Take Down Cancer

I Completed LLS’s Big Climb NJ 2023!

Jan's Love Never Dies!

Estimated reading time: 1 minute, 54 seconds

This morning, I completed Big Climb NJ 2023, sponsored by The Leukemia & Lymphoma Society (LLS).

I climbed to the top of the twenty-six-story Gateway Center in Newark for Jan, the love of my life, and all those diagnosed with blood cancer.

My Apple Watch said I reached the summit of this year’s Big Climb in 8 minutes and 18 seconds. RaceWire, the official timekeeper, indicated I completed the stair climb in 7 minutes and 44 seconds and was 186th of 341 participants.

Each time my knees ached, I remembered how difficult it was for Jan to climb one step when we lived in the duplex apartment.

Any difficulty I felt is minor compared to Jan’s pain or the fear experienced by those diagnosed every nine minutes with blood cancer.

I was surprised by how emotional I felt when I took the train to Newark.

While registering and picking up my T-shirt, I wiped tears off my face.

Every ounce of my body and soul wanted Jan to climb with me as a survivor.

Being Earth Day made the climb more critical. If we are going to cure cancer, we need a healthy environment.

I climbed both for Jan to celebrate her seventy-third birthday and to step up to take down cancer by helping to find a cure for blood diseases.

I could not have climbed to the top without Jan’s love, support, and encouragement!

In addition, my family and overlapping community networks, faith, neighbors, fellow widows, friends, and more helped me during my grief journey. Without their support, I could not have climbed even one step.


It is still possible to donate to help cure cancer. Every dollar will help LLS find a cure for cancer.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I Will Climb for Jan on April 22nd!

On April 22nd, two days before Jan's birthday, I am joining The Leukemia & Lymphoma Society (LLS) in the fight to cure blood cancers by participating in Big Climb NJ!

I have accepted the challenge of climbing 26 flights of stairs to the top of One Gateway Center and raising critical funds for blood cancer research and patient support.

I'm stepping up to take cancer down, and you can help me ensure that one day no one will have to die from leukemia and lymphoma!

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Jan's Love Never Dies!

Estimated reading time: 1 minute, 54 seconds

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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At the Villa Rose

Read: August 2022

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At the Villa Rose

by Major Alfred Edward Woodley Mason

At the Villa Rose by Major Alfred Edward Woodley Mason, initially published in 1910, is a mystery novel in which Major Mason introduced his French detective, Inspector Hanaud, who was an early template for Agatha Christie’s famous Hercule Poirot. Missing jewels, high adventure some one hundred and fifty kilometers from Geneva, a casino, and blind love are all factors in a complex case for Hanaud, which ultimately involves a gang of frightened murderers. If you enjoy deductive mysteries like me, I highly recommend At the Villa Rose.

The Goodreads summary,

In Aix les Bains during the early 20th century, Celia Harland, a beautiful (of course) young English girl down on her luck, is befriended by a wealthy widow, Madame Dauvray, an addict of “spiritualism,” and stages seances for her benefactrix, while knowing full well that the supposed manifestations from the spirit world are entirely bogus. This set-up supplies the opportunity for a criminal gang master-minded by Madame Dauvray’s maid, with their eyes on the widow’s jewelry collection, to engineer an introduction for one of their numbers, Adele Tacé (“Rossignol”), whose taunts of disbelief goad the old lady into allowing a seance to be held which, unsuspected by either Celia or her patron, will be the cover for murder and robbery.

The crux of the plot is that as a medium, Celia will be made their innocent victim, on whom suspicion is to be planted.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. All donations are tax-deductible.

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The Friend: A Novel

Read: September 2022

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The Friend: A Novel

by Sigrid Nunez

The Friend: A Novel by Sigrid Nunez is a moving story of love, friendship, grief, healing, and the magical bond between a woman and her dog. When a woman unexpectedly loses her lifelong best friend and mentor, she finds herself burdened with the unwanted dog he has left behind. I understand the positives and negatives of having a dog help with grief, but I cannot have one where I live.

One line that resonated with me was,

You can’t hurry, love, as the song goes. You can’t hurry, grief, either.

Far too often, widows are in a hurry, not unlike young lovers. We need to learn patience and remind ourselves that the more we love, the more we will grieve.

I often said that Jan would replace me with a dog if she survived me.

I recommend this book.

The Goodreads summary provides a concise overview,

The woman’s own battle against grief is intensified by the mute suffering of the dog, a huge Great Dane traumatized by the inexplicable disappearance of its master, and by the threat of eviction: dogs are prohibited in her apartment building.

While others worry that grief has made her a victim of magical thinking, the woman refuses to be separated from the dog except for brief periods of time. Isolated from the rest of the world, increasingly obsessed with the dog’s care, determined to read its mind and fathom its heart, she comes dangerously close to unraveling. But while troubles abound, rich and surprising rewards lie in store for both of them.

Elegiac and searching, The Friend is both a meditation on loss and a celebration of human-canine devotion.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

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A Mercy

Read: November 2024

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A Mercy a Novel

by Toni Morrison

Today, I started reading “A Mercy” by Toni Morrison. The acclaimed Nobel Prize winner explores the complexities of slavery in this novel. Like “Beloved,” it tells the poignant story of a mother and her daughter—a mother who abandons her child to protect her and a daughter who struggles with that abandonment. “A Mercy” is also recognized as one of The New York Times’s 100 Best Books of the 21st Century.

In the 1680s, a tumultuous period in the Americas, the slave trade is still in its infancy. Jacob Vaark, an Anglo-Dutch trader and adventurer, navigates this harsh landscape with a small holding in the North. Despite his distaste for dealing in “flesh,” he takes a small slave girl in part payment for a bad debt from a plantation owner in Catholic Maryland. She is Florens, a girl who can read and write and might be helpful on his farm. Rejected by her mother, Florens embarks on a journey for love, first seeking it from Lina, an older servant woman at her new master’s house, and later from the handsome blacksmith, an African, never enslaved, who comes riding into their lives.

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Black Sun

Read: November 2021

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Black Sun – Between the Earth and Sky

by Rebecca Roanhorse

Black Sun by Rebecca Roanhorse.  Black Sun is the first book in the Between Earth and Sky trilogy, inspired by the civilizations of the Pre-Columbian Americas and woven into a tale of celestial prophecies, political intrigue, and forbidden magic.

I have always enjoyed fantasy novels like Black Sun, and this is the first one set in the Pre-Columbian Americas.

A god will return
When the earth and sky converge
Under the black sun

In the holy city of Tova, the winter solstice is usually a time for celebration and renewal, but this year, it coincides with a solar eclipse, a rare celestial event proscribed by the Sun Priest as an unbalancing of the world.

Meanwhile, a ship launches from a distant city bound for Tova and set to arrive on the solstice. The captain of the ship, Xiala, is a disgraced Teek whose song can calm the waters around her as quickly as it can warp a man’s mind. Her ship carries one passenger. Described as harmless, the passenger, Serapio, is a young man, blind, scarred, and cloaked in destiny. As Xiala well knows, when a man is described as harmless, he usually ends up being a villain.

Will Serapio be harmless or a villain? The answer, my friend, will be known when you read this book or perhaps the second one in the trilogy.

Before meeting and falling forever in love with Jan, I had dreamed of the life of an American Studies professor. Thousands of students are relieved to know I did not pursue that life. If I had opened that door, an area of focus would have been on Pre-Columbian Americas.

I recommend this book and will read the next two in the Between Earth and Sky trilogy.

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Can You Feel This?

Read: January 2023

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Can You Feel This?

by Julie Orringer

Today I read Can You Feel This? by Julie Orringer. This short story rekindled so many memories. In the chaos of a maternity ward, memories of tragedy and grief come flooding back for an anxious mother-to-be as she struggles to balance her child’s needs with her healing. Although Jan and I did not have the shadows of tragedy and grief when our sons were born, this short story was more than a page-turner. Can You Feel This? reminded me of the power of the love Jan and I shared.

When our second son was born, we almost had him at home or in the as we waited too long. In Can, You Feel This? , that was not the case. Both children had two loving parents but also grandparents.

When Jan had the first of several hospitalizations, she was in the hospital where her mother died. Jan told me her feelings, and I comforted her, but I could not fully comprehend her angst.

Can You Feel This? is part of Inheritance, a collection of five stories about secrets, unspoken desires, and dangerous revelations between loved ones. Each Inheritance piece can be read or listened to in a single setting. By yourself, behind closed doors, or shared with someone you trust. This is the second one in the series I have read. The previous one was Everything That my Mother Taught Me.

The Goodreads summary provides an overview,

Rushed into an emergency cesarean section, a woman finds herself in the same hospital where her suicidal mother died. She’s buried the trauma of her mother’s last hours—and also the dread that she might be just as vulnerable to breaking. As the new mother relives one crisis in the midst of another, prize-winning author Julie Orringer turns the joyous event of birth into a harrowing, poignant short story.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.



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