Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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The Bookstore Sisters: A Short Story

Read: October 2022

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The Bookstore Sisters: A Short Story

by Alice Hoffman

The Bookstore Sisters: A Short Story by Alice Hoffman is a heartfelt short story about family, independence, and finding your place in the world. The overview should be enough to encourage everyone to read the book. I recommend this short story without any reservations. Ms. Hoffman has written a moving story that helped me to grapple with grief and reminded me that love is the highest and most important goal that humans can aspire.

Isabel Gibson has all but perfected the art of forgetting. She’s a New Yorker now, with nothing left to tie her to Brinkley’s Island, Maine. Her parents are gone, the family bookstore is all but bankrupt, and her sister, Sophie, will probably never speak to her again.

But when a mysterious letter arrives in her mailbox, Isabel feels drawn to the past. After years of fighting for her independence, she dreads the thought of going back to the island. What she finds there may forever alter her path—and change everything she thought she knew about her family, home, and herself.

Isabel sums up the power of love in this paragraph,

She was thinking about the way a fish loved a river, and a bird loved the sky, and a mother loved her daughters. She was remembering everything. How love could change a person, how it could cause you the greatest sorrow or shelter you from harm. There were moths hitting against the windowpanes. A night heron called in the marshland as if its heart were breaking.

I have always fantasized about working in or owning a small bookstore.

The Bookstore Sisters: A Short Story rekindled that dream and reminded me of the power of love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Kala: A Novel

Read: June 2024

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Kala: A Novel

by Colin Walsh

Today, I started reading “Kala: A Novel” by Colin Walsh, a gripping literary page-turner from a rising Irish talent. Former friends, estranged for twenty years, reckon with the terrifying events of the summer that changed their lives. Three old friends are reunited in the seaside town of Kinlough, on Ireland’s west coast, for the first time in years.

Helen, Joe, and Mush were part of an original group of six inseparable teenagers in the summer of 2003, with motherless, reckless Kala Lanann as their group’s white-hot center. Soon after that summer’s peak, Kala disappeared without a trace.

Now it’s fifteen years later:

  • Helen has reluctantly returned to Ireland for her father’s wedding.
  • Joe is a world-famous musician who is newly back in town.
  • Mush has never left, too scared to venture beyond the counter of his mother’s café.

But human remains are discovered in the woods. Two more girls have gone missing. As past and present begin to collide, the estranged friends are forced to confront their involvement in the events that led to Kala’s disappearance.

Against the backdrop of a town suffocating on its secrets, in a story that builds from a smolder to a stunning climax, Kala brilliantly examines the sometimes brutal costs of belonging and the battle in the human heart between vengeance and forgiveness, despair and redemption.

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Camp Zero

Read: April 2023

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Camp Zero: A Novel

by Michelle Min Sterling

I recently read an incredible novel called Camp Zero by Michelle Min Sterling. The book tells the story of several climate change survivors in a near-future northern settlement and explores the intersection of gender, class, and migration. The novel is a page-turner and a masterful exploration of who and what will survive in a warming world.

The story follows Rose, a young woman who agrees to spy on the architect of an American building project in exchange for housing. She arrives at the same time as Grant, a college professor who is trying to escape his wealthy family’s dark legacy. As they begin to investigate the mysterious architect, they uncover a disturbing mystery lurking beneath the surface of the camp.

One of the most fascinating aspects of the novel is the inclusion of an elite group of women soldiers living and working at a nearby Cold War-era climate research station. The rumors surrounding their presence add more intrigue to an already compelling story.

If you’re looking for a captivating novel that will keep you on the edge of your seat, I highly recommend Camp Zero. The book is a mesmerizing and transportive read, perfect for fans of Station Eleven and The Power.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Sarah's Key

Read: January 2022

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Sarah’s Key

by Tatiana de Rosnay

Sarah’s Key by Tatiana de Rosnay is the untold story of the roundup of the Jews in Paris in July 1942. The novel focuses on how the French were complicit in rounding up thousands of Jews in 1942. It is also a reminder that we can never allow another genocide. I finished this book the day before Holocaust Remembrance Day, January 27, the date on which the Auschwitz-Birkenau concentration and death camp complex was liberated in 1945.

Ten-year-old Sarah is brutally arrested with her family in the Vel’ d’Hiv’ roundup, the most notorious act of French collaboration with the Nazis. But before the police come to take them, Sarah locks her younger brother, Michel, in their favorite hiding place, a cupboard in the family’s apartment. She keeps the key, thinking she will be back within a few hours.

Paris, May 2002: On Vel’ d’Hiv’s sixtieth anniversary, Julia Jarmond, an American journalist, is asked by her Paris-based American magazine to write an article about this black day in France’s past. Julia has lived in Paris for nearly twenty-five years and married a Frenchman, and she is shocked both by her ignorance about the event and the silence that still surrounds it.

The twin narratives of Sarah and Julia hold the first two-thirds of the book together and make it a page-turner. Sarah’s memory reminds us during the final third of the book and ensures that the complete story of the Vel’ d’Hiv’ roundup and its lasting impact are told.

As Goodreads describes the novel,

In the course of her investigation, she stumbles onto a trail of long-hidden family secrets that connects her to Sarah. Julia finds herself compelled to retrace the girl’s ordeal, from the terrible days spent shut in at the Vel’ d’Hiv’ to the camps and beyond. As she probes into Sarah’s past, she begins to question her own place in France and to reevaluate her marriage and her life.

Writing about the fate of her country with a pitiless clarity, Tatiana de Rosnay offers us a brilliantly subtle, compelling portrait of France under occupation and reveals the taboos and denial surrounding this painful episode in French history.

I highly recommend the book.

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Aftermirth

Read: August 2022

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Aftermirth by Hillary Jordan

by Hillary Jordan

Aftermirth by Hillary Jordan is a book about grief as the two protagonists take a road trip that is a darkly funny journey of healing that takes them deep into the heart of their suffering and others, and then beyond it, to a place of peace and laughter. I had just finished reading When She Woke by Ms. Jordan and having enjoyed that book, reading a second one by the same author seemed reasonable.

When I selected this short novel to read, I questioned if it was a good choice for me.

I found it easier to read and, in some ways, helpful. It was like meeting fellow widows from my Zoom grief groups in person at Camp Widow. The ability to laugh about our loss and cry openly is essential to meeting fellow benefits.

Michael Larssen, the narrator, raised a question I have not and still do not want to consider. What if I am still alive, Jan was a great love but is not the love of my life?

“You can’t know that he was the love of your life, and do you know why? Because guess what, you aren’t dead yet. You may feel dead right now, and believe me I’ve been there, but the fact is, until you’re lying under a tombstone of your own you can’t be sure about anything. You could prick your finger on one of your roses tomorrow, and as you’re climbing the stairs to get a Band-Aid, you trip over one of the pugs and tumble to your death. Or you could meet a man in the checkout line at the grocery store–hell, you could meet a woman even and fall madly in love with her and end up with six kids and twenty grandkids. Michael looks over at Elena, then back at George. You just don’t know, George. That’s the thing. None of us does.”— Aftermirth (Kindle Single) by Hillary Jordan

Despite my anxiety about considering this disturbing question, I highly recommend Aftermirth by Hillary Jordan.

The Goodreads summary provides an overview.

I stopped being funny the day my wife was electrocuted by her underwire bra.” So begins “Aftermirth,” a dark comedy that explores the absurdity of death through the eyes of thirty-one-year-old comedian, writer, and actor Michael Larssen. What is funny to the rest of the world is devastating to Michael, who loves his wife deeply, exceptionally her bright, rippling, abandoned laughter, which captivated him from the first time he heard it. In the aftermath of her death, he loses his sense of humor and his career.

Then, after two years of mourning her, he sees an article in the paper about a factory worker named Julio Santiago who fell into a giant vat of dough and was kneaded to death. For reasons Michael doesn’t understand, he decides to go to the man’s wake. There he meets and bonds with Julio’s twenty-nine-year-old daughter Elena, a law student who is reeling from her father’s unexpected and preposterous death.

Three months later, she calls him out of the blue and suggests that the two of them drive to North Carolina to speak with another survivor like themselves Elena has found on the Internet. Their road trip is a darkly funny journey of healing that takes them deep into the heart of their grief and others and then beyond it to a place of peace and laughter.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. All donations are tax-deductible.

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Brooklyn Crime Novel: A Novel

Read: October 2023

Brooklyn Crime Novel: A Novel

by Jonathan Lethem

I recently recommended reading “Brooklyn Crime Novel: A Novel” by Jonathan Lethem. The story is set in 1970s Brooklyn, where a daily ritual occurs on the streets. This ritual involves exchanging money, surrendering belongings, and asserting power. Violence is promised everywhere and becomes a currency itself.

Regardless of race, the street is like a stage in the shadows for the children. In the background, other players hide, including parents, cops, renovators, landlords, those who write the headlines, histories, and laws, and those who award this neighborhood its name.

Although the rules seem apparent initially, in memory’s prism, the roles of criminals and victims may appear to trade places. The voices of the past rise and gather as if in harmony, then war with one another. A street may seem to crack open and reveal what lies behind its shimmering facade. None who lived through it are ever permitted to forget.

Jonathan Lethem has written this story with kaleidoscopic verve and delirious wit, making it a breathtaking tour de force by a writer at the top of his powers. He has crafted an epic interrogation of how we fashion stories to contain the uncontainable: our remorse at the world we’ve made. He is known as “one of America’s greatest storytellers” by the Washington Post.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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