrestles with what Jesus said?
  • How did Dave Chappelle know the DC Snipers were Black?
  • Why shouldn’t the civil rights movement give up on rednecks?
  • When is what we have collectively forgotten about race more important than what we know?
  • What do the most indecipherable things our elders say tell us about ourselves?

The book Never Forget Our People Were Always Free is told through parables. It features intimate glimpses of political and faith leaders such as Jack Kemp, Stacey Abrams, and the late Archbishop Desmond Tutu. The book also highlights unlikely heroes such as a retired constable, a female pirate from Madagascar, a long-lost Irishman, a death row inmate, and a man with a Confederate flag over his heart.

Never Forget Our People Were Always Free offers readers hope that America’s oldest wounds can heal and her oldest divisions can be overcome.

Although I have only read a handful of pages of the book, I highly recommend it!

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The Surgeon's Daughter

Read: July 2022

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The Surgeon’s Daughter

by Audrey Blake

I did something I had not done in decades. After finishing the Big Library Read of 2022, The Girl in His Shadow, by Audrey Blake, I immediately started reading the sequel, The Surgeon’s Daughter. The protagonist, Nora Beady, was such a strong female lead that I could not wait to find out what happened next. In the sequel, Nora Beady, the only female student at a prestigious medical school in Bologna, is a rarity. Nora’s tenacity and passion reminded me of Jan, the love of my life.

In the 19th century, women were supposed to remain at home and raise children, so her unconventional, indelicate ambitions to become a licensed surgeon offended the men around her.

Ms. Blake has a split personality— because she is the creative alter ego of writing duo Jaima Fixsen and Regina Sirois, two authors who met as finalists of a writing contest and have been writing together happily ever since.

The pen name – Audrey Blake – was in response to the publishers recommending a more straightforward author’s name. Regina’s daughter is named Audrey, and Jaima’s son is Blake.

The Surgeon’s Daughter is the forty-fourth book I have read this year and the ninety-ninth since the beginning of 2019. My Goodreads goal for 2022 was twenty-two books.

The Goodreads summary provides an overview.

Under constant scrutiny, Nora’s successes are taken for granted; her mistakes used as proof that women aren’t suited to the field.

Everything changes when she allies herself with Magdalena Morenco, the sole female doctor on-staff. Together the two women develop new techniques to improve a groundbreaking surgery: the Cesarean section. It’s a highly dangerous procedure and the research is grueling, but even worse is the vitriolic response from men. Most don’t trust the findings of women, and many can choose to deny their wives medical care.

Already facing resistance on all sides, Nora is shaken when she meets a patient who will die without the surgery. If the procedure is successful, her work could change the world. But a failure could cost everything: precious lives, Nora’s career, and the role women will be allowed to play in medicine.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. All donations are tax-deductible.

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Reluctantly Home

Read: June 2022

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Reluctantly Home

by Imogen Clark

Reluctantly Home by Imogen Clark is about dealing with the past—and finally facing the future-a topic that was appealing to me. Thirteen months into my grief journey, I live between a perfect past and an unknowable future. Will Reluctantly Home by Imogen Clark help me manage these two worlds?

Surprisingly it did. Unlike the two protagonists, I am mourning losing Jan, the love of my life. However, the neuromapping in my brain made it impossible to understand how to continue to love Jan and separate that from the time and space connections that made me believe she would return at any moment.

Reluctantly Home by Imogen Clark helped me understand that grief should and cannot define us forever. I recommend this book to all readers, not only those on a grief journey like mine.

The Goodreads summary provides an overview.

Pip Appleby seems to have it all, with her prestigious job as a human rights lawyer and her enviable London home. But then a tragic accident stops her life in its tracks, and everything changes instantly. Retreating to her family’s rural farm and the humble origins she has been trying to hide, Pip is haunted by what she has done.

When she discovers the diary of actress Evelyn Mountcastle in a box of old books, Pip revels in the opportunity to lose herself in someone else’s life rather than focus on the disaster that is her own. But soon, she sees parallels—Evelyn’s life was also beset by tragedy, and, like Pip, she returned to Southwold under a dark cloud.

When Pip and Evelyn’s paths cross in real life, they slowly begin to reveal the hidden stories holding them back. Can they help each other forgive what happened in the past and, perhaps, find happiness in the future?


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Hey, Zoey

Read: June 2024

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Hey, Zoey: A Novel

by Sarah Crossan

Today, I enjoyed immersing myself in the captivating and thought-provoking world of Sarah Crossan‘s novel ‘Hey, Zoey.’ As Sarah Dunn eloquently puts it, this book is a masterful blend of brilliance and dark humor. The story revolves around Dolores O’Shea, whose life turns surprising when she discovers her husband’s AI sex doll, Zoey, in the garage.

A profound and heartfelt journey of self-discovery unfolds for Dolores as she and ‘Zoey‘ develop an unconventional bond, unearthing deeply buried emotions and memories. Dolores O’Shea, a 43-year-old woman, is a beacon of strength, juggling her job, ailing mother, and social life with remarkable efficiency.

Her marriage with an anesthesiologist, David, is in turmoil, but she’s determined to confront the issues. Her world is completely upended when she uncovers Zoey, the $8,000 AI sex doll that David had been concealing in the garage. At first, Dolores’ response to Zoey is a whirlwind of anger and confusion, throwing her meticulously organized life into chaos.

As the narrative unfolds, Dolores and Zoey embark on a series of conversations that unearth unexpected emotions and memories, profoundly influencing all of Dolores’ relationships, particularly her relationship with herself. Dolores’ journey is a rollercoaster of events and emotions that resonates with us all. ‘Hey, Zoey‘ is a novel that enthralls and challenges our perception of modern-day connections and the diverse forms that love can assume in a lifetime.

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Do You Remember Being Born?: A Novel

Read: September 2023

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Do You Remember Being Born?

by Sean Michaels

I started reading “Do You Remember Being Born?” by Sean Michaels, a writer who won the Scotiabank Giller Prize. The novel is about an aging poet named Marian Ffarmer, a legend in the world of poetry. However, despite her success, she struggles with financial issues and her son’s inability to buy a house. Marian has sacrificed her personal relationships and happiness to pursue her career but questions whether it is worth it.

One day, she receives an invitation from a Tech Company to travel to California and work with their poetry AI, Charlotte. The company wants her to co-author a poem with their bot in a historic partnership, which clashes with Marian’s beliefs about the individual pursuit of art. However, she decides to take this opportunity, even though it makes her feel like a sell-out and a skeptic. The encounter in California changes her life, work, and understanding of kinship.

The book explores the nature of language, art, labor, capital, family, and community. It’s a response to some of the most disquieting questions of our time. The author, Sean Michaels, is a winner of the Scotiabank Giller Prize, and his book is a love letter to and interrogation of the creative legacy. It’s a joyful recognition that belonging to one’s art must mean belonging to the world to survive meaningfully.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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