Breathing to Stay Alive

Breathing to Stay Alive

Estimated reading time: 1 minute, 39 seconds

Jan, the love of my lifeFortunately, the autonomic nervous system, which controls breathing, continued to work after Jan died.

However, I was never sure it would without reminding my lungs to breathe oxygen into my body.

In the initial weeks without Jan, my life was squeezed by the grief vise, and reminding myself to breathe was crucial if I continued to live.

Every day was a struggle. As Michaela, the protagonist of Breathe by Joyce Carol Oates, says,

In the grip of the grief vise: all that you will do, all that you even imagine doing, will require much more effort… Hardly daring to breathe for the grief vise will tighten around your chest, squeezing the very air out of your lungs.

Now I let the autonomic nervous system control my breathing, despite the grief of a husband mourning the love of his life.

Day by day, I grow stronger and regain my self-confidence.

  • I write daily about Jan, my love for her, my grief, my faith, and my life.
  • I take morning walks and evening strolls.
  • I read more than ever.
  • I help other widows, volunteer, and serve on a few boards.

These self-help steps have begun if only vaguely,  to outline who I might become.

Who I will be without Jan is still a work in progress, but now I can take a deep breath and exhale the demons in my soul. At a minimum, I am no longer the empty shell I was when Jan died.

Knowing that Jan is still with me and always will be, confirms that our love will never die.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Breathing to Stay Alive
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Remarkably Bright Creatures

Read: January 2024

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Remarkably Bright Creatures

by Shelby Van Pelt

Today, I recommended reading “Remarkably Bright Creatures” by Shelby Van Pelt. It’s a charming, witty, and compulsively readable exploration of friendship, reckoning, and hope. The novel traces the unlikely connection of a widow with a giant Pacific octopus, making it perfect for fans of “A Man Called Ove.” Shelby Van Pelt’s debut novel is a gentle reminder that sometimes, looking at the past can help uncover a future that once felt impossible.

The story follows Tova Sullivan, who works the night shift at the Sowell Bay Aquarium after her husband dies. Tova has been coping with loss since her eighteen-year-old son, Erik, mysteriously vanished on a boat in Puget Sound over thirty years ago.

While at the aquarium, Tova becomes acquainted with Marcellus, a grumpy giant Pacific octopus who refuses to cooperate with his human captors. However, Marcellus forms a remarkable friendship with Tova and helps her uncover the truth about her son’s disappearance.

As a detective, Marcellus uses his invertebrate body to deduce what happened when Tova’s son disappeared. Together, they embark on a journey to unearth the truth before it’s too late.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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The missing hours

Read: February 2022

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The Missing Hours

by Julia Dahl

The Missing Hours by Julia Dahl is a novel I chose to read as I was looking for something different from the recent books I have read, and a fellow reader recommended this one. The Missing Hours is a novel about obsession, privilege, and the explosive consequences of one violent act. Like a bomb exploding, the ripple effects of the novel’s primary event impact the victim and her family, friends, and the larger community.

A trigger warning to all readers, the violent act in the novel is a sexual assault that is filmed and shared. Claudia, the victim, has no memory initially of what happened. She had been drinking and wearing clothes that she liked to wear. None of her choices is an excuse for those who victimized her.

She cannot remember what happened until a friend receives the video.

Being wealthy and social media savvy, she is aware that reporting the assault before or after the video is released would only allow her to be re-victimized. Her choices and how she seeks to secure justice make this a book I enjoyed and highly recommended.

This is the Goodreads overview.

From a distance, Claudia Castro has it all: a famous family, a trust fund, thousands of Instagram followers, and a spot in NYU’s first-year class. But look closer, and things are messier: her parents are separating, she’s just been humiliated by a sleazy documentary, and her sister is about to have a baby with a man she barely knows.

Claudia starts the school year resolved to find a path toward something positive, maybe even meaningful – and then, one drunken night, everything changes. Reeling, her memory hazy, Claudia cuts herself off from her family, seeking solace in a new friendship. But when the rest of school comes back from spring break, Claudia is missing.

Suddenly, the whole city is trying to piece together the hours of that terrible night.

From the critically acclaimed author of Invisible City and Conviction, The Missing Hours is a novel about obsession, privilege, and the explosive consequences of one violent act.

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The Bee Sting: A Novel

Read: December 2023

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The Bee Sting: A Novel

by Paul Murray

I began reading “The Bee Sting: A Novel” by Paul Murray today, the seventy-fifth book I have read this year, one more than last year. This exuberantly entertaining novel is a tour de force that portrays post-crash Ireland, a tragicomic family saga, and a dazzling story about the struggle to be good at the end of the world.

The Barnes family is in trouble, with Dickie’s once-lucrative car business going under. However, Dickie is spending his days in the woods, building an apocalypse-proof bunker with a renegade handyperson. His wife, Imelda, sells off her jewelry on eBay while trying to avoid the attention of fast-talking cattle farmer Big Mike. Meanwhile, their teenage daughter, Cass, formerly top of her class, seems determined to binge drink through her final exams. As for twelve-year-old PJ, he’s on the brink of running away.

If you were to change this story, how far back would you have to go? To the infamous bee sting that ruined Imelda’s wedding day? To the car crash one year before Cass was born? Or back to Dickie at ten years old, standing in the summer garden with his father, learning how to be a real man?


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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Whale Fall: A Novel

Read: July 2024

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Whale Fall: A Novel

by Elizabeth O'Connor

I have started reading “Whale Fall: A Novel” by Elizabeth O’Connor. With its unique blend of loss, isolation, folklore, and the journey of self-discovery, this debut novel offers a compelling narrative set in 1938 on a remote Welsh island. The story is catalyzed by the arrival of a dead whale, a powerful symbol that sets the stage for the characters’ journeys.

The story revolves around Manod, a young woman who has spent her entire life on the island. Despite their island home’s harsh yet stunning surroundings, Manod yearns to explore life beyond it, a desire that will resonate with many readers.

As two English ethnographers arrive to study the island’s culture, Manod sees it as a potential escape from her community. However, her growing involvement with them triggers a profound internal conflict. She grapples with the dilemma of pursuing her desires or remaining loyal to her community. This struggle resonates with the universal human experience, making it a compelling read for many.

Whale Fall‘ vividly portrays the tensions that surface when one person’s aspirations threaten the unity of a community. O’Connor’s narrative skillfully depicts the community and Manod on the brink, forced to confront a world that seems to infringe upon them. This evokes a sense of admiration for O’Connor’s storytelling prowess, making it a must-read for literary fiction enthusiasts.

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The Extinction of Irena Rey

Read: April 2024

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The Extinction of Irena Rey

by Jennifer Croft

I began reading “The Extinction of Irena Rey” by Jennifer Croft today. The novel is about eight translators searching for a world-famous author, Irena Rey, who has gone missing in a primeval Polish forest. The translators have come from eight different countries and share a deep admiration for Irena Rey. Their mission is to translate her masterpiece, “Gray Eminence,” but their task takes an unexpected turn when Irena disappears within days of their arrival.

The translators begin to investigate where Irena may have gone while continuing to work on her book. They explore the ancient wooded refuge, with its intoxicating slime molds and lichens, and study Irena’s exotic belongings and layered texts for clues. However, their search reveals secrets and deceptions that they are unprepared for. As they grow increasingly paranoid in this isolated and obsessive fever dream, the translators are forced to confront their differences, and their rivalries and desires threaten not only their work but also the fate of Irena Rey herself.

This debut novel is a brilliant exploration of art, celebrity, the natural world, and the power of language. It is a thought-provoking narrative blends humor and adventure, taking readers on an unforgettable journey with a small yet diverse cast of characters. These characters, shaken by the shocks of love, destruction, and creation, find themselves in one of Europe’s last great wildernesses, where the fate of their beloved author hangs in the balance.

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Being Mortal

Read: August 2019

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Being Mortal

by Atul Gawande

Before departing for Toronto to celebrate our 44th Wedding Anniversary, I went through the e-library. Everything on my list that I wanted to read was not available except for this book. Being Mortal by Atul Gawande is the book I read on our vacation before Jan’s diagnosis of non-Hodgkins Large B cell Lymphoma.

Selecting Being Mortal might seem an accidental choice to some, and I believe it was a divine intervention. It prepared me to be a caregiver to my wife over the nineteen months of her fight with cancer. It helped me focus on the good life that my wife lived and not the pain and suffering.

Atul Gawande describes his book as “riveting, honest, and humane, Being Mortal shows that the ultimate goal is not a good death but a good life – all the way to the very end.”

When I read the book, I wondered what I could have done to help my mother in her final years. The book provides an excellent overview of how nursing homes and assisted living have not been able to meet the needs of the residents.

Dr. Gawande provides an extensive overview of the benefits of hospice. Although I knew of this option, reading this book helped me understand that I was ready for hospice when my wife came home for the last time.

He reminds us that “when it comes to the inescapable realities of aging and death, what medicine can do often runs counter to what it should.” As he writes in the book, the current system does not work and, in many cases, actually shortens life.

This book has had a lasting impact on my life. It allowed me to be a loving caregiver to my wife when she needed it more than anything else. I read it when it would be most beneficial to me.

I highly recommend this book.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love.

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