Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Parable of the Talents

Read: January 2024

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Parable of the Talents

by Octavia E. Butler

This morning, I completed reading Octavia E. Butler‘s acclaimed post-apocalyptic novel Parable of the Sower and immediately started reading its sequel, Parable of the Talents, initially published in 1998. This second book is even more relevant today than it was back then. The novel’s timely message of hope and resistance in the face of fanaticism is shockingly prescient.

In 2032, Lauren Olamina survived the destruction of her home and family. She envisioned a peaceful community in Northern California, which she established based on her newly founded faith, Earthseed. This new settlement provides a haven for outcasts who face persecution following the election of an ultra-conservative president. The new president pledges to “make America great again,” but the country becomes increasingly divided and dangerous. Lauren’s subversive colony, a minority religious faction led by a young black woman, becomes a target for President Jarret’s oppressive regime characterized by terror and discrimination.

In the future, Asha Vere discovers the journals of her mother, Lauren Olamina, whom she never met. As she delves into her mother’s writings, she grapples with the conflict between Lauren’s responsibilities to her chosen family and her mission to guide humanity toward a brighter tomorrow.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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Tom Lake

Read: August 2023

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Tom Lake: A Novel

by Ann Patchett

Today, I began reading Tom Lake by Ann Patchett. The novel beautifully explores family, love, and growing up. Patchett once again proves herself as one of America’s finest writers. Both hopeful and mournful, it explores happiness even when the world falls apart.

The story follows Lara’s three daughters, who return to the family’s orchard in Northern Michigan in the spring of 2020. While picking cherries, they ask their mother about Peter Duke, a famous actor with whom she had a romance years before at a theater company called Tom Lake.

As Lara reminisces, her daughters are confronted with their own lives and relationships with their mothers, leading them to reevaluate everything they thought they knew. With its hopeful and mournful tone, the novel is a testament to the transformative power of understanding what happiness truly means, even amid chaos. Patchett’s compelling narrative artistry and profound insights into family dynamics weave a rich and luminous story, showcasing why she is one of our time’s most revered and acclaimed literary talents.

I have also read Patchett’s Bel Canto, a compelling tale that explores themes of strength, vulnerability, love, and confinement. It ultimately tells an inspiring story of transcendent romance.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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Chain Gang All Stars

Read: December 2023

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Chain Gang All Stars

by Nana Kwame Adjei-Brenyah

Today, I started reading “Chain Gang All Stars” by Nana Kwame Adjei-Brenyah. The story revolves around Loretta Thurwar and Hamara “Hurricane Staxxx” Stacker, the main characters of the Chain-Gang All-Stars, a highly controversial and top-rated program in America’s private prison industry. The program is called Criminal Action Penal Entertainment (CAPE), where prisoners compete for the ultimate prize- their freedom. It’s similar to the return of the gladiators but in a modern-day setting.

The story is set in a prison called CAPE, where inmates are forced to participate in death matches as a part of a chain-gang. These matches are held in front of cheering crowds, while the prison authorities claim it to be a righteous act. Among the participants, Thurwar and Staxxx are the most popular as they are also lovers. Thurwar is just a few matches away from her freedom, which she carries with a heavy heart and lethal hammer. Thurwar contemplates how she can help her fellow inmates preserve their humanity despite being forced into these brutal games. However, the owners of CAPE are determined to safeguard their status quo, and they will go to extreme lengths to stop anyone who challenges them. Thurwar’s attempts to resist the system have devastating consequences.

Chain-Gang All-Stars” is a powerful book that sheds light on the American prison system’s problematic alliance with systemic racism, unchecked capitalism, and mass incarceration. It critically examines the situation from various perspectives, from the Links in the field to the protestors, the CAPE employees, and beyond. The book offers a clear-eyed reckoning of what freedom really means in America. It is a noteworthy contribution from a “new and necessary American voice,” as described by Tommy Orange in The New York Times Book Review.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Regarding gifts made this month, I will match dollar for dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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Weather

Read: March 2022

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Weather: A Novel

by Jenny Offil

Weather: A Novel by Jenny Offil was a book that I was confused and uncertain if I wanted to finish for the first few pages. I am delighted that I did, and I highly recommend this book. Its brief diary-like dispatches about life in our time when we sense that we may all be doomed to a climate catastrophe made this a book I truly enjoyed reading. The subtext of the rise of right-wing strongmen in the USA and abroad adds to the crisis her dispatches describe.

Her Obligatory Note of Hope challenges all of us to engage in solutions instead of accepting doom.

How can we contribute to the common good? There are people all over the world trying to answer these questions. In big ways but also in small ways. In grand leaps but also in fits and starts.

I always thought it was ridiculous to try and fight for social change when I couldn’t even get my own house in order. How could a meat-eating, plane-flying, march-hating person like me ever find a place in the climate justice movement? But then I started to read about all the different ways ordinary people were refusing to give into fatalism and were exploring the possibilities of what they could do, what they might fight for in this half-ruined world of ours.

There were saints among these accidental activists, but also stone-cold hypocrites like me. Slowly, I began to see collective action as the antidote to my dithering and despair.

There’s a way in for everyone. Aren’t you tired of all this fear and dread?

Goodreads provides an overview of the book if you are not yet convinced to read it.

 Lizzie Benson is a very relatable woman who slid into her job as a librarian without a traditional degree. But this gives her a vantage point from which to practice her other calling: a fake shrink. She has tended to her God-haunted mother and her recovering addict brother for years. They have both stabilized for the moment, but Lizzie has little chance to spend her new free time with her husband and son before her old mentor, Sylvia Liller, proposes. She wants to hire Lizzie to answer the mail she receives: left-wingers worried about climate change and right-wingers concerned about the decline of western civilization. Sylvia has become famous for her prescient podcast, Hell and High Water, and wants to hire Lizzie to answer the mail she receives: from left-wingers worried about climate change and right wingers worried about the decline of western civilization.

As Lizzie dives into this polarized world, she begins to wonder what it means to keep tending your own garden once you’ve seen the flames beyond its walls. When her brother becomes a father and Sylvia a recluse, Lizzie is forced to address the limits of her own experience. But she still tries to save everyone, using everything she’s learned about empathy and despair, conscience and collusion, floundering the library stacks her years of wa.. And all the while the voices of the city keep floating in—funny, disturbing, and increasingly mad.

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The Bully Pulpit

Read: October 2019

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The Bully Pulpit

by Doris Kearns Goodwin

The Bully Pulpit by Doris Kearns Goodwin is a history of the first decade of the Progressive era told by focusing on the intense friendship of Theodore Roosevelt and William Howard Taft.

Although I had read many books about Theodore Roosevelt, I had limited knowledge about Taft until I read this book. Reading about their friendship and its eventual collapse helped me to understand both of these presidents and the times in which they lived in a way I had not understood previously.

The Bully Pulpit is also the story of the muckraking press, which arouses the spirit of reform that helps Roosevelt push the government to shed its laissez-faire attitude toward robber barons, corrupt politicians, and corporate exploiters of our natural resources. The muckrakers are portrayed through the greatest group of journalists ever assembled at one magazine—Ida Tarbell, Ray Stannard Baker, Lincoln Steffens, and William Allen White—teamed under the mercurial genius of publisher S. S. McClure.

Goodwin’s narrative is founded upon a wealth of primary materials. The correspondence of more than four hundred letters between Roosevelt and Taft begins in their early thirties and ends only months before Roosevelt’s death. Edith Roosevelt and Nellie Taft kept diaries. The muckrakers wrote hundreds of letters to one another, kept journals, and wrote their memoirs. The letters of Captain Archie Butt, who served as a personal aide to both Roosevelt and Taft, provide an intimate view of both men.

I recommend this book without reservations.

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The Testaments: The Sequel to The Handmaid's Tale

Read: September 2021

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The Testaments

by Margaret Atwood

The Testaments: The Sequel to The Handmaid’s Tale by Margaret Atwood is a sequel worth reading.

The novel alternates between the perspectives of three women presented as portions of a manuscript written by one (the Ardua Hall Holograph) and testimonies by the other two. Being an amateur historian, I found this a fascinating way for Ms. Atwood to write this book.

Aunt Lydia is the author of the Ardua Hall Holograph, which is a surprise based on her role in The Handmaid’s Tale. It is a surprise that she is a mole who despises Gilead and works for the resistance.

The other characters are young women who, along with Aunt Lydia, are forced to come to terms with who she is and how far she will go for what she believes.

Agnes Jemima was born in Gilead and is being educated not to be literate but to be a wife. She finds out her parents are not who she thought they were when Agnes discovers she is the daughter of a Handmaid.

Daisy was raised in Toronto, lives with her adoptive parents, and is an educated woman. As noted in most reviews, Daisy is also the daughter of a Handmaid. She is Baby Nicole from the original book, and Gilead wants her to return.

Read the book! It is a moving and engaging sequel! The testimonies in the book combine these three women’s stories to undermine Gilead.

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