How Did I Grieve?

Estimated reading time: 12 minutes, 26 seconds

Publicly Mourning
Helped Me to Learn and Grow

It has been almost thirty-eight months since my wife passed away. Losing a loved one, particularly a spouse, is an experience no one would wish for. Atul Gawande wrote in “Being Mortal” that we have come to believe that every medical professional has a magic cure to prevent death or postpone it indefinitely. However, the truth is that death is one of the life cycle events encoded in our DNA.

When Jan, my wife, passed away, I mourned as if I was the first ever to suffer such a loss. I didn’t know if I could choose to grieve in public or private, so I decided to write about my experiences and develop habits that served as guardrails. I shared my writings on social media, attended grief support groups, and even organized a memorial service where I spoke about Jan and our life together. Looking back, I realize the importance of public mourning as it not only helps us heal but also helps others understand and cope with their grief. My journey, marked by resilience and growth, is a testament to the human spirit’s ability to overcome even the most profound loss.

After reading Cody Delistraty‘s essay “It’s Mourning in America” in The New Yorker, I understood I had chosen the best option. The subtitle “In the past century, grief has shifted from a public process to a private problem—something meant to be solved. Is there a better way?” made me reflect on how I mourned and coped with grief. More than three years after the loss, it was a timely reminder to review where I was during the darkest days and how I have learned to live and thrive, showcasing the remarkable resilience of the human spirit.

I have experienced the loss of my parents, Jan’s parents, and friends over the years, which has given me firsthand knowledge of the impact of death. Witnessing the deceased has also been a familiar experience. However, I have struggled to understand how to mourn. As pointed out by Mr. Delistraty, there is a prevalent notion in American culture of seeking closure and swiftly moving on from loss. This concept of ‘closure’ implies that one should neatly tie up their emotions and memories of the deceased, and resume normal activities and routines without allowing oneself to linger in grief. This expectation can be challenging and even harmful, as it may prevent individuals from fully processing their grief and healing in their own time.

After nearly two years of caring for my wife before her passing, I find myself without an understanding of what ‘normal’ means, if it means anything, or how to attain a state of equilibrium that would enable me to carry on. This complexity of grief is a shared experience, and it’s okay not to have all the answers. The more than 100,000 words on my blog have been a form of public mourning. I have shared the depths of despair, the steps I have taken, and how I have grown and sometimes failed. I have found solace in nature, in the support of friends and family, and in giving back to the community. These experiences have been instrumental in my healing and growth, and I hope they can offer some guidance and comfort to others on a similar journey.

Sharing Jan’s Love

In his essay, Mr. Delistraty eloquently discusses public and private grieving traditions. Before the 20th century, death was more common, and mourning was a public process involving family, friends, and neighbors. Now, “there is the stigma of grief—the idea, now rampant in American life, of closure. Most people are reluctant to linger on loss. We are expected to get back to work and back to normal.”

For everyone I know who lost a loved one during COVID-19, the concept of closure was unachievable. Three days before my wife died, NJ Governor Murphy rescinded a rule that limited mourners at a funeral to a dozen as long as those attending practiced social distancing. This rule change was a relief, as it meant more people could attend the funeral and pay their respects to Jan. However, it also presented a new challenge. I am not sure how I would have managed a funeral with such strict limitations. Whom would I have excluded from attendance if only a dozen could attend? These unique circumstances would have added a layer of complexity to my mourning process and forced me to reconsider traditional notions of closure and mourning.

On May 5, during my wife’s funeral at Beth Israel Cemetery in Woodbridge, it was lightly raining, and many of the almost one hundred-attendees had only a day’s notice about her passing and the funeral arrangements. In this shared moment of grief, I tried to express my deep gratitude to everyone who attended, as I recognized that they, too, were mourning Jan. Although some may have perceived my actions as unusual, I felt it was important to publicly thank them and expand our shared support network as we all navigated life without my wife. Their presence and support have been a source of strength and comfort, reminding me that I am not alone in this journey of grief and healing.

Merrit Malloy’s Epitaph, which Jan and I like, was read at her funeral and will be read at mine. When Rabbi Renee read the poem, I knew clearly that I had to give her love away if I would not only mourn but honor her. The last stanza is my wife’s final message to me.

Love doesn’t die,
People do.
So, when all that’s left of me
Is love,
Give me away.

Merrit Malloy’s Epitaph

I am sharing her love not because I no longer love her but because I love her now more than ever. By sharing her love, it will come back to me even more potent. Sharing Jan’s love will keep her memory and legacy alive and strengthen us all. Sharing her passion will inspire and empower us to improve the world and make it a better place for everyone. Sharing Jan’s love is the true expression of my love for her! This commitment to sharing her passion is a testament to the enduring power of love and its ability to transcend even the most profound loss.

Being Mortal

I understood, standing by her grave, that my sense of loss was unique as Jan’s husband, but accepting that I was not the only one was a crucial step in how I would manage grief. Having read Being Mortal by Atul Gawande days before my wife’s diagnosis of lymphoma prepared me for hospice but also for acceptance that her death was unavoidable once she was also diagnosed with COVID. He reminds us that “when it comes to the inescapable realities of aging and death, what medicine can do often runs counter to what it should.” As he writes in the book, the current system does not work and, in many cases, actually shortens life. Without that knowledge, I am not sure how I would have coped with hearing from her oncologists that there was no way of treating her and hospice was the only option.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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A Mercy

Read: November 2024

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A Mercy a Novel

by Toni Morrison

Today, I started reading “A Mercy” by Toni Morrison. The acclaimed Nobel Prize winner explores the complexities of slavery in this novel. Like “Beloved,” it tells the poignant story of a mother and her daughter—a mother who abandons her child to protect her and a daughter who struggles with that abandonment. “A Mercy” is also recognized as one of The New York Times’s 100 Best Books of the 21st Century.

In the 1680s, a tumultuous period in the Americas, the slave trade is still in its infancy. Jacob Vaark, an Anglo-Dutch trader and adventurer, navigates this harsh landscape with a small holding in the North. Despite his distaste for dealing in “flesh,” he takes a small slave girl in part payment for a bad debt from a plantation owner in Catholic Maryland. She is Florens, a girl who can read and write and might be helpful on his farm. Rejected by her mother, Florens embarks on a journey for love, first seeking it from Lina, an older servant woman at her new master’s house, and later from the handsome blacksmith, an African, never enslaved, who comes riding into their lives.

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Finding Peace, One Piece at a Time

Read: September 2021

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Finding Peace, One Piece at a Time

by Rachel Blythe Kodanaz

Finding Peace, One Piece at a Time by Rachel Blythe Kodanaz is a book I wish I had long before Jan died. It provides helpful information on maintaining an organized lifestyle and handling a loved one’s possessions.

Having lost almost everything I had except for the clothes on my back after a house fire in 1972, I thought I had adopted a view that possessions were not significant. With Jan’s death, the truth is that she and I had collected essential possessions, and now it was my responsibility to decide what to do with them.

Rachel’s book is a practical guide, offering a comprehensive understanding of the significance of possessions and a step-by-step plan to manage them. Chapter 3, in particular, is a treasure trove of practical advice, focusing on Building Your Game Plan: The Ten Essentials and covering all the crucial topics – triggers, building a team, and creating a timeline, among others.

Magic of the Six Piles is a well-designed plan that will help most of us confront the possessions of our loved ones. The piles are:

  1. Keep
  2. Share
  3. Donate
  4. Sell
  5. Dispose
  6. Ponder

Having absorbed the book’s wisdom, I am ready to transition from contemplation to action. This is how I sort my wife’s possessions into six piles. I am optimistic that it will also help me streamline my possessions, making books my trusted company more accessible for my sons.

Ms. Kodanaz has presented at my bereavement groups and has been an inspiration. She has also encouraged me to write about my love for Jan in a journal.

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Martyr! A Novel

Read: October 2024

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Martyr! A Novel

by Kaveh Akbar

Today, I started reading “Martyr! A Novel” by Kaveh Akbar, the last of one of the five finalists for the 2024 National Book Award for Fiction I have read. This is also the 79th book I have read this year, surpassing my record from last year. Kaveh Akbar‘s “Martyr!” is a tribute to our pursuit of meaning in faith, art, ourselves, and others. The story follows Cyrus Shams, the newly sober, orphaned son of Iranian immigrants.

He is guided by the voices of artists, poets, and kings as he embarks on a search for a family secret, which leads him to a terminally ill painter living out her final days in the Brooklyn Museum.

Cyrus Shams, our protagonist, grapples with an inheritance of violence and loss. His mother’s tragic death and his father’s limited life in America have left him with scars. He’s a drunk, a person with a substance use disorder, and a poet, but above all, he’s a human being on a journey of self-discovery. His fascination with martyrs leads him to explore the mysteries of his past, including his uncle’s inspiring yet haunting role on Iranian battlefields and a painting that suggests his mother may not have been who or what she seemed.

Martyr!” is a novel that’s not just electrifying and funny but also wholly original. It’s a testament to Kaveh Akbar‘s unique storytelling and heralds the arrival of an essential new voice in contemporary fiction. Get ready to be captivated by his narrative prowess.

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Girlfriend on Mars: A Novel

Read: July 2023

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Girlfriend on Mars: A Novel

by Deborah Willis

I began reading “Girlfriend on Mars: A Novel” by Deborah Willis today. It’s a humorous, touching, and captivating debut novel that satirizes the idea of space travel funded by billionaires and tells a love story that spans across planets. Alic Munro, one of my preferred authors, praised the book’s emotional depth and range, as well as the author’s exceptional clarity and skill in writing.

Amber Kivinen is vying for a chance to join MarsNow and be part of the first human-led mission to Mars. She is one of twenty-three reality TV contestants worldwide, including an attractive Israeli soldier named Adam, a charming Canadian named Pichu, and several science enthusiasts and aspiring influencers. Billionaire Geoff Task is sponsoring the mission; only two seats are available.

Meanwhile, Kevin, Amber’s boyfriend of fourteen years, is left behind as Amber pursues her dream. He spends his days caring for their hydroponic weed business in their expensive basement apartment in Vancouver while wondering why the woman he loves is so determined to leave the planet with someone else.

In a reality TV show similar to Survivor and Star Trek, Amber participates in challenges in various parts of the world. She seems to develop feelings for Adam, but it’s unclear whether it’s genuine or a strategy to avoid getting eliminated. Furthermore, given that the technology to return to Earth from Mars is not yet available, would Amber be willing to abandon everything to become a billionaire’s experimental subject on the red planet? Even though the rainforest is currently ablaze, Geoff Task has purchased New Zealand, and Kevin may be struggling with depression, is there any chance for a brighter future on Earth?

Girlfriend on Mars is an impressive first work from a brilliant and unique writer, as described by Molly Antopol. It presents a satirical critique of our societal desire for fame and fortune amid environmental turmoil. At the same time, it delves into humanity’s fundamental yearning and eternal cliché: love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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My Friend, I Care

Read: August 2021

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My Friend, I Care: The Grief Experience

by Barbara Karnes RN

My journey from the Island of Grief back to the Land of Love is long and arduous. Friends, especially those who have also lost a loved one, are the guideposts on this journey. One of these friends, Sue Gramacy, sent this book to me during the early phases of my grief journey.

My Friend, I Care: The Grief Experience may be one of the shortest books I have ever read, but it is also one that has been most helpful. Barbara Karnes, RN, provides a concise understanding of grief, and she includes a list of dos and don’ts that are very helpful to someone who has recently lost the love of their life.

She provides a compelling explanation of the new life that we all must strive to achieve.

Our inability to further enjoy life does not measure our loss. The quality of our relationship with the person who has died is found in our strength, our resilience and our ability to create a new and meaningful life.

The endpoint of my journey is a new and meaningful life. This book has helped remind me that it is an achievable goal.

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