Therapy Dog with Jan

Chemotherapy Day One

Estimated reading time: 0 minutes, 34 seconds

It is two years since Jan started Chemotherapy. The first day went much better than either of us anticipated. The nurses and Dr. Saksena were very supportive and helpful.

With a family text chain, I was updating everyone in real-time.

The therapy dogs came by and made Jan smile with ease and joy. Since we found out that she had blood cancer in late August, her smiles were smaller and less frequent.

When we left with the following five dates scheduled, we both felt we could beat cancer. If only Jan and I could have been successful.

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The Fraud: A Novel

Read: December 2023

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The Fraud: A Novel

by Zadie Smith

I started reading The Fraud: A Novel by Zadie Smith today. The book is a kaleidoscopic work of historical fiction that revolves around a legal trial that divided Victorian England. The story is set in 1873, where Mrs. Eliza Touchet, a Scottish housekeeper and cousin by marriage of a once-famous novelist, William Ainsworth, lives with him for thirty years. Mrs. Touchet is interested in literature, justice, abolitionism, class, and her cousin’s wives.

However, she is skeptical of her cousin’s talent, Mr. Charles Dickens’ character, and England’s facades, in which nothing is as it seems.

On the other hand, Andrew Bogle grew up enslaved on the Hope Plantation in Jamaica. He knows that every lump of sugar comes at a human cost, that the rich deceive the poor, and that people are more easily manipulated than they realize. When Bogle finds himself in London, a star witness in a celebrated case of imposture, he knows that his future depends on telling the right story.

The “Tichborne Trial” captivates Mrs. Touchet and all of England. The trial involves a lower-class butcher from Australia who claimed he was the rightful heir of a sizable estate and title. The question is whether Sir Roger Tichborne is genuinely who he says he is or whether he’s a fraud. In a world of hypocrisy and self-deception, deciding what’s real is complicated for Mrs. Touchet and Mr. Bogle.

The Fraud is a dazzling novel about truth and fiction, Jamaica and Britain, fraudulence and authenticity, and the mystery of “other people.” It’s based on historical events.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Hurricane Season

Read: September 2024

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Hurricane Season

by Fernanda Melchor

Hurricane Season‘ by Fernanda Melchor, translated by Sophie Hughes, is a literary gem acknowledged by the New York Times as one of the 100 Best Books of the 21st Century. The story opens with the discovery of a dead witch in a village, leading to an investigation into her murder. As the novel unfolds, it offers a unique perspective on the lives of the villagers, each narrating the story from their point of view.

This unique portrayal of the characters, each with flaws and virtues, uncovers new details and acts of depravity. Despite the characters being seen as irredeemable, Melchor extracts some shred of humanity from them, creating a lasting portrait of a doomed Mexican village. This deep connection to Mexican culture is a significant aspect of the novel that will surely resonate with readers interested in this topic.

Hurricane Season” draws significant literary inspiration from Roberto Bolaño‘s “2666” and Faulkner‘s novels. Like these works, it is set in a world filled with mythology and actual violence that seeps into the surroundings, creating a connection that makes it more terrifying the deeper you explore it.

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All the Water in the World

Read: January 2025

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All the Water in the World

by Eiren Caffall

Today, I began reading “All the Water in the World” by Eiren Caffall. Like Station Eleven, this novel is a literary thriller set partly in New York’s American Museum of Natural History in a flooded future. In the spirit of “From the Mixed-Up Files of Mrs. Basil E. Frankweiler” and “Parable of the Sower,” this adventurous journey offers hope that the most important things—love, work, community, and knowledge—will endure.

All the Water in the World” is narrated by a girl who profoundly appreciates water. In the years following the melting of the glaciers, Nonie, along with her older sister, parents, and their researcher friends, remains in a nearly deserted New York City. They have established a settlement on the roof of the American Museum of Natural History with a strict rule: they may only take from the exhibits in cases of dire need. They hunt and grow their food in Central Park while also working to preserve the collections of human history and science.

When a superstorm breaches the city’s flood walls, Nonie and her family must escape northward along the Hudson River. They carry a book containing records of the lost collections. As they race down the swollen river for safety, they encounter communities that have adapted in various, sometimes frightening, ways to the new reality. Despite the challenges, they are determined to create a new world that honors everything they have saved.

Inspired by the stories of curators in Iraq and Leningrad who worked to protect their collections during wartime, “All the Water in the World” mediates what we strive to preserve from collapse and an adventure filled with danger, storms, and a fight for survival.



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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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The Day Tripper: A Novel

Read: April 2024

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The Day Tripper: A Novel

by James Goodhand

Today, I began reading “The Day Tripper: A Novel” by James Goodhand. The story centers around Alex Dean, who can travel through time but, unfortunately, always ends up in the wrong place at the wrong time. This book is a perfect read for a rainy April day. The story moves quickly in just the first few pages, with time flying by faster than it does for Alex.

It’s 1995, and Alex Dean has it all: a spot at Cambridge University next year, the love of a fantastic woman named Holly, and all the time ahead of him. That is, until a brutal encounter with a ghost from his past sees him beaten, battered, and almost drowning in the Thames.

The next day, he wakes to find himself in a messy, derelict room he’s never seen before, in grimy clothes Alex doesn’t recognize, with no idea how he got there. A glimpse in the mirror tells him he’s much older and has been living a hard life, his features ravaged by time and poor decisions. He snatches a newspaper and finds it’s 2010—fifteen years since the fight.

After finally drifting off to sleep, Alex wakes the following morning to find it’s now 2019, another nine years later. But the next day, it’s 1999. Never knowing which day is coming, he begins to piece together what happens in his life after that fateful night by the river.

But what exactly is going on? Why does his life look nothing like he thought it would? What about Cambridge and Holly? In this page-turning adventure, Alex must navigate the years to learn that small actions have an untold impact. And that might be all he needs to save the people he loves and, equally importantly, himself.

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Four Spirits

Read: July 2021

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Four Spirits

by Sena Jeter Naslund

Four Spirits by Sena Jeter Naslund is a book that I could not put down. It is a page-turner. The title is from the four girls killed at Sunday School in Birmingham. When that happened in 1963, I was only a few years older and the impact brought home to me that we lived in a broken world that required repair. Like Stella Silver in the novel, my life changed as a result of the bombing. 

As my reading list may indicate, I have always preferred non-fiction with a preference for history. Picking this novel up combined my prior reading habits with my desire to read books that my wife, Jan, recommended.

Weaving together the lives of blacks and whites, racists and civil rights advocates, and the events of peaceful protest and violent repression, Sena Jeter Naslund creates a tapestry of American social transformation at once intimate and epic.

In Birmingham, Alabama, twenty-year-old Stella Silver, an idealistic white college student, is sent reeling off her measured path by the events of 1963. Combining political activism with single parenting and night-school teaching, African American Christine Taylor discovers she must heal her own bruised heart to actualize meaningful social change. Inspired by the courage and commitment of the civil rights movement, the child Edmund Powers embodies hope for future change. In this novel of maturation and growth, Naslund makes vital the intersection of spiritual, political, and moral forces that have redefined America.

Stella’s idealism reminded me of how I became the person I am. Change is not easy but, it takes all of us to risk our lives to repair the world so, it works for all of us.

The book’s critical focus on the “intersection of spiritual, political, and moral forces that have redefined America” makes this a must-read. The redefinition has made America a better country but, we may be retreating from that ideal.

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