Jon, Jan, and Mike

Jan Loved Being a Mom and Grandma

Estimated reading time: 0 minutes, 45 seconds

Jan with Lilah-RaeTo be a good grandparent, one needs first to learn how to be a good parent.

Jan learned those skills like she did everything else in life with gusto.

Jan was always willing to do anything and everything to help Jon and Mike.

When she came home from the hospital for hospice care, both boys were there to help shower her with their love in her final days.

It was an emotional time for our family, but Jon and Mike made the unbearable easier to manage with their devotion and love.

The short video from 2013 is of Jan and her first grandchild.


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Jon, Jan, and Mike
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Lincoln in the Bardo: A Novel

Read: August 2024

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Lincoln in the Bardo: A Novel

by George Saunders

My journey with “Lincoln in the Bardo: A Novel” by George Saunders began with recognition as one of The New York Times’ 100 Best Books of the Century. As I turned its pages, I was immersed in its profound exploration of living and loving in the face of inevitable endings. The book, which struck a personal chord with me after a loss, is a testament to Saunders’ storytelling prowess and a must-read for those interested in Abraham Lincoln.

February 1862. The Civil War is less than one year old. The fighting has begun in earnest, and the nation has already realized it is in for a long, bloody struggle. Meanwhile, President Lincoln’s beloved eleven-year-old son, Willie, lies upstairs in the White House, gravely ill. In a matter of days, despite predictions of a recovery, Willie dies and is laid to rest in a Georgetown cemetery. “My poor boy, he was too good for this earth,” the president says at the time. “God has called him home.” Newspapers report that a grief-stricken Lincoln returns, alone, to the crypt several times to hold his boy’s body.

From a seed of historical truth, George Saunders weaves an unforgettable tale of familial love and loss that transcends its realistic, historical framework. The story takes a daring leap into a realm that is hilarious and terrifyingly supernatural. Willie Lincoln’s journey in a strange purgatory, where ghosts mingle, gripe, commiserate, quarrel, and enact bizarre acts of penance, is a testament to Saunders’ imaginative prowess. The monumental struggle over young Willie’s soul in this transitional state, known as the bardo in the Tibetan tradition, is a narrative that will leave you spellbound.

Lincoln in the Bardo is an astonishing feat of imagination and a bold step forward from one of his generation’s most important and influential writers. Formally daring, generous in spirit, and deeply concerned with matters of the heart, it is a testament to fiction’s ability to speak honestly and powerfully about the things that matter to us. Saunders has invented a thrilling new form that deploys a kaleidoscopic, theatrical panorama of voices to ask a timeless, profound question: How do we live and love when we know everything we love must end?

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Invisible Child

Read: December 2021

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Invisible Child: Poverty, Survival & Hope in an American City

by Andrea Elliott

Invisible Child: Poverty, Survival & Hope in an American City by Andrea Elliott was a gift from my son Jon. The New York Times selected “Invisible Child” as one of the best books published this year. It is indeed one of the top books on my all-time list.

GoodReads summary provides a good overview,

The riveting, unforgettable story of a girl whose indomitable spirit is tested by homelessness, poverty, and racism in an unequal America—from Pulitzer Prize-winning journalist Andrea Elliott of The New York Times

Invisible Child follows eight dramatic years in the life of Dasani Coates, a child with imagination as soaring as the skyscrapers near her Brooklyn homeless shelter. Born at the turn of a new century, Dasani is named for the bottled water that comes to symbolize Brooklyn’s gentrification and the shared aspirations of a divided city. As Dasani grows up, moving with her tight-knit family from shelter to shelter, this story goes back to trace the passage of Dasani’s ancestors from slavery to the Great Migration north. When Dasani comes of age, New York City’s homeless crisis explodes as the chasm deepens between rich and poor.

In the shadows of this new Gilded Age, Dasani must lead her seven siblings through a thicket of problems: hunger, parental drug addiction, violence, housing instability, segregated schools, and the constant monitoring of the child-protection system. When, at age thirteen, Dasani enrolls at a boarding school in Pennsylvania, her loyalties are tested like never before. As she learns to “code switch” between the culture she left behind and the norms of her new town, Dasani starts to feel like a stranger in both places. Ultimately, she faces an impossible question: What if leaving poverty means abandoning the family you love?

By turns heartbreaking and revelatory, provocative and inspiring, Invisible Child tells an astonishing story about the power of resilience, the importance of family, and the cost of inequality. Based on nearly a decade of reporting, this book vividly illuminates some of the most critical issues in contemporary America through the life of one remarkable girl.

Jan and I were involved and knew that child poverty and homelessness needed repair. In addition, Jan lived on Washington Park across from Ft. Greene Park in 1974-75. We knew the neighborhood where much of the book’s story takes place. 

Before meeting Jan in 1973, I was both a community/tenant organizer and a youth worker. In the latter role, I made weekly hostel trips for eight to ten young boys from East Williamsburg during 1973. The trips were the first the boys had ever been outside of their neighborhood.

Many of them had imaginations like Dasani. They also had her instinct to fight. One of my first tasks was to check for any weapons.

Decades later, when I would see any of them, now adults, they would ask when we were going on another trip. I wish I had met Jan when I made those trips. She would have helped me improve them and document the impact. If I could re-write history, I would have her join me as the second adult on the hostel trips.

After that summer, it was clear my primary skills were as a community/tenant organizer. Over the next few years, my work focused on creating affordable and supportive housing.

Jan and I did meaningful work that made a difference, yet the need for a permanent solution to the crisis remains. The book highlights the crucial role of resilience, the importance of family, and the cost of inequality. As a nation, we cannot undermine those values by breaking up families, impeding resilience, and maintaining racial and economic inequality. 

The current debate in Washington over the Build Back Better legislation needs to focus not on how much we spend but on its impact on children and families

David Brooks, a conservative commentator, has supported these expenditures for what they can do to address this country’s cultural and economic crisis. 

These packages say to the struggling parents and the warehouse workers: I see you. Your work has dignity. You are paving your way. You are at the center of our national vision.

This is how you fortify a compelling moral identity, which is what all of us need if we’re going to be able to look in the mirror with self-respect. This is the cultural transformation that good policy can sometimes achieve. Statecraft is soulcraft.

If you can only read one book this year, this is the one to read. Child poverty, homelessness, and inequality impact all of us. Ending child poverty and homelessness will make us a healthier and more inclusive nation. It is time for a compelling moral call to action!

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Within Arm's Reach: A Novel

Read: May 2024

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Within Arm’s Reach: A Novel

by Ann Napolitano

I embarked on the journey of reading “Within Arm’s Reach: A Novel” by Ann Napolitano today. This poignant and insightful debut novel from the esteemed New York Times bestselling author of “Hello Beautiful” unfolds the story of a large Catholic family spanning three generations whose lives are upended by an unforeseen pregnancy.

Within Arm’s Reach” is a compelling novel crafted by Ann Napolitano, a bestselling author. The book powerfully captures our profound connections with loved ones, a theme that resonates universally, even when we struggle to express our emotions. The narrative, set in the context of an Irish American family spanning three generations, is a testament to the author’s skill in addressing deeply human themes. It’s another profoundly satisfying narrative from the author who previously explored grief in “Dear Edward” and the unbreakable bonds of sisterhood in “Hello Beautiful.”

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Kala: A Novel

Read: June 2024

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Kala: A Novel

by Colin Walsh

Today, I started reading “Kala: A Novel” by Colin Walsh, a gripping literary page-turner from a rising Irish talent. Former friends, estranged for twenty years, reckon with the terrifying events of the summer that changed their lives. Three old friends are reunited in the seaside town of Kinlough, on Ireland’s west coast, for the first time in years.

Helen, Joe, and Mush were part of an original group of six inseparable teenagers in the summer of 2003, with motherless, reckless Kala Lanann as their group’s white-hot center. Soon after that summer’s peak, Kala disappeared without a trace.

Now it’s fifteen years later:

  • Helen has reluctantly returned to Ireland for her father’s wedding.
  • Joe is a world-famous musician who is newly back in town.
  • Mush has never left, too scared to venture beyond the counter of his mother’s café.

But human remains are discovered in the woods. Two more girls have gone missing. As past and present begin to collide, the estranged friends are forced to confront their involvement in the events that led to Kala’s disappearance.

Against the backdrop of a town suffocating on its secrets, in a story that builds from a smolder to a stunning climax, Kala brilliantly examines the sometimes brutal costs of belonging and the battle in the human heart between vengeance and forgiveness, despair and redemption.

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The Heat Will Kill You First

Read: July 2023

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The Heat Will Kill You First

by Jeff Goodell

I recently started reading “The Heat Will Kill You First” by Jeff Goodell, which delves into the extreme ways our planet is already changing. The book explores how spring is arriving earlier and fall is arriving later and how this will impact our food supply and disease outbreaks. As I have stated in my Action Alert: EPA’s Carbon Rule, the time to act is now.

The book also predicts the consequences of summer days in cities like Chicago and Boston, reaching temperatures as high as 110°F. Goodell explains that heat waves are used only to affect the most vulnerable people, but as they become more intense and familiar, they will affect everyone.

It is becoming increasingly clear that the world is facing a new reality. In California, wildfires are now seasonal, while the Northeast is experiencing less and less snow each winter. Meanwhile, the Arctic and Antarctic ice sheets are melting alarmingly. Heat is the primary threat that is driving all other impacts of the climate crisis. As temperatures rise, it exposes weaknesses in our governments, politics, economy, and values.

The basic science is straightforward: If we stop burning fossil fuels tomorrow, the global temperature will also stop rising. However, if we wait for 50 years to stop burning them, the temperature will continue to rise, making parts of our planet uninhabitable. The responsibility to act is in our hands. The hotter it gets, the more our underlying issues will surface and expand.

Jeff Goodell has been an award-winning journalist in the field of environmental reporting for several decades. His latest book explains how extreme heat will cause significant changes in the world. The book is an excellent blend of scientific insights and on-the-ground storytelling, and Goodell explores some of the most significant questions surrounding the topic. He reveals that extreme heat is a force we have yet to comprehend fully.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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