Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Help Wanted: A Novel

Read: March 2024

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Help Wanted: A Novel

by Adelle Waldman

Today, I started reading Help Wanted: A Novel by Adelle Waldman. The best-selling author of The Love Affairs of Nathaniel writes a funny and eye-opening tale of work in contemporary America. The story revolves around the members of Team Movement, who work at the big-box store Town Square in a small upstate New York town.

They come in for their shift at 3:55 a.m. every day, and under the supervision of a self-absorbed and barely competent boss, they empty the day’s merchandise truck, stock the shelves, and leave before the store opens for customers.

Although their lives follow a familiar and grueling routine, their real problem is that Town Square needs to schedule them for more hours. As a result, most are barely getting by, even while working second or third jobs. When the store manager, Big Will, announces he is leaving, the members of the Movement spot an opportunity. They set a just-so-crazy-it-might-work plot in motion, hoping one of them might land a management job, providing stability and possibilities for advancement.

The members of Team Movement, including a comedy-obsessed oddball who acts half his age, a young woman trying to keep her “cool kid” status from high school, and a college football hopeful trying to find a new path, band together to achieve their goal. Adelle Waldman’s debut novel was a breakout sensation, and her long-awaited follow-up brings her unparalleled wit and astute social observation to modern, low-wage work. Help Wanted is a humane and darkly comic workplace caper that highlights the hardships low-wage workers face in today’s economy. It is a funny and moving tale of ordinary people trying to make a living.

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The Friend: A Novel

Read: September 2022

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The Friend: A Novel

by Sigrid Nunez

The Friend: A Novel by Sigrid Nunez is a moving story of love, friendship, grief, healing, and the magical bond between a woman and her dog. When a woman unexpectedly loses her lifelong best friend and mentor, she finds herself burdened with the unwanted dog he has left behind. I understand the positives and negatives of having a dog help with grief, but I cannot have one where I live.

One line that resonated with me was,

You can’t hurry, love, as the song goes. You can’t hurry, grief, either.

Far too often, widows are in a hurry, not unlike young lovers. We need to learn patience and remind ourselves that the more we love, the more we will grieve.

I often said that Jan would replace me with a dog if she survived me.

I recommend this book.

The Goodreads summary provides a concise overview,

The woman’s own battle against grief is intensified by the mute suffering of the dog, a huge Great Dane traumatized by the inexplicable disappearance of its master, and by the threat of eviction: dogs are prohibited in her apartment building.

While others worry that grief has made her a victim of magical thinking, the woman refuses to be separated from the dog except for brief periods of time. Isolated from the rest of the world, increasingly obsessed with the dog’s care, determined to read its mind and fathom its heart, she comes dangerously close to unraveling. But while troubles abound, rich and surprising rewards lie in store for both of them.

Elegiac and searching, The Friend is both a meditation on loss and a celebration of human-canine devotion.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Home: A Novel

Read: February 2022

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Home: A Novel

by Marilynne Robinson

Home: A Novel by Marilynne Robinson is a moving and healing book about families, family secrets, the passing of the generations, love, death, and faith. Robinson’s most significant work is an unforgettable embodiment of the most profound and universal emotions. Although I have not read the other novels in this series, I plan to add them to my list. I highly recommend this book.

It is a moving and healing book about families, family secrets, the passing of generations, love, death, and faith. With the loss of the love of my life ten months ago, these are topics that I have spent time thinking about. Ms. Robinson’s powerful writing weaved a story that I could not stop reading.

Again, I highly recommend this novel.

This is the Goodreads summary.

Hundreds of thousands were enthralled by the luminous voice of John Ames in Gilead Marilynne Robinson’s Pulitzer Prize-winning novel. Home is an entirely independent, deeply affecting novel that takes place concurrently in the same locale, this time in the household of Reverend Robert Boughton, Ames’s closest friend.

Glory Boughton, aged thirty-eight, has returned to Gilead to care for her dying father. Soon her brother, Jack—the prodigal son of the family, gone for twenty years—comes home too, looking for refuge and trying to make peace with a past littered with tormenting trouble and pain.

Jack is one of the great characters in recent literature. A bad boy from childhood, an alcoholic who cannot hold a job, he is perpetually at odds with his surroundings and with his traditionalist father, though he remains Boughton’s most beloved child. Brilliant, lovable, and wayward, Jack forges an intense bond with Glory and engages painfully with Ames, his godfather and namesake.

Home is a moving and healing book about families, family secrets, the passing of the generations, love, death, and faith. Robinson’s most significant work is an unforgettable embodiment of the most profound and universal emotions.

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Reluctantly Home

Read: June 2022

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Reluctantly Home

by Imogen Clark

Reluctantly Home by Imogen Clark is about dealing with the past—and finally facing the future-a topic that was appealing to me. Thirteen months into my grief journey, I live between a perfect past and an unknowable future. Will Reluctantly Home by Imogen Clark help me manage these two worlds?

Surprisingly it did. Unlike the two protagonists, I am mourning losing Jan, the love of my life. However, the neuromapping in my brain made it impossible to understand how to continue to love Jan and separate that from the time and space connections that made me believe she would return at any moment.

Reluctantly Home by Imogen Clark helped me understand that grief should and cannot define us forever. I recommend this book to all readers, not only those on a grief journey like mine.

The Goodreads summary provides an overview.

Pip Appleby seems to have it all, with her prestigious job as a human rights lawyer and her enviable London home. But then a tragic accident stops her life in its tracks, and everything changes instantly. Retreating to her family’s rural farm and the humble origins she has been trying to hide, Pip is haunted by what she has done.

When she discovers the diary of actress Evelyn Mountcastle in a box of old books, Pip revels in the opportunity to lose herself in someone else’s life rather than focus on the disaster that is her own. But soon, she sees parallels—Evelyn’s life was also beset by tragedy, and, like Pip, she returned to Southwold under a dark cloud.

When Pip and Evelyn’s paths cross in real life, they slowly begin to reveal the hidden stories holding them back. Can they help each other forgive what happened in the past and, perhaps, find happiness in the future?


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The Rest Is Memory: A Novel

Read: January 2025

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The Rest Is Memory: A Novel

by Lily Tuck

Today, I dove into “The Rest Is Memory: A Novel” by Lily Tuck, and it’s already leaving a powerful impression. This poignant tale follows a young Catholic girl’s harrowing journey to Auschwitz, woven in a captivating Rashomon-style narrative showcasing Tuck’s brilliance as a storyteller. Esquire has rightly placed it on their list of Best Books for Fall 2024, and I can see why.

In Tuck‘s skilled hands, “The Rest Is Memory” transforms into an unforgettable piece of historical reclamation, breathing life into an innocent soul who has long been remembered only through a haunting triptych of photographs. It’s a journey that promises to linger in my thoughts long after I’ve turned the last page.

In this mesmerizing novel by Lily Tuck, we first glimpse fourteen-year-old Czeslawa riding on the back of a boy’s motorcycle. Tuck imagines Czeslawa’s upbringing in a small Polish village before her world imploded in late 1942. Stripped of her modest belongings, she arrives at Auschwitz shorn and bearing the tattoo number 26947. Shortly after, she is photographed. Three months later, she is dead.

How did this happen to an ordinary Polish citizen? This is the question Tuck grapples with in this haunting narrative, which frames Czeslawa’s story within the tragic context of the six million Poles who perished during the German occupation. A decade before writing The Rest Is Memory“, Tuck read an obituary of the photographer Wilhelm Brasse, who took over 40,000 pictures of Auschwitz prisoners—including three of Czeslawa Kwoka, a Catholic girl from rural southeastern Poland. Tuck cut out these photos and kept them, determined to learn more about Czeslawa. However, she could only gather the barest facts: the village she came from, the transport she was on, that she was accompanied by her mother and neighbors, her tattoo number, and the date of her death. Tuck crafts a remarkable kaleidoscope of imagination from this scant evidence, something only our greatest novelists can achieve.

Susanna Moore described the novel as “Beautifully written, all the while instilling a sense of horror.” Tuck’s language swirls around the reader, yet no word is out of place. The subtly rotating images tumble forth, accelerating as we learn about Czeslawa’s tragic time in Auschwitz, as well as the lives of real individuals, including the brutal Commandant Rudolf Höss, his unconscionable wife Hedwig, psychiatrist and child rescuer Janusz Korczak, and the sharp Polish short story writer Tadeusz Borowski. Although we know Czeslawa’s fate, we must keep turning the pages, thoroughly captivated by Tuck’s nearly otherworldly prose.



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Western Lane: A Novel

Read: March 2023

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Western Lane: A Novel

by Chetna Maroo

Western Lane: A Novel by Chetna Maroo is a taut, enthralling first novel about grief, sisterhood, and a young athlete’s struggle to transcend herself. Western Lane is about three sisters who have lost their mother. Their father is encouraged to provide structure in raising his daughters. Gopi, the narrator, is a squash player, and her father imposes a brutal training regimen. I highly recommend this novel!

The following passage explains the importance of squash to Gopi and how she views the world.

In the court, your mind is not only on the shot you’re about to play and the shot with which your opponent might reply, but on the shots that will follow two, three, four moves ahead. You’re watching your opponent’s position and the game he or she is playing, making calculations. This is how you choose which way to go. Though your mind is following several paths at once, it’s not a splitting but expansion forwards and backward in time, and it happens so quickly that it feels like instinct. Sometimes, you don’t even know you are thinking.

In the first few pages, I wondered what I would have done if I had been a single parent when my sons were young. I do not believe I would have imposed on my sons what Gopi’s father did to her. However, I have found reading and art to be powerful tools to help me cope with grief. I have focused on rituals, structure, and purpose.

The Goodreads summary provides an overview,

Eleven-year-old Gopi has been playing squash since she was old enough to hold a racket. When her mother dies, her father enlists her in a quietly brutal training regimen, and the game becomes her world. Slowly, she grows apart from her sisters. Her life is reduced to the sport, guided by its rhythms: the serve, the volley, the drive, the shot, and its echo.

But on the court, she is not alone. She is with her pa. She is with Ged, a thirteen-year-old boy with formidable talent. She is with the players who have come before her. She is in awe.

An indelible coming-of-age story, Chetna Maroo’s first novel captures the ordinary and annihilates it with beauty. Western Lane is a valentine to innocence, to the closeness of sisterhood, to the strange ways we know ourselves and each other.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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