Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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When I'm Gone, Look for Me in the East

Read: January 2023

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When I’m Gone, Look for Me in the East

by Quan Barry

When I’m Gone, Look for Me in the East by Quan Barry is a luminous novel that moves across a windswept Mongolia as a pair of estranged twin brothers make a journey of duty, conflict, and renewed understanding. Since Jan died, I have been sharing her love and not looking for her, so this novel attracted me as it was a counter-narrative. Are our lives our own, or do we belong to something more significant?

When I’m Gone, Look for Me in the East is a stunningly far-flung examination of our struggle to retain our convictions and discover meaning in a fast-changing world, as well as a meditation on accepting what is.

Although I know only a limited amount about Buddhism and even less about Mongolia, I found When I’m Gone, Look for Me in the East a fascinating page-turner of a novel.

Coincidently, while en route to see Memorial, we stopped to eat at a Mexican-Peruvian restaurant on Tenth Avenue in NYC. On the television was a continuous loop of a travelogue on Mongolia.

I found several quotes that I have used in other posts already.

  • “Sometimes faith is the only medicine available.”
  • “When the only hope is a boat and there is no boat, I will be the boat.”

I plan to use others in future posts.

Love never dies, and this quote echoed my belief.

“Love is neither created nor destroyed. It exists at all times and in all dimensions. Love is not something we create—it is something that wells up in us, like sap in a tree. It is an element in the fabric of the universe. Even on that distant day when sentient beings no longer exist, Love carries on. Perhaps our personal relationship to Love is impermanent, but Love itself is not.”

I highly recommend When I’m Gone, Look for Me in the East.

The Goodreads summary provides an overview,

Tasked with finding the reincarnation of a great lama somewhere in the vast Mongolian landscape, the young monk Chuluun seeks the help of his identical twin, Mun, who was recognized as a reincarnation himself as a child but has since renounced their once shared monastic life.

Harking back to her vivid and magical first novel set in Vietnam, Quan Barry carries us across a landscape as unforgiving as it is beautiful and culturally varied, from the stark Gobi Desert to the ancient capital of Chinggis Khan. As their country stretches before them, questions of the immortal soul, along with more earthly matters of love, sex, and brotherhood, haunt the twins, who can hear each other’s thoughts.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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The Sellout: A Novel

Read: August 2024

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The Sellout: A Novel

by Paul Beatty

Today, I embarked on the unique narrative journey of The Sellout: A Novel by Paul Beatty. This biting satire, which revolves around a young man’s isolated upbringing and the race trial that takes him to the Supreme Court, is a testament to Paul Beattys comic genius. The Sellout, a part of The New York Times’ 100 Best Books of the Century, is a must-read for those who appreciate a distinct narrative style.

The Sellout is a bold and thought-provoking work that challenges the sacred tenets of the United States Constitution, urban life, and the civil rights movement. It also explores the father-son relationship and the pursuit of racial equality, symbolized by the black Chinese restaurant. This social commentary is a vital aspect of The Sellout, making it a relevant and engaging read for those interested in contemporary issues.

Born in the “agrarian ghetto” of Dickens—on the southern outskirts of Los Angeles—the narrator of The Sellout resigns himself to the fate of lower-middle-class Californians: “I’d die in the same bedroom I’d grown up in, looking up at the cracks in the stucco ceiling that’s been there since ’68 quake.”

Raised by a single father, a controversial sociologist, he spent his childhood as the subject of racially charged psychological studies. Despite these challenges, he believes his father’s pioneering work will result in a memoir that will solve his family’s financial woes. But when his father is killed in a police shoot-out, he realizes there never was a memoir. All that’s left is the bill for a drive-thru funeral.

Fuelled by this deceit and the general disrepair of his hometown, the narrator sets out to right another wrong: Dickens has been removed from the map to save California from further embarrassment. Enlisting the help of the town’s most famous resident—the last surviving Little Rascal, Hominy Jenkins—he initiates the most outrageous action conceivable: reinstating slavery and segregating the local high school, which lands him in the Supreme Court. His determination to fight injustice is a powerful force that drives the narrative forward.

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Light to the Hills

Read: January 2023

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Light to the Hills: A Novel

by Bonnie Blaylock

Light to the Hills: A Novel by Bonnie Blaylock is about Amanda Rye, a young widowed mother and traveling packhorse librarian who comes through a mountain community struck by the nation’s economic collapse in the 1930s. I recommend this page-turner as it highlights the importance of family and community. From this foundation, truth lights a path toward survival, mountain justice, forgiveness, and hope.

The novel was recommended by Olivia Hawker, bestselling author of The Fire and the Ore, who said, “Light to the Hills is a touching meditation on motherhood and the importance of community, especially during difficult times.”

Last year I read a modern tale about Appalachia, Demon Copperhead. Both are good novels but very different.

Light to the Hills was a feel-good read despite the problems faced by Ms. Rye and the MacInteer family. It was precisely the book I needed to read this week.

The Goodreads summary provides an overview,

The folks in the Kentucky Appalachians are scraping by. Coal mining and hardscrabble know-how are a way of life for these isolated people. But when Amanda Rye, a young widowed mother and traveling packhorse librarian, comes through a mountain community walloped by the nation’s economic collapse, she brings with her hope, courage, and apple pie. Along the way, Amanda takes a shine to the MacInteer family, especially to the gentle Rai, her quick-study daughter, Sass, and Finn, the eldest son who’s easy to warm to. They remind Amanda of her childhood and her parents with whom she longs to be reconciled.

Her connection with the MacInteers deepens, and Amanda shares with them a dangerous secret from her past. When that secret catches up with Amanda in the present, she, Rai, Sass, and Finn find their lives intersecting—and threatened—in the most unexpected ways. Now, they must come together as the truth lights a path toward survival, mountain justice, forgiveness, and hope.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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The Rabbit Hutch

Read: October 2022

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The Rabbit Hutch

by Tess Gunty

My sixtieth book this year, The Rabbit Hutch, was a page-turner that I highly recommend. The Rabbit Hutch by Tess Gunty is a debut novel that won the 2022 National Book Award for fiction. It is a novel about four teenagers—recently aged out of the state foster-care system—living together in an apartment building in the post-industrial Midwest, exploring the quest for transcendence and the desire for love.

As Viktor Frankl wrote in Man’s Search for Meaning, “love is the ultimate and highest goal to which man can aspire. Then I grasped the meaning of the greatest secret that human poetry and human thought and belief have to impart: The salvation of man is through love and in love.”

Ms. Gunty’s book focuses on that ultimate and higher goal. If you can read only one book this year, I recommend The Rabbit Hutch!

“This week is the ceremony for the National Book Award, and one of the finalists is Tess Gunty, whose debut novel, The Rabbit Hutch, is a finalist in the fiction category,” said Kerry Nolan as she spoke with Ms. Gunty.

The Goodreads summary provides an overview,

The automobile industry has abandoned Vacca Vale, Indiana, leaving the residents behind, too. In a run-down apartment building on the edge of town, commonly known as the Rabbit Hutch, several people now reside quietly, looking for ways to live in a dying city. Apartment C2 is lonely and detached. C6 is aging and stuck. C8 harbors a great fear. But C4 is of particular interest.

Here live four teenagers who have recently aged out of the state foster-care system: three boys and one girl, Blandine, who The Rabbit Hutch centers around. Hauntingly beautiful and unnervingly bright, Blandine is plagued by the structures, people, and places that not only failed her but actively harmed her. Now all Blandine wants is an escape, a true bodily escape like the mystics describe in the books she reads.

Set across one week and culminating in a shocking act of violence, The Rabbit Hutch chronicles a town on the brink, desperate for rebirth. How far will its residents—especially Blandine—go to achieve it? Does one person’s gain always come at another’s expense? Tess Gunty’s The Rabbit Hutch is a gorgeous and provocative tale of loneliness and community, entrapment and freedom. It announces a major new voice in American fiction, one bristling with intelligence and vulnerability.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love.

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Bodily Harm

Read: June 2021

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Bodily Harm

by Margaret Atwood

Bodily Harm by Margaret Atwood is one of the books I picked up from our bookshelf in the first few months after Jan’s death. Being someone who has always fantasized about being a journalist, I found it very interesting.

A powerfully and brilliantly crafted novel, Bodily Harm is the story of Rennie Wilford, a young journalist whose life has begun to shatter around the edges.  Rennie flies to the Caribbean to recuperate, and on the tiny island of St. Antoine she is confronted by a world where her rules for survival no longer apply.  By turns comic, satiric, relentless, and terrifying, Margaret Atwood’s Bodily Harm is ultimately an exploration of the lust for power, both sexual and political, and the need for compassion that goes beyond what we ordinarily mean by love.

Bodily Harm may be the bleakest book that Ms. Atwood has written. One of her common themes is “the violence that human beings inflict on one another and their isolation in an uncaring world. It holds out some hope in the form of compassion to be shared by those who are victims of bodily harm in any form. The novel suggests that every person falls into this category. All are victims. There is no exemption, no escape for anyone.”

I recommend this book.

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The Kitchen House

Read: August 2021

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The Kitchen House

by Kathleen Grisson

The Kitchen House by Kathleen Grissom was a book that I knew very little about who I took from our bookshelf. My wife had encouraged me to read it as it focused on the south, and she knew I ofter read both about that place and enjoyed history.

From the opening pages, It became a book that I could not put down.

Two characters narrate the book. One is Lavinia, an Irish girl orphaned and brought to the plantation by the master, a ship’s captain. She is assigned to the kitchen house to work with Belle, who is the illegitimate child of the master of the estate.

As Lavinia grows under the tutelage of Belle, the story highlights the struggles of a plantation. Lavinia finds family and love from the enslaved even though she is only indentured. The distinction that skin color would have on their lives is one that Lavinia only learns at the end.

Through the unique eyes of Lavinia and Belle, Grissom’s debut novel unfolds in a heartbreaking and ultimately hopeful story of class, race, dignity, deep-buried secrets, and familial bonds.

The Kitchen House is Ms. Grissom’s first novel and impressed me and inspired me even though I have no skills as a writer.

I strongly recommend this book.

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