Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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The Secret Hours

Read: January 2024

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The Secret Hours

by Mick Herron

Today, I started reading “The Secret Hours” by Mick Herron, a gripping spy thriller about a disastrous MI5 mission in Cold War Berlin. This book is a must-read for fans of “Slow Horses.” “The Secret Hours” is a standalone spy thriller that is both unnerving and poignant yet also has laugh-out-loud moments. It is the breathtaking secret history that Slough House fans have been waiting for.

Two years ago, a hostile prime minister launched the Monochrome inquiry, which aimed to investigate “historical over-reaching” by the British Secret Service. Griselda Fleet and Malcolm Kyle, two civil servants seconded to the project, were given unfettered access to all confidential information in the Service archives to ferret any hint of misconduct by any MI5 officer.

However, MI5’s formidable First Desk did not become Britain’s top spy by accident, and she has successfully thwarted the inquiry at every turn. The administration that created Monochrome has been ousted, and the investigation is a total bust. Griselda and Malcolm are stuck watching as the pounding London rain washes away their career prospects.

On the eve of Monochrome’s shuttering, an MI5 case file appears without explanation. It is the buried history of a classified operation in 1994 Berlin, which ended in tragedy and scandal, whose cover-up has rewritten thirty years of Service history.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Regarding gifts made this month, I will match dollar for dollar. All donations are tax-deductible.

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The Faraway World

Read: January 2023

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The Faraway World: Stories

by Patricia Engel

The Faraway World: Stories by Patricia Engel was released six days ago. The Faraway World is an exquisite collection of ten haunting, award-winning short stories set across the Americas and linked by themes of migration, sacrifice, and moral compromise. I highly recommend this collection of short stories. All ten are ones I would read again. As Leigh Newman wrote in her review in the NYTimes, The Faraway World is “a collection about the Latin American diaspora.”

In addition, Leigh Newman described The Faraway World proves that Engel, like one of her characters, is capable of noticing “that between two people, a look reveals more than a fingerprint.” The first story in the collection, “Aida,” is about two twins, one of whom goes missing. Once I read this story, I could not stop until I had read all ten.

The stories are based in Cuba, Colombia, and the US. I know a few NJ settings that gave more meaning to these stories. I felt like I was in Cuba and Colombia, which I had never visited.

NPR interviewed Patricia Engel. She described how she wrote the stories.

They came to me at different points when I was thinking about other things. But of course, they are connected by this – the motivating force for change, desire, and the ever-changing conditions of identity and movements and changing geography and landscape and diaspora. Those are things that I explore in all my writing, and it’s something that I explore in my life. So, of course, it permeates my stories.


The Goodreads summary provides an overview,

Two Colombian ex-pats meet as strangers on the rainy streets of New York City, both burdened with traumatic pasts. In Cuba, a woman discovers her deceased brother’s bones have been stolen, and the love of her life returns from Ecuador for a one-night visit. A cash-strapped couple hustles in Miami to life-altering ends.

The Faraway World is a collection of arresting stories from The New York Times bestselling author of Infinite Country, Patricia Engel, “a gifted storyteller whose writing shines even in the darkest corners” (The Washington Post). Intimate and panoramic, these stories bring to life the liminality of regret, the vibrancy of the community, and the epic deeds and quiet moments of love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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Bodily Harm

Read: June 2021

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Bodily Harm

by Margaret Atwood

Bodily Harm by Margaret Atwood is one of the books I picked up from our bookshelf in the first few months after Jan’s death. Being someone who has always fantasized about being a journalist, I found it very interesting.

A powerfully and brilliantly crafted novel, Bodily Harm is the story of Rennie Wilford, a young journalist whose life has begun to shatter around the edges.  Rennie flies to the Caribbean to recuperate, and on the tiny island of St. Antoine she is confronted by a world where her rules for survival no longer apply.  By turns comic, satiric, relentless, and terrifying, Margaret Atwood’s Bodily Harm is ultimately an exploration of the lust for power, both sexual and political, and the need for compassion that goes beyond what we ordinarily mean by love.

Bodily Harm may be the bleakest book that Ms. Atwood has written. One of her common themes is “the violence that human beings inflict on one another and their isolation in an uncaring world. It holds out some hope in the form of compassion to be shared by those who are victims of bodily harm in any form. The novel suggests that every person falls into this category. All are victims. There is no exemption, no escape for anyone.”

I recommend this book.

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Hurricane Season

Read: September 2024

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Hurricane Season

by Fernanda Melchor

Hurricane Season‘ by Fernanda Melchor, translated by Sophie Hughes, is a literary gem acknowledged by the New York Times as one of the 100 Best Books of the 21st Century. The story opens with the discovery of a dead witch in a village, leading to an investigation into her murder. As the novel unfolds, it offers a unique perspective on the lives of the villagers, each narrating the story from their point of view.

This unique portrayal of the characters, each with flaws and virtues, uncovers new details and acts of depravity. Despite the characters being seen as irredeemable, Melchor extracts some shred of humanity from them, creating a lasting portrait of a doomed Mexican village. This deep connection to Mexican culture is a significant aspect of the novel that will surely resonate with readers interested in this topic.

Hurricane Season” draws significant literary inspiration from Roberto Bolaño‘s “2666” and Faulkner‘s novels. Like these works, it is set in a world filled with mythology and actual violence that seeps into the surroundings, creating a connection that makes it more terrifying the deeper you explore it.

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Let Us Descend: A Novel

Read: November 2023

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Let Us Descend: A Novel

by Jesmyn Ward

Today, I started reading Let Us Descend: A Novel by Jesmyn Ward. She is a two-time National Book Award winner, the youngest winner of the Library of Congress Prize for American Fiction, and a MacArthur Fellow. The book is a haunting masterpiece that is sure to become an instant classic. It tells the story of an enslaved girl in the years before the Civil War.

The book’s title is from Dante Alighieri’s Inferno: “‘Let us descend,’ the poet now began, ‘and enter this blind world.” Let Us Descend is a reimagining of American slavery, beautifully rendered yet heart-wrenching. The novel takes us on a journey from the rice fields of the Carolinas to the slave markets of New Orleans and into the fearsome heart of a Louisiana sugar plantation.

Annis is the reader’s guide through this hellscape, sold south by the white enslaver who fathered her. As Annis struggles through the miles-long march, she turns inward, seeking comfort from memories of her mother and stories of her African warrior grandmother. Throughout the journey, she opens herself to a world beyond this world, one teeming with spirits: of earth and water, of myth and history, spirits who nurture and give, and those who manipulate and take. While Ward leads readers through the descent, this, her fourth novel, is ultimately a story of rebirth and reclamation.

Let Us Descend is a magnificent novel that inscribes Black American grief and joy in the very land of the American South. Ward’s writing takes you through the rich but unforgiving forests, swamps, and rivers of the South, making this novel a masterwork for the ages.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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O Beautiful A Novel

Read: March 2023

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O Beautiful: A Novel

by Jung Yun

O Beautiful: A Novel by Jung Yun, the critically acclaimed author of Shelter, has written an unflinching portrayal of a woman trying to come to terms with the ghosts of her past and the tortured realities of a deeply divided America. With spare and graceful prose, O Beautiful presents an immersive portrait of a community rife with tensions, competing interests, and one woman’s attempts to reconcile her anger with her love of beautiful but troubled land. I highly recommend O Beautiful!

I finished reading O Beautiful on International Women’s Day. It might have been coincidental, but in my humble opinion, it was the perfect book to read on this important day. Ms. Yun has written a novel that touches on the intersectionality of the core issues of our divided land. The misogyny, the racism, and the impact of capitalism out of control are all related and are affecting the quality of life in the early twenty-first century.

Elinor Hanson, the protagonist, is so vividly written that she jumps off the page and becomes someone we know as a family member. When she returned home to write about the Bakken oil boom in North Dakota, I felt I had known her all my life. Unfortunately, the novel ended when she finally understood the issues and was in touch with her anger. I wish it would have continued so that the problems might have been addressed. Despite this, I highly recommend this novel.

O Beautiful is the twenty-first book I have read this year! My goal was twenty-three.

The Goodreads summary provides an overview,

Elinor Hanson, a forty-something former model, struggles to reinvent herself as a freelance writer when she receives an unexpected assignment. Her mentor from grad school offers her a chance to write for a prestigious magazine about the Bakken oil boom in North Dakota.

Elinor grew up near the Bakken, raised by an overbearing father and a distant Korean mother who met and married when he was stationed overseas. After decades from home, Elinor returns to a landscape she hardly recognizes, overrun by tens of thousands of newcomers.

Surrounded by roughnecks seeking their fortunes in oil and long-time residents worried about their changing community, Elinor experiences a profound sense of alienation and grief. She rages at the unrelenting male gaze, the locals who still see her as a foreigner, and the memories of her family’s estrangement after her mother decided to escape her unhappy marriage, leaving Elinor and her sister behind.

The longer she pursues this potentially career-altering assignment, the more her past intertwines with the story she’s trying to tell, revealing disturbing new realities that will forever change her and how she looks at the world.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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