Breathing to Stay Alive

Breathing to Stay Alive

Estimated reading time: 1 minute, 39 seconds

Jan, the love of my lifeFortunately, the autonomic nervous system, which controls breathing, continued to work after Jan died.

However, I was never sure it would without reminding my lungs to breathe oxygen into my body.

In the initial weeks without Jan, my life was squeezed by the grief vise, and reminding myself to breathe was crucial if I continued to live.

Every day was a struggle. As Michaela, the protagonist of Breathe by Joyce Carol Oates, says,

In the grip of the grief vise: all that you will do, all that you even imagine doing, will require much more effort… Hardly daring to breathe for the grief vise will tighten around your chest, squeezing the very air out of your lungs.

Now I let the autonomic nervous system control my breathing, despite the grief of a husband mourning the love of his life.

Day by day, I grow stronger and regain my self-confidence.

  • I write daily about Jan, my love for her, my grief, my faith, and my life.
  • I take morning walks and evening strolls.
  • I read more than ever.
  • I help other widows, volunteer, and serve on a few boards.

These self-help steps have begun if only vaguely,  to outline who I might become.

Who I will be without Jan is still a work in progress, but now I can take a deep breath and exhale the demons in my soul. At a minimum, I am no longer the empty shell I was when Jan died.

Knowing that Jan is still with me and always will be, confirms that our love will never die.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Breathing to Stay Alive
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The Secret Hours

Read: January 2024

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The Secret Hours

by Mick Herron

Today, I started reading “The Secret Hours” by Mick Herron, a gripping spy thriller about a disastrous MI5 mission in Cold War Berlin. This book is a must-read for fans of “Slow Horses.” “The Secret Hours” is a standalone spy thriller that is both unnerving and poignant yet also has laugh-out-loud moments. It is the breathtaking secret history that Slough House fans have been waiting for.

Two years ago, a hostile prime minister launched the Monochrome inquiry, which aimed to investigate “historical over-reaching” by the British Secret Service. Griselda Fleet and Malcolm Kyle, two civil servants seconded to the project, were given unfettered access to all confidential information in the Service archives to ferret any hint of misconduct by any MI5 officer.

However, MI5’s formidable First Desk did not become Britain’s top spy by accident, and she has successfully thwarted the inquiry at every turn. The administration that created Monochrome has been ousted, and the investigation is a total bust. Griselda and Malcolm are stuck watching as the pounding London rain washes away their career prospects.

On the eve of Monochrome’s shuttering, an MI5 case file appears without explanation. It is the buried history of a classified operation in 1994 Berlin, which ended in tragedy and scandal, whose cover-up has rewritten thirty years of Service history.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Regarding gifts made this month, I will match dollar for dollar. All donations are tax-deductible.

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Lila: A Novel

Read: April 2022

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Lila: A Novel

by Marilynne Robinson

Lila: A Novel by Marilynne Robinson is an unusual but believable love story. Although different than how I met Jan, this novel is about love and romance that, on the surface, should never have happened. Lila, homeless and alone after years of roaming the countryside, steps inside a small-town Iowa church – the only available shelter from the rain- ignites a romance and a debate that will reshape her life. She becomes the wife of a minister, John Ames, and begins a new existence while trying to make sense of the life that preceded her newfound security.

Lila is the third novel in the Gilead series. Previously I read Home, the second in the series, and Jack, the fourth. I highly recommend all three books.

Hopefully, one day I will read the Gilead and complete the series.

The Goodreads summary of the book provides an excellent overview.

Neglected as a toddler, Lila was rescued by Doll, a canny young drifter, and brought up by her in a hardscrabble childhood. Together they crafted a life on the run, living hand to mouth with nothing but their sisterly bond and a ragged blade to protect them. Despite bouts of petty violence and moments of desperation, their shared life was laced with moments of joy and love. When Lila arrives in Gilead, she struggles to reconcile the life of her makeshift family and their days of hardship with the gentle Christian worldview of her husband which paradoxically judges those she loves.

Revisiting the beloved characters and setting of Robinson’s Pulitzer Prize-winning Gilead and Home, a National Book Award finalist, Lila is a moving expression of the mysteries of existence that is destined to become an American classic.

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Jaded: A Novel

Read: April 2024

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Jaded: A Novel

by Ela Lee

Today, I started reading “Jaded: A Novel” by Ela Lee. The main character’s name is Jade, which isn’t even her real name. Jade began using it as her Starbucks name because all children of immigrants have a Starbucks name. “Jaded” is a must-read book for fans of “Queenie” and “I May Destroy You.” It offers a blistering—and sometimes darkly funny—account of consent, power, race, sexism, and identity in a broken society.

Jade has accomplished everything she ever wanted.

She’s a successful lawyer, a dutiful daughter, a beloved girlfriend, and a loyal friend. However, everything starts to crumble when she wakes up the morning after a work event, naked and alone, with no idea how she got home. Jade is caught between her parents, who can’t understand, her boyfriend, who feels betrayed, and her job, which expects silence.

Jade thought she was everything she ever wanted to be. But now she feels like nothing at all.

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The School for Good Mothers

Read: February 2023

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The School for Good Mothers

by Jessamine Chan

The School for Good Mothers by Jessamine Chan is a searing page-turner that is also a transgressive novel of ideas about the perils of “perfect” upper-middle-class parenting; the violence enacted upon women by both the state and, at times, one another; the systems that separate families; and the boundlessness of love, The School for Good Mothers introduces, in Frida, an everywoman for the ages.

Although it has been forty-two years since I became a parent, I still remember the anxiety of being a father. What if I could not be a good dad? Fortunately, I never had a bad like Frida. or lived in an age where parents would be sent to “a Big Brother-like institution that measures the success or failure of a mother’s devotion.”

Reading The School for Good Mothers was a reminder that solutions like this are possible unless we are willing to invest in families so that the skills and support are there to resolve any issues in the home. As a widow, I found Frida’s inner dialogue comparable to the early stages of my grief journey—the total isolation and fear of failing dominated my first months of mourning.

The School for Good Mothers had been on my book list since the middle of last year. I recommend it without reservations! Jan would have already read it, and we would be debating its fine points.

The Goodreads summary provides an overview,

In this taut and explosive debut novel, one lapse in judgement lands a young mother in a government reform program where custody of her child hangs in the balance.

Frida Liu is struggling. She doesn’t have a career worthy of her Chinese immigrant parents’ sacrifices. She can’t persuade her husband, Gust, to give up his wellness-obsessed younger mistress. Only with Harriet, their cherubic daughter, does Frida finally attain the perfection expected of her. Harriet may be all she has, but she is just enough.

Until Frida has a very bad day.

The state has its eyes on mothers like Frida. The ones who check their phones, letting their children get injured on the playground; who let their children walk home alone. Because of one moment of poor judgment, a host of government officials will now determine if Frida is a candidate for a Big Brother-like institution that measures the success or failure of a mother’s devotion.

Faced with the possibility of losing Harriet, Frida must prove that a bad mother can be redeemed. That she can learn to be good.

Using dark wit to explore the pains and joys of the deepest ties that bind us, Chan has written a modern literary classic.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Sing, Unburied, Sing

Read: October 2024

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Sing, Unburied, Sing

by Jesmyn Ward

I started reading Jesmyn Ward‘s novel Sing, Unburied, Sing today. The New York Times selected it as one of the best books of the 21st century and awarded it the National Book Award. According to The New York Times, Jesmyn Ward‘s historic second National Book Award winner is “perfectly poised for the moment.” It’s an intimate portrait of three generations of a family and an epic tale of hope and struggle.

Jojo is thirteen years old and is trying to understand what it means to be a man. He has several father figures to learn from, including his Black grandfather, Pop. However, Jojo’s understanding is complicated by other men in his life: his absent White father, Michael, who is being released from prison; his absent White grandfather, Big Joseph, who refuses to acknowledge him; and the memories of his deceased uncle, Given, who died as a teenager.

His mother, Leonie, is inconsistent in her and her toddler daughter’s lives. She is a flawed mother in constant conflict with herself and those around her. She is Black, and her children’s father is White. She wants to be a better mother but struggles to prioritize her children over her own needs, particularly her drug use. Tormented and comforted by visions of her deceased brother, which only come to her when she’s high, Leonie is embattled in ways that reflect the harsh reality of her circumstances.

When their father is released from prison, Leonie takes her kids and a friend in her car and drives north to Mississippi and Parchman Farm, the State Penitentiary. At Parchman, there is another thirteen-year-old boy, the ghost of a deceased inmate who carries the ugly history of the South with him in his wanderings. With his supernatural presence, this ghostly figure also has something to teach Jojo about fathers and sons, legacies, violence, and love.

Described as a majestic and unforgettable family story, ‘Sing, Unburied, Sing‘ is rich with Ward‘s distinctive, lyrical language. As noted by The Philadelphia Inquirer, her unique narrative style takes readers on ‘an odyssey through rural Mississippi’s past and present.’

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Organ Meats: A Nove

Read: November 2023

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Organ Meats: A Novel

by K-Ming Chang

I recently started reading ‘Organ Meats: A Novel‘ by K-Ming Chang. The story follows the journey of two best friends, Anita and Rainie, who find solace under the shade of an old sycamore tree and some stray dogs. The tree is believed to have the power to communicate with humans. As the girls explore their surroundings, they discover they are connected to a long line of dog-headed women and woman-headed dogs.

Anita convinces Rainie to become a dog like her, and they tie red string collars around their necks to symbolize their bond. However, their friendship is tested when they separate, and Anita enters a dream world. As Anita’s physical body begins to decay, Rainie takes it upon herself to rebuild her friend’s body and save her from being lost forever.

The story is filled with ghosts and vivid descriptions of the human body, portraying the beauty and horror of intimacy, all written in K-Ming Chang’s unique poetic style.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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