Caregiving

Crying With Jan

Estimated reading time: 0 minutes, 52 seconds

Jan with a Therapy DogReading Breathe reminded me of why I stopped crying when Jan faced a life-threatening illness, even though I have always been the one in our family that weeps.

During her illness, as well as now, I cry alone.

Sometimes I wish we could have a good cry together

Would it have helped us manage our fears? Or would it have frightened us?

Since Jan died twenty weeks ago, my tears have flowed like a flooded river.

At times it seems as if the downpour will never end.

But then the faucet shuts off, and I remember how much love.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Breathe

Breathe

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Despite the possibility that the book would trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey. Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness. These are topics that I write about on this blog.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Losing Earth: A Recent History

Read: October 2019

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Losing Earth: A Recent History

by Nathaniel Rich

Losing Earth: A Recent History by Nathaniel Rich reminds us how close we were to halting the climate emergency, and our failure has resulted in our passing the tilting point. The book “reveals, in previously unreported detail, the birth of climate denialism and the genesis of the fossil-fuel industry’s coordinated effort to thwart climate policy through misinformation propaganda and political influence.”

By 1979, we knew nearly everything we understand today about climate change – including how to stop it. Over the next decade, a handful of scientists, politicians, and strategists, led by two unlikely heroes, risked their careers in a desperate, escalating campaign to convince the world to act before it was too late. Losing Earth is their story and ours.

The New York Times Magazine devoted an entire issue to Nathaniel Rich’s groundbreaking chronicle of that decade, which became an instant journalistic phenomenon – the subject of news coverage, editorials, and conversations all over the world. In its emphasis on the lives of the people who grappled with the significant existential threat of our age, it made vivid the moral dimensions of our shared plight.

Losing Earth tells the human story of climate change in even richer, more intimate terms. It reveals, in previously unreported detail, the birth of climate denialism and the genesis of the fossil-fuel industry’s coordinated effort to thwart climate policy through misinformation propaganda and political influence. The audiobook carries the story into the present day, wrestling with the long shadow of our past failures and asking crucial questions about how we make sense of our past, our future, and ourselves.

Like John Hersey’s Hiroshima and Jonathan Schell’s The Fate of the Earth, Losing Earth is the rarest of achievements: a riveting work of dramatic history that articulates a moral framework for understanding how we got here and how we must go forward.

Losing Earth is a must-read book!

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Hurricane Season

Read: September 2024

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Hurricane Season

by Fernanda Melchor

Hurricane Season‘ by Fernanda Melchor, translated by Sophie Hughes, is a literary gem acknowledged by the New York Times as one of the 100 Best Books of the 21st Century. The story opens with the discovery of a dead witch in a village, leading to an investigation into her murder. As the novel unfolds, it offers a unique perspective on the lives of the villagers, each narrating the story from their point of view.

This unique portrayal of the characters, each with flaws and virtues, uncovers new details and acts of depravity. Despite the characters being seen as irredeemable, Melchor extracts some shred of humanity from them, creating a lasting portrait of a doomed Mexican village. This deep connection to Mexican culture is a significant aspect of the novel that will surely resonate with readers interested in this topic.

Hurricane Season” draws significant literary inspiration from Roberto Bolaño‘s “2666” and Faulkner‘s novels. Like these works, it is set in a world filled with mythology and actual violence that seeps into the surroundings, creating a connection that makes it more terrifying the deeper you explore it.

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Camp Zero

Read: April 2023

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Camp Zero: A Novel

by Michelle Min Sterling

I recently read an incredible novel called Camp Zero by Michelle Min Sterling. The book tells the story of several climate change survivors in a near-future northern settlement and explores the intersection of gender, class, and migration. The novel is a page-turner and a masterful exploration of who and what will survive in a warming world.

The story follows Rose, a young woman who agrees to spy on the architect of an American building project in exchange for housing. She arrives at the same time as Grant, a college professor who is trying to escape his wealthy family’s dark legacy. As they begin to investigate the mysterious architect, they uncover a disturbing mystery lurking beneath the surface of the camp.

One of the most fascinating aspects of the novel is the inclusion of an elite group of women soldiers living and working at a nearby Cold War-era climate research station. The rumors surrounding their presence add more intrigue to an already compelling story.

If you’re looking for a captivating novel that will keep you on the edge of your seat, I highly recommend Camp Zero. The book is a mesmerizing and transportive read, perfect for fans of Station Eleven and The Power.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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The Second Mountain: The Quest for a Moral Life

Read: May 2019

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The Second Mountain: The Quest for a Moral Life

by David Brooks

The Second Mountain: The Quest for a Moral Life by David Brooks is a book I often recommend. Mr. Brooks writes about the first mountain that most people climb. The book challenges the reader to “live for a cause greater than themselves.”

It is about “to be a success, make your mark, experience personal happiness.” Even when they reach the top of the mountain, most people find they are unhappy. The climb to the summit has become unsatisfying.

On the second mountain, life moves from self-centered to other-centered.” Life becomes interdependent, not independent; it becomes a life of commitment, not about us.

Mr. Brooks “explores the four commitments that define a life of meaning and purpose: to a spouse and family, to a vocation, to a philosophy or faith, and to a community.

We live in a society, Brooks argues, that celebrates freedom, that tells us to be true to ourselves, at the expense of surrendering to a cause, rooting ourselves in a neighborhood, binding ourselves to others by social solidarity and love. We have taken individualism to the extreme—and in the process we have torn the social fabric in a thousand different ways.

When I read The Second Mountain, it became clear that Jan and I never even attempted to climb the first mountain. We were constantly climbing the second mountain.

We had chosen to do work that repaired the world; we both had a faith community and lived in a community.

All we were missing as far as commitments when we met was each other. Our love for each other provided the missing link and allowed us to climb to the top of the second mountain.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

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Weather

Read: March 2022

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Weather: A Novel

by Jenny Offil

Weather: A Novel by Jenny Offil was a book that I was confused and uncertain if I wanted to finish for the first few pages. I am delighted that I did, and I highly recommend this book. Its brief diary-like dispatches about life in our time when we sense that we may all be doomed to a climate catastrophe made this a book I truly enjoyed reading. The subtext of the rise of right-wing strongmen in the USA and abroad adds to the crisis her dispatches describe.

Her Obligatory Note of Hope challenges all of us to engage in solutions instead of accepting doom.

How can we contribute to the common good? There are people all over the world trying to answer these questions. In big ways but also in small ways. In grand leaps but also in fits and starts.

I always thought it was ridiculous to try and fight for social change when I couldn’t even get my own house in order. How could a meat-eating, plane-flying, march-hating person like me ever find a place in the climate justice movement? But then I started to read about all the different ways ordinary people were refusing to give into fatalism and were exploring the possibilities of what they could do, what they might fight for in this half-ruined world of ours.

There were saints among these accidental activists, but also stone-cold hypocrites like me. Slowly, I began to see collective action as the antidote to my dithering and despair.

There’s a way in for everyone. Aren’t you tired of all this fear and dread?

Goodreads provides an overview of the book if you are not yet convinced to read it.

 Lizzie Benson is a very relatable woman who slid into her job as a librarian without a traditional degree. But this gives her a vantage point from which to practice her other calling: a fake shrink. She has tended to her God-haunted mother and her recovering addict brother for years. They have both stabilized for the moment, but Lizzie has little chance to spend her new free time with her husband and son before her old mentor, Sylvia Liller, proposes. She wants to hire Lizzie to answer the mail she receives: left-wingers worried about climate change and right-wingers concerned about the decline of western civilization. Sylvia has become famous for her prescient podcast, Hell and High Water, and wants to hire Lizzie to answer the mail she receives: from left-wingers worried about climate change and right wingers worried about the decline of western civilization.

As Lizzie dives into this polarized world, she begins to wonder what it means to keep tending your own garden once you’ve seen the flames beyond its walls. When her brother becomes a father and Sylvia a recluse, Lizzie is forced to address the limits of her own experience. But she still tries to save everyone, using everything she’s learned about empathy and despair, conscience and collusion, floundering the library stacks her years of wa.. And all the while the voices of the city keep floating in—funny, disturbing, and increasingly mad.

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On the Rooftop: A Novel

Read: November 2022

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On the Rooftop: A Novel

by Margaret Wilkerson Sexton

On the Rooftop: A Novel by Margaret Wilkerson Sexton, is a stunning novel about a mother whose dream of musical stardom for her three daughters collides with the daughters’ ambitions for their own lives—set against the backdrop of gentrifying 1950s San Francisco. The first few pages moved glacially and then the story unfolded fully and became a page-turner that I highly recommend.

After hearing Ms. Sexton’s interview on Get Lit with All Of It, a monthly on-air, social media, in-person, and live-stream book club hosted by Alison Stewart of WNYC’s All Of It, I picked up the book. The novel had been on my to-read list.

The novel was loosely based on Fiddler on the Roof and it worked exceedingly well. Vivian is the overbearing mother and the daughters who have their own dreams and goals. With urban renewal, AKA Urban Renewal, as the backdrop, the novel was one that I could not put down.

The small section of the song that Esther writes so she can sing for her people, was a song I wish I could hear in its entirety. That Chole choose to sing it for final audition made it even more powerful.

You put words to the music inside my heart You showed me the world could be its own art I’d never felt myself so whole before I’d never known how much I could reach for.

The Goodreads summary provides an overview,

At home they are just sisters, but on stage, they are The Salvations. Ruth, Esther, and Chloe have been singing and dancing in harmony since they could speak. Thanks to the rigorous direction of their mother, Vivian, they’ve become a bona fide girl group whose shows are the talk of the Jazz-era Fillmore.

Now Vivian has scored a once-in-a-lifetime offer from a talent manager, who promises to catapult The Salvations into the national spotlight. Vivian knows this is the big break she’s been praying for. But sometime between the hours of rehearsal on their rooftop and the weekly gigs at the Champagne Supper Club, the girls have become women, women with dreams that their mother cannot imagine.

The neighborhood is changing, too: all around the Fillmore, white men in suits are approaching Black property owners with offers. One sister finds herself called to fight back, one falls into the comfort of an old relationship, and another yearns to make her voice heard. And Vivian, who has always maintained control, will have to confront the parts of her life that threaten to splinter: the community, The Salvations, and even her family.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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