Breathing to Stay Alive

Breathing to Stay Alive

Estimated reading time: 1 minute, 39 seconds

Jan, the love of my lifeFortunately, the autonomic nervous system, which controls breathing, continued to work after Jan died.

However, I was never sure it would without reminding my lungs to breathe oxygen into my body.

In the initial weeks without Jan, my life was squeezed by the grief vise, and reminding myself to breathe was crucial if I continued to live.

Every day was a struggle. As Michaela, the protagonist of Breathe by Joyce Carol Oates, says,

In the grip of the grief vise: all that you will do, all that you even imagine doing, will require much more effort… Hardly daring to breathe for the grief vise will tighten around your chest, squeezing the very air out of your lungs.

Now I let the autonomic nervous system control my breathing, despite the grief of a husband mourning the love of his life.

Day by day, I grow stronger and regain my self-confidence.

  • I write daily about Jan, my love for her, my grief, my faith, and my life.
  • I take morning walks and evening strolls.
  • I read more than ever.
  • I help other widows, volunteer, and serve on a few boards.

These self-help steps have begun if only vaguely,  to outline who I might become.

Who I will be without Jan is still a work in progress, but now I can take a deep breath and exhale the demons in my soul. At a minimum, I am no longer the empty shell I was when Jan died.

Knowing that Jan is still with me and always will be, confirms that our love will never die.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Breathing to Stay Alive
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Such a Fun Age

Read: October 2021

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Such a Fun Age

by Kiley Reid

Such a Fun Age by Kiley Reid. Although many reviewers highly rated this book, I was unsure it was the book for me. However, once I started reading, I could not stop. It is “a striking and surprising debut novel from a compelling new voice. Such a Fun Age is a big-hearted story about race and privilege, set around a young Black babysitter, her well-intentioned employer, and a surprising connection that threatens to undo them both.

Alix Chamberlain is a woman who gets what she wants and has made a living with her confidence-driven brand, showing other women how to do the same. So she is shocked when her babysitter, Emira Tucker, is confronted while watching the Chamberlains’ toddler one night, walking the aisles of their local high-end supermarket. The store’s security guard, seeing a young Black woman out late with a White child, accuses Emira of kidnapping two-year-old Briar. A small crowd gathers, a bystander films everything, and Emira is furious and humiliated. Alix resolves to make things right.

But Emira herself is aimless, broke, and wary of Alix’s desire to help. At 25, she is about to lose her health insurance and has no idea what to do with her life. When the video of Emira unearths someone from Alix’s past, both women find themselves on a crash course that will upend everything they think they know about themselves and each other.

With empathy and piercing social commentary, Such a Fun Ageexplores the stickiness of transactional relationships, what it means to make someone “family”, and the complicated reality of being a grown-up. It is a searing debut for our times.

When race and privilege are paramount issues, this book is a first step to understanding the intersectionality of the issues and addressing them. I recommend this book with our reservation.

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Fourteen Days: A Collaborative Novel

Read: February 2024

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Fourteen Days: A Collaborative Novel

by Authors Guild

I started reading Fourteen Days: A Collaborative Novel today. It is set in a Lower East Side tenement during the early days of the COVID-19 lockdowns. Fourteen Days is a unique collaborative novel from the Authors Guild with a twist. A different, prominent literary voice has secretly written each character in this diverse cast of New York neighbors. These voices range from Margaret Atwood and Celeste Ng to Tommy Orange and John Grisham.

The novel’s story begins one week into the COVID-19 shutdown, where tenants of a Lower East Side apartment building in Manhattan have gathered on the rooftop to tell stories. As the nights pass, more and more neighbors join in, bringing chairs, milk crates, and overturned pails. Gradually, the tenants, some of whom have barely spoken to each other, become neighbors.

In this Decameron-like serial novel, general editors Margaret Atwood and Douglas Preston and a star-studded list of contributors create a beautiful ode to those trapped when the pandemic hit. Fourteen Days is a dazzling, heartwarming, and ultimately surprising narrative that reveals how some communities managed to become stronger despite the loss and suffering brought about by the pandemic.

Includes writing from: Charlie Jane Anders, Margaret Atwood, Joseph Cassara, Jennine Capó Crucet, Angie Cruz, Pat Cummings, Sylvia Day, Emma Donoghue, Dave Eggers, Diana Gabaldon, Tess Gerritsen, John Grisham, Maria Hinojosa, Mira Jacob, Erica Jong, CJ Lyons, Celeste Ng, Tommy Orange, Mary Pope Osborne, Douglas Preston, Alice Randall, Ishmael Reed, Roxana Robinson, Nelly Rosario, James Shapiro, Hampton Sides, R.L. Stine, Nafissa Thompson-Spires, Monique Truong, Scott Turow, Luis Alberto Urrea, Rachel Vail, Weike Wang, Caroline Randall Williams, De’Shawn Charles Winslow, and Meg Wolitzer!

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In Praise of Walking

Read: April 2023

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In Praise of Walking

by Shane O'Mara

I recently received a book from my family that combines two interests: walking and reading. The book, “In Praise of Walking” by Shane O’Mara, celebrates the joys, health benefits, and mechanics of walking. It emphasizes the importance of getting out of our chairs and discovering a happier, healthier, more creative self.

One of the most important insights I gained from this book is that walking can lead to mind wandering, focusing on autobiographical memory rather than the immediate environment. This realization helped me accept and appreciate Jan’s love and move forward with her passion.

The book also explores the significance of walking to our human identity. Walking upright has given us many advantages, including the freedom of our hands and minds. Walking has enabled us to spread worldwide and has many benefits for our bodies and minds, such as protecting and repairing organs, aiding digestion, and sharpening our thinking.

Overall, “In Praise of Walking” inspires us to start walking again and recognize its many benefits to our lives and societies.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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The Exhibitionist: A Novel

Read: July 2023

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The Exhibitionist: A Novel

by Charlotte Mendelson

I began reading Charlotte Mendelson‘s novel, The Exhibitionist, today. The book tells the story of Lucia and Ray, two artists whose marriage starts to fall apart over a weekend. It explores themes such as art, sacrifice, family dynamics, queer desire, and personal freedom. Charlotte Mendelson has created yet another exceptional novel with The Exhibitionist, ranked as the year’s novel by The Times of London, and described as “furiously funny.”

The Hanrahan family is coming together for an important weekend. Ray Hanrahan, a well-known artist with a big ego, is preparing for his first exhibition in many years. His eldest daughter, Leah, is his biggest supporter. His son, Patrick, has decided to pursue his own path. His youngest daughter, Jess, has a big decision to make. Ray’s wife, Lucia, is also an artist but has always prioritized her roles as a wife and mother. She is keeping secrets of her own and must decide which desires to pursue as the weekend progresses and the exhibition approaches.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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Wintering: The Power of Rest and Retreat in Difficult Times

Read: October 2021

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Wintering: The Power of Rest and Retreat in Difficult Times

by Katherine May

Wintering: The Power of Rest and Retreat in Difficult Times by Katherine May is “an intimate, revelatory book exploring the ways we can care for and repair ourselves when life knocks us down.”

Two quotes that resonated with me were:

That’s what grief is – a yearning for that one last moment of contact that would settle everything.

We are in the habit of imagining our lives to be linear, a long march from birth to death in which we mass our powers, only to surrender them again, all the while slowly losing our youthful beauty. This is a brutal untruth. Life meanders through the woods. We have seasons when we flourish and seasons when the leaves fall upon us, revealing our bare bones. Given time they grow again.

May writes in a clear voice that conveys the importance of accepting the cycles of life instead of fighting them.

Sometimes you slip through the cracks: unforeseen circumstances like an abrupt illness, the death of a loved one, a breakup, or a job loss can derail a life. These periods of dislocation can be lonely and unexpected. For May, her husband fell ill, her son stopped attending school, and her own medical issues led her to leave a demanding job. Wintering explores how she not only endured this painful time but embraced the singular opportunities it offered.

A moving personal narrative shot through with lessons from literature, mythology, and the natural world, May’s story offers instruction on the transformative power of rest and retreat. Illumination emerges from many sources: solstice celebrations and dormice hibernation, C.S. Lewis and Sylvia Plath swimming in icy waters, and sailing arctic seas.

Ultimately Wintering invites us to change how we relate to our own fallow times. May models an active acceptance of sadness and finds nourishment in deep retreat, joy in the serene beauty of winter, and encouragement in understanding life as cyclical, not linear. A secular mystic, May forms a guiding philosophy for transforming the hardships that arise before the ushering in of a new season.

I recommend this book without reservation.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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The Garden of Letters

Read: June 2021

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The Garden of Letters

by son Richman

The Garden of Letters by Alyson Richman was one of the first books I read after Jan died. It was the perfect love story to read after the loss of the love of my life. The love Jan and I shared was because we shared a portion of the soul of the other, and thus we were meant for each other from day one. 

The two primary characters – Elodie Bertolotti and Angelo Rosselli – resonated with me as they were also people who shared souls. The book “captures the hope, suspense, and romance of an uncertain era, in an epic intertwining story of first love, great tragedy, and spectacular bravery.

As I turned every page, the story filled my heart with love and happiness as it reminded me of the love that Jan and I shared.

Portofino, Italy, 1943. A young woman steps off a boat in a scenic coastal village. Although she knows how to disappear in a crowd, Elodie is too terrified to slip by the German officers while carrying her poorly forged identity papers. She is frozen until a man she’s never met before claims to know her. In desperate need of shelter, Elodie follows him back to his home on the cliffs of Portofino.

Only months before, Elodie Bertolotti was a cello prodigy in Verona, unconcerned with world events. But when Mussolini’s Fascist regime strikes her family, Elodie is drawn into the burgeoning resistance movement by Luca, a young and passionate bookseller. As the occupation looms, she discovers that her unique musical talents, and her courage, have the power to save lives.

In Portofino, young doctor Angelo Rosselli gives the frightened and exhausted girl sanctuary. He is a man with painful secrets of his own, haunted by guilt and remorse. But Elodie’s arrival has the power to awaken a sense of hope that Angelo thought was lost to him forever.

I not only recommend this book, but I am also looking forward to reading more of her novels.

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