Caretaker No, Caregiver Yes!

Caretaker No, Caregiver Yes!

Estimated reading time: 1 minute, 36 seconds
Visiting Jan During COVID

I am visiting Jan in March 2021 in the hospital.

Sunday afternoon, my grandson joined me at The Shakespeare Theatre of NJ for The Caretaker.

Harold Pinter’s 1960 classic was performed flawlessly by the cast under the direction of Bonnie Monte.

Jon Barker, Isaac Hickox-Young, and Paul Mullins were the ideal cast for the absurdist play.

A decade after its premiere, I found myself, on occasion, in circumstances that Harold Pinter could have easily written.

Once I was working as a tenant organizer in an abandoned building that the City of New York had acquired.

As we prepared plans to convert the vacant building into affordable homes, I met one remaining tenant squatting in the building without heat or electricity.

He attempted during several meetings to claim he was the owner and would repair the building and find tenants.

In our last conversation, he offered me the opportunity of being his caretaker once he completed the work.

I declined as that was not a skill or a position I desired.

In place of being a caretaker, the love Jan and I shared prepared me for the most important task of my life, being Jan’s caregiver.

As Viktor Frankl wrote,

Love is the ultimate and highest goal to which man can aspire. Then I grasped the meaning of the greatest secret that human poetry and human thought and belief have to impart: The salvation of man is through love and in love.

My love for Jan will never die!


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Man's Search for Meaning

Man's Search for Meaning

I remember reading portions of Man's Search for Meaning by Viktor E. Frankl at different times, but I never finished the book. However, recently, eight and a half months after the passing of Jan, the book came up for discussion in one of my groups. Frankl's theory of logotherapy, which derives from the Greek word for "meaning," centers around the idea that the primary human drive is not pleasure, as Freud believed, but rather the search for what gives life meaning. I now have a framework for my life without Jan.

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Caretaker No, Caregiver Yes!

CancerCare Circle of Hope

Estimated reading time: 1 minute, 36 seconds

Last week, CancerCare, which provided me with vital support services, interviewed me about my role as a caregiver for their Circle of Hope.

As I often do, I did not respond directly to the questions but spoke from my heart.

The interview reminded me of the importance of being a caregiver and how our salvation is “through love and in love.

I would have done anything not to have been Jan’s caregiver.

But it was the job that my love required of me. As long as I live, being her husband and caregiver will be my highest honor.

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Man's Search for Meaning

Read: January 2022

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Man’s Search for Meaning

by Viktor E. Frankl

I remember reading portions of Man’s Search for Meaning by Viktor E. Frankl at different times, but I never finished the book. However, recently, eight and a half months after the passing of Jan, the book came up for discussion in one of my groups. Frankl’s theory of logotherapy, which derives from the Greek word for “meaning,” centers around the idea that the primary human drive is not pleasure, as Freud believed, but rather the search for what gives life meaning. I now have a framework for my life without Jan.

For those like me who are widows, Frankl understands suffering,

In some ways, suffering ceases to be suffering at the moment it finds a meaning, such as the meaning of a sacrifice.

Jan and I lived meaningful lives. My challenge now is to continue to find meaning in my life without Jan.

As Frankl writes,

Those who have a ‘why’ to live, can bear with almost any ‘how’.

The love Jan and I shared was one of my primary sources of meaning. In addition, I stopped working full-time at the end of 2018 and struggled to replace the purpose I had gained from repairing the world. After Jan died, I suffered the “provisional existence of an unknown limit.” Frankl experienced that when he was in the concentration camps.

I have replaced the loss of meaning and purpose with a series of activities:

  1. Planning to Celebrate Jan Day on her birthday this year;
  2. Writing my random thoughts on Jan, love, grief, life, and all things considered;
  3. Reading more than ever, including my Goodreads 2022 Reading Challange; and
  4. Walking more than I probably should.

I am also beginning to serve on the board of a few non-profits. It is time to transition from hands-on work to providing leadership differently.

Will this be enough to give my life meaning?

Ultimately, man should not ask what the meaning of his life is, but rather must recognize that it is he who is asked. In a word, each man is questioned by life; and he can only answer to life by answering for his own life; to life he can only respond by being responsible.

I must continue focusing on my search for meaning, as life will change over time.

My grief journey has taught me that love never dies,

For the first time in my life, I saw the truth as it is set into song by so many poets, proclaimed as the final wisdom by so many thinkers. The truth – that Love is the ultimate and highest goal to which man can aspire. Then I grasped the meaning of the greatest secret that human poetry and human thought and belief have to impart: The salvation of man is through love and in love.

My path forward is to keep Jan’s love alive and continue to share it with others.

I recommend this book without reservation.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Caretaker No, Caregiver Yes!
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Caretaker No, Caregiver Yes!
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An American Marriage

Read: September 2024

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An American Marriage

by Tayari Jones

Today, I started reading “An American Marriage” by Tayari Jones. It is a masterpiece of storytelling that delves into people’s souls as they confront the past and move forward into the future with hope and pain. The book, which has won numerous awards and was selected as one of The New York Times’ 100 Best Books of the 21st Century, is a must-read for any contemporary fiction enthusiast.

Newlyweds Celestial and Roy embody both the American Dream and the New South. He is a young executive, and she is an artist on the brink of an exciting career. But as they settle into their routines, they are ripped apart by circumstances neither could have imagined. Their story reflects the complexities of modern relationships and the criminal justice system’s impact on individuals and families.

Roy’s arrest and subsequent twelve-year sentence for a crime he didn’t commit shatters their world. Celestial, though fiercely independent, finds herself adrift, seeking solace in Andre, her childhood friend and the best man at their wedding. As Roy’s time in prison stretches on, she struggles to hold on to the love that has always been her anchor. When Roy’s conviction is finally overturned after five years, he returns to Atlanta, ready to pick up the pieces of their shattered life, a testament to their resilience and enduring love.

This stirring love story is a profoundly insightful look into the hearts and minds of three people who are at once bound and separated by forces beyond their control. “An American Marriage” is a masterpiece of storytelling—an intimate look deep into people’s souls who must reckon with the past while moving forward—with hope and pain—into the future.

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I Am Homeless If This Is Not My Home

Read: June 2023

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I Am Homeless If This Is Not My Home

by Lorrie Moore

Today, I started reading Lorrie Moore‘s latest novel; I Am Homeless If This Is Not My Home. It’s her first book since A Gate at the Stairs, and it’s a bold and contemplative exploration of love, death, passion, and grief. Moore examines what it means to be haunted by the past in terms of history and the human heart.

The story follows a teacher who visits his dying brother in the Bronx. A mysterious journal from the 19th century is stolen from a boarding house. There’s also a therapy clown and an assassin, who is presumed dead but may not be.

Moore’s unique wordplay, wry humor, and wisdom make for an enchanting read. She presents us with a magic box of surprises, exploring themes of love, rebirth, and the pull toward life. This novel is a poetic and imaginative portrait of lovers and siblings that questions the stories we’ve been told and whether they’re true.

With I Am Homeless If This Is Not My Home, Moore takes us on a journey to a windswept, tragic, and comic landscape. It’s unmistakably her world and a journey you won’t forget.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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The Lion's Den

Read: January 2023

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The Lion’s Den

by Anthony Marra

Today, I read The Lion’s Den by Anthony Marra. After a four and one-half Zoom meeting, I was looking for a book I could finish tonight, and the third book in the Inheritance, a collection of five stories about secrets, unspoken desires, and dangerous revelations between loved ones, seemed like the book to read. The Lion’s Den is the story of Michael, a son, his father’s transgressions in a tell-all were the ethical, righteous—and profitable—thing to do. What’s left but to slink back home for a humbling face-to-face with the man whose secrets he sold?

It was the perfect novel to read this evening. In the opening paragraph, when Michael’s father describes the automated customer service computer voice.” Siri’s dimwitted stepsister,” I knew I could enjoy this book.

Michael’s last-minute invitation to be the Ethics Symposium speaker at his parochial school was written in a way that was both bluntly honest and humorous.

Michael’s visits with his father to the lion’s den at the National Zoo were profoundly moving, and when the wheelchair was left there after his father’s death brought tears to my eyes.

I highly recommend The Lion’s Den, part of Inheritance, a collection of five stories about secrets, unspoken desires, and dangerous revelations between loved ones. Each Inheritance piece can be read or listened to in a single setting. By yourself, behind closed doors, or shared with someone you trust. This is the third one in the series I have read. The previous two were Everything My Mother Taught Me and Can You Feel This?

I have enjoyed all three and look forward to reading the final two.

The Goodreads summary provides an overview,

Exposing his father’s transgressions in a tell-all was the ethical, righteous—and profitable—thing to do. What’s left but to slink back home for a humbling face-to-face with the man whose secrets he sold?

He was a notorious government whistle-blower. Depending on whom you ask, he’s a treasonous felon, a folk hero, a validated patriot, or a national disgrace. To his son, Michael, he’s the father who threw his family into upheaval. Now, having moved back home at thirty-four, Michael is getting to know him as a man and getting nearer to understanding his motivations that have remained a mystery in this darkly humorous short story of sacrifice and betrayal by New York Times bestselling author Anthony Marra.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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Shiner: A Novel

Read: March 2022

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Shiner: A Novel

by Amy Jo Burns

Shiner: A Novel by Amy Jo Burns was my twenty-second of the year, and I achieved my Goodreads 2022 Reading Challenge. An hour from the closest West Virginia mining town, fifteen-year-old Wren Bird lives in a secluded mountain cabin with her parents. They have no car, mailbox, or visitors- except for her mother’s lifelong best friend.

Wren’s narration of her discoveries of the secrets of the past over one summer drives the novel and makes it a page-turner. Her mother, Ruby, and her best friend, Ivy, are two strong women who dreamed of escaping the West Virginia mountains. The male characters play secondary roles in the novel, as they should. Shiner is a feminist book about how women can and must take back their stories and lives from men whose power is an illusion.

I highly recommend this novel and look forward to reading other books by Amy Jo Burns. It was the perfect book to finish my reading challenge. As I continue to read this year, I hope to find another of her books on my shelf.

Goodreads provides an overview.

Every Sunday, Wren’s father delivers winding sermons in an abandoned gas station. He takes up serpents and praises the Lord for his blighted white eye, proof of his divinity and key to his hold over the community, Wren, and her mother.

But over the course of one summer, a miracle performed by Wren’s father quickly turns to tragedy. As the order of her world begins to shatter, Wren must uncover the truth of her father’s mysterious legend and her mother’s harrowing history and complex bond with her best friend. And with that newfound knowledge, Wren can imagine a different future for herself than she has been told to expect.

Rich with epic love and epic loss, and diving deep into a world that is often forgotten but still part of America, Shiner reveals the hidden story behind two generations’ worth of Appalachian heartbreak and resolve. Amy Jo Burns brings us a smoldering, taut debut novel about modern female myth-making in a land of men-and one young girl who must ultimately open her eyes.

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Last House: A Novel

Read: May 2024

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Last House: A Novel

by Jessica Shattuck

I started reading “Last House: A Novel” by Jessica Shattuck today. She is an esteemed New York Times bestselling author known for her work “The Women in the Castle.” This sweeping narrative, perfect for “The Dutch House” and “Great Circle” fans, explores a nation’s rise to power and a family’s complex ties to the resources that shaped their wealth. It also delves into the events that led to their greatest tragedy, a secret that threatens to tear them apart.

In 1953, a World War II veteran turned company lawyer, Nick Taylor, saw oil as the key to the future. He commutes to the city for work and returns to the peaceful suburbs to be with his wife, Bet, a former codebreaker now a housewife, and their two children, Katherine and Harry. Nick, who comes from humble origins, can provide for his family, including their secluded country escape called Last House, thanks to his work for American Oil. Last House, deep in the Vermont mountains, offers the Taylors a retreat from the stresses of modern life. Bet no longer worries about the Russian H-bombs that haunt her dreams, and the children can roam freely in the woods. Last House is a place that seems capable of surviving the end of the world.

1968, a turning point in American history, where the nation teeters on the brink of transformation. The streets pulsate with protestors challenging everything from the Vietnam War to racism and even the country’s reliance on Big Oil. As Katherine enters adulthood, she finds herself caught in the era’s tide, struggling to reconcile her ideals with the privileged upbringing her parents, part of the Greatest Generation, toiled to provide. But when the Movement takes a secure, more radical turn, each member of the Taylor family must face the repercussions of their choices for the causes they believed in. This rich historical backdrop infuses the Taylor family’s narrative with depth and intrigue, leaving us hungry for more about this transformative era.

Last House” spans multiple generations and nearly eighty years, telling the story of one American family during a time of grand ideals and significant downfalls. It explores themes of family dynamics, the impact of wealth, and the societal changes that shaped America. Set against the backdrop of our nation’s history, this emotional tour de force delves deeply into questions of inheritance and what we owe each other. It captures the gravity of time, the double edge of progress, and the hubris of empire to stunning effect.

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