Therapy Dog with Jan

Chemotherapy Day One

Estimated reading time: 0 minutes, 34 seconds

It is two years since Jan started Chemotherapy. The first day went much better than either of us anticipated. The nurses and Dr. Saksena were very supportive and helpful.

With a family text chain, I was updating everyone in real-time.

The therapy dogs came by and made Jan smile with ease and joy. Since we found out that she had blood cancer in late August, her smiles were smaller and less frequent.

When we left with the following five dates scheduled, we both felt we could beat cancer. If only Jan and I could have been successful.

Subscribe

Contact Us

Share your thoughts and ideas

This site uses Akismet to reduce spam. Learn how your comment data is processed.

The Jan Lilien Education Fund!

Therapy Dog with Jan
×
The Sum of Our Dreams

Read: September 2019

Get this book

The Sum of Our Dreams: A Concise History of America

by Louis P. Masur

The Sum of Our Dreams: A Concise History of America by Louis P. Masur is a book I got through my membership at One Day University. Professor Masur is one of the best teaches that One Day University has. He is the Board of Governors Distinguished Professor of American Studies and History at Rutgers University.

Most concise histories leave out more than they include. I found the Sum of our Dreams to be an excellent book to read, and professor Masur conveyed the American experience concisely and clearly. The more recent history is complex as events like the Global War on Terror are still being analyzed and re-understood.

Evoking Barack Obama’s belief that America remains the “sum of its dreams,” Masur locates the origin of those dreams of freedom, equality, and opportunity and traces their progress chronologically, illuminating the nation’s struggle over time to articulate and fulfill their promise.

Masur lets the story of American tell itself. Inspired by James Baldwin’s observation that “American history is longer, larger, more beautiful and more terrible than anything anyone has ever said about it,” he expands our notion of that history while identifying its threads.

I recommend this book as well as any of Professor Masur’s lectures at One Day University.

Subscribe

Contact Us

×
The New Wilderness

Read: October 2021

Get this book

The New Wilderness

by Diane Cook

The New Wilderness by Diane Cook. The New Wilderness is a timely book and one that resonated with me. When Jan and I met in 1973, it was a revolutionary time with movements encouraging communes and returning to the farm. Neither Jan nor I were interested in living in a commune. Reading this book helped reassure me that we made the correct choice.

The summary of the book is:

Margaret Atwood meets Miranda July in this wildly imaginative debut novel of a mother’s battle to save her daughter in a world ravaged by climate change; A prescient and suspenseful book from the author of the acclaimed story collection, Man V. Nature.

Bea’s five-year-old daughter, Agnes, is slowly wasting away, consumed by the smog and pollution of the overdeveloped metropolis that most of the population now calls home. If they stay in the city, Agnes will die. There is only one alternative: the Wilderness State, the last swath of untouched, protected land, where people have always been forbidden. Until now.

Bea, Agnes, and eighteen others volunteer to live in the Wilderness State, guinea pigs in an experiment to see if humans can exist in nature without destroying it. Living as nomadic hunter-gatherers, they slowly and painfully learn to survive in an unpredictable, dangerous land, bickering and battling for power and control as they betray and save one another. But as Agnes embraces the wild freedom of this new existence, Bea realizes that saving her daughter’s life means losing her in a different way. The farther they get from civilization, the more their bond is tested in astonishing and heartbreaking ways.

At once a blazing lament of our contempt for nature and a deeply humane portrayal of motherhood and what it means to be human, The New Wilderness is an extraordinary novel from a one-of-a-kind literary force.

When I finished this book, I read Pompeii Still Has Buried Secrets by  in The New Yorker. It reminded me of all of the threats to civilization that we face, who will be Pliny the Younger to be “the only surviving eyewitness account of the disaster.” Fleeing our cities for the wilderness is no longer an option!

Subscribe

Contact Us

When you buy a book or product using a link on this page, I receive a commission. Thank you for supporting Sharing Jan’s Love blog.

×
Breathe

Read: September 2021

Get this book

Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

Subscribe

Contact Us

When you buy a book or product using a link on this page, I receive a commission. Thank you for supporting Sharing Jan’s Love blog.

×
The Heaven & Earth Grocery Store

Read: November 2023

Get this book

The Heaven & Earth Grocery Store

by James McBride

I started reading The Heaven & Earth Grocery Store: A Novel by James McBride today. It’s the seventy-first book I’ve read this year and the two hundredth since January 1, 2019. The novel’s narrative begins in 1972 when workers in Pottstown, Pennsylvania, were digging the foundations for a new development. They were surprised to find a skeleton at the bottom of the well. The identity of the skeleton and how it ended up there were long-held secrets that the residents of Chicken Hill kept.

Jewish immigrants and African Americans lived together in this run-down neighborhood and shared their aspirations and hardships. Moshe and Chona Ludlow resided in Chicken Hill when Moshe integrated his theatre, and Chona ran the Heaven & Earth Grocery Store. When the state officials searched for a deaf boy to institutionalize him, it was Chona and Nate Timblin, the Black janitor at Moshe’s theatre and the unofficial leader of the Black community on Chicken Hill, who collaborated to keep the boy safe.

As the stories of these characters intertwine and develop, it becomes evident how much the individuals living on the outskirts of white, Christian America struggle to survive and what they must do to make it through. As the truth is ultimately disclosed regarding the events that occurred on Chicken Hill, including the involvement of the town’s white establishment, McBride illustrates to us that, even in the darkest of times, love and community – the very essence of heaven and earth – help us endure.

Bringing his masterly storytelling skills and deep faith in humanity to The Heaven & Earth Grocery Store, James McBride has written a novel as compassionate as Deacon King Kong and as inventive as The Good Lord Bird.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Regarding gifts made this month, I will match dollar for dollar. All donations are tax-deductible.

Subscribe

Contact Us

I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



×
Fourteen Days: A Collaborative Novel

Read: February 2024

Get this book

Fourteen Days: A Collaborative Novel

by Authors Guild

I started reading Fourteen Days: A Collaborative Novel today. It is set in a Lower East Side tenement during the early days of the COVID-19 lockdowns. Fourteen Days is a unique collaborative novel from the Authors Guild with a twist. A different, prominent literary voice has secretly written each character in this diverse cast of New York neighbors. These voices range from Margaret Atwood and Celeste Ng to Tommy Orange and John Grisham.

The novel’s story begins one week into the COVID-19 shutdown, where tenants of a Lower East Side apartment building in Manhattan have gathered on the rooftop to tell stories. As the nights pass, more and more neighbors join in, bringing chairs, milk crates, and overturned pails. Gradually, the tenants, some of whom have barely spoken to each other, become neighbors.

In this Decameron-like serial novel, general editors Margaret Atwood and Douglas Preston and a star-studded list of contributors create a beautiful ode to those trapped when the pandemic hit. Fourteen Days is a dazzling, heartwarming, and ultimately surprising narrative that reveals how some communities managed to become stronger despite the loss and suffering brought about by the pandemic.

Includes writing from: Charlie Jane Anders, Margaret Atwood, Joseph Cassara, Jennine Capó Crucet, Angie Cruz, Pat Cummings, Sylvia Day, Emma Donoghue, Dave Eggers, Diana Gabaldon, Tess Gerritsen, John Grisham, Maria Hinojosa, Mira Jacob, Erica Jong, CJ Lyons, Celeste Ng, Tommy Orange, Mary Pope Osborne, Douglas Preston, Alice Randall, Ishmael Reed, Roxana Robinson, Nelly Rosario, James Shapiro, Hampton Sides, R.L. Stine, Nafissa Thompson-Spires, Monique Truong, Scott Turow, Luis Alberto Urrea, Rachel Vail, Weike Wang, Caroline Randall Williams, De’Shawn Charles Winslow, and Meg Wolitzer!

×
The City We Became

Read: October 2021

Get this book

The City We Became: A Novel

by N. K. Jemisin

The City We Became: A Novel by N. K. Jemisin is my first science fiction and urban fantasy novel in quite some time. It is a story of culture, identity, magic, and myths in contemporary New York City. Jan and I had lived in New York City, and the book brought back fond memories.

Every great city has a soul. Some are ancient as myths, and others are as new and destructive as children.

But every City also has a dark side. A roiling, ancient evil stirs beneath the earth, threatening to destroy the City and her five protectors unless they can come together and stop it once and for all.

As Jemisin writes:

A city is never alone, not really — and this city seems less solitary than most. More like a family: many parts, frequently squabbling … but in the end, against enemies, they come together to protect one another. They must, or die.

The challenge is when evil forces threaten the City; the entire community needs to unite, and the City’s avatars for each of the five boroughs.

Initially, this is supposed to be one for each borough and one for the entire City. In the end, one of the avatars for the five boroughs chooses not to unite with the others. Without all six, they stand no chance to defeat the forces of evil.

How do they solve this? By adding the sixth borough – Jersey City.

I recommend this book without reservation.

When you buy a book or product using a link on this page, I receive a commission. Thank you for supporting Sharing Jan’s Love blog.

Subscribe

Contact Us

×