Richard W. shared a stream on November 26, 2022
Lime for Lymphoma

Lime for Lymphoma

Estimated reading time: 1 minute, 33 seconds

Visiting Jan During COVIDYesterday I discovered that lime is the color for lymphoma on the cancer rainbow from a sign on the door of Keating Physical Therapy.

I have walked to cure for lymphoma but never had heard of lime as the color.

Next September, I will encourage Hanson Park to change the lighting of Jan’s wind sculpture to lime.

In the final months of her life, Jan was on the list for a stem cell transplant.

The medical advice recommended an alternative process to use her stem cells.

Delia Ephron‘s guest essay in the NY Times wrote about her successful transplant that saved her life.

So, during the holidays, if you are under 40, register to be a blood stem cell donor. If you are having a baby, donate your umbilical cord to a cord blood bank. Talk to your OB — umbilical cords, rich with lifesaving stem cells, are otherwise, as one of my doctors put it, thrown in the trash. Give these gifts to a stranger. That’s the holiday spirit. If you have children or grandchildren in their 20s or 30s, when they ask you what you want for a present, tell them that you want them to register. Tell them that, for the holidays, you want them to save a life.

Let us all choose to save a life so one day, lime will only be a color in a rainbow, not the pigmentation for lymphoma.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Walking to Light the Night to Cure Lymphoma

Lighting the Night to Cure Lymphoma

Last night, the Light the Night event was held in Verona Park, Verona, NJ, and I, walked in memory of Jan to help find a cure for lymphoma and leukemia.

As the hundreds of walkers collectively did the countdown to commence the walk, I wept as I wanted Jan with me as a survivor so I could walk with her as her caregiver.

Although I walked alone, Jan was with me.

Together we walked to cure blood cancers so no one would die from lymphoma one day.

Richard W. Brown October 16, 2022

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The Annual Banquet of the Gravediggers' Guild

Read: January 2024

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The Annual Banquet of the Gravediggers’ Guild

by Mathias Énard

Today, I started reading “The Annual Banquet of the Gravediggers’ Guild” by Mathias Énard. The book has been translated into English by Frank Wynne. This novel is full of Mathias Énard‘s characteristic humor and extensive knowledge. It is a lively book where the boundaries between past and present are constantly blurred, set against a backdrop of excess reminiscent of Rabelais’ writing.

David Mazon, an anthropology student, moves from Paris to La Pierre-Saint-Christophe, a village in the marshlands of western France, to research his thesis on contemporary agrarian life. He is determined to understand the essence of the local culture and spends his time scurrying around on his moped to interview the residents.

David must be made aware of the extraordinary events in an ordinary location. This place, where wars and revolutions once occurred, is now a dancefloor for Death. When something dies, its soul is recycled by the Wheel of Life and thrown back into the world as a microbe, human, or wild animal – sometimes in the past and sometimes in the future. Once a year, Death and the living agree to a temporary truce, during which gravediggers indulge in a three-day feast filled with food, drink, and conversation.

Mathias Énard’s novel, The Annual Banquet of the Gravediggers’ Guild, is a riotous and exciting comic masterpiece that won the prestigious Prix Goncourt award. The novel is set in the French countryside and is filled with Énard’s characteristic wit and encyclopedic brilliance. Against a backdrop of excess, the story blurs the lines between past and present, creating a Rabelaisian world of chaos and humor.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Mercy Street: A Novel

Read: February 2023

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Mercy Street: A Novel

by Jennifer Haigh

Mercy Street: A Novel by Jennifer Haigh is a tense, riveting story about the disparate lives intersecting at a Boston women’s clinic. The novel was named Best Book of the Year by the Washington Post, the New Yorker, and the Boston Globe. Mercy Street is a novel for right now, a story of the polarized American present. Ms. Haigh is a gifted storyteller who has written a very readable book that I highly recommend. 

I truly enjoyed Mercy Street. I had read her short story Zenith Man, and I enjoyed her storytelling skill and wanted to read her most recent novel. Until the last few pages, I was unsure how Ms. Haigh‘s intricate storylines could conclude the story. Usually, I can predict how a story will unfold well before I finish reading it. Mercy Street was a rare exception to that rule.

I have never had to run the gauntlet in front of a women’s clinic, but Ms. Haigh has made that experience so real that I could taste it. The day-to-day work of the staff and the clients was detailed and believable. The male characters, Timmy, the affable pot dealer; Anthony, a lost soul; and Excelsior11-the screenname of Victor Prine, were drafted n a credible way.

As stated earlier, I highly recommend this book.

The Goodreads summary provides an overview,

Claudia has counseled patients for almost a decade at Mercy Street, a clinic in the city’s heart. The work is consuming the unending dramas of women in crisis. For its patients, Mercy Street offers more than health care; for many, it is a second chance.

But outside the clinic, the reality is different. Anonymous threats are frequent. A small, determined group of anti-abortion demonstrators appears each morning at its door. As the protests intensify, fear creeps into Claudia’s days, a humming anxiety she manages with frequent visits to Timmy, an affable pot dealer amid his existential crisis. At Timmy’s, she encounters a random assortment of customers, including Anthony, a lost soul who spends most of his life online, chatting with the mysterious Excelsior11–the screenname of Victor Prine. This anti-abortion crusader has set his sights on Mercy Street and is ready to risk it all for his beliefs.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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I receive a commission when you buy a book or product using a link on this page. Thank you for supporting Sharing Jan’s Love blog.

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The Time Traveler's Wife

Read: May 2021

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The Time Traveler’s Wife

by Audrey Niffenegger

My wife had asked me to read – The Time Traveler’s Wife by Audrey Niffenegger – on several occasions. When we first met, we both liked to read fiction and non-fiction. As we aged, I focused almost exclusively on non-fiction, and she focused on fiction. Since her passing, I have started reading more of both genres. We could now have a book club!

Both Jan and I have always enjoyed books and movies about time travel. If I could travel back in time, there are tens of thousands of days I would love to spend with her again. But time travel is not possible. Or is it? Her spirit returns to me whenever I am paralyzed and encourages me to dust myself off and keep going. Maybe one day we will time travel together!

I enjoyed reading this book, even if it was difficult to keep track of the periods. It is very much the type of time-traveling book that both of us would have liked to read, and it has helped me to imagine a world in which Jan and I will meet again.

But what if it is not time travel as imagined by H. G. Wells. As the Hasidic story foretold, God split our souls at birth and placed one part of my soul in her body and placed the rest into my body. Very few people are lucky enough to find the person who has the other half of their soul, and Jan and I did.

When my life ends, what if God takes a portion of our two souls and places them into new bodies. Each of their souls would include a part of each of us. Those two new people would have to find each other in the future to connect as we did. They might not see each other and forever hunger for true love. Whatever happened, they would not know that they once were very much in love.

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The Mango Tree: A Memoir of Fruit, Florida, and Felony

Read: April 2024

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The Mango Tree

by Annabelle Tometich

Today, I started reading Annabelle Tometich‘s The Mango Tree: A Memoir of Fruit, Florida, and Felony. The Mango Tree is not just a memoir but a profoundly emotional family saga. It takes us through the complexities of Annabelle’s life, from her childhood in a house filled with balikbayan boxes, vegetation, and luscious mangoes to her journey from aspiring medical student to restaurant critic.

It is a tribute to her fellow Filipino Americans, her younger self, and the mango tree symbolizing her family. Above all, it is a heartfelt homage to Annabelle’s mother, Josefina, who carved out a life and a home without whom Annabelle would not be who she is.

When journalist Annabelle Tometich picked up the phone one June morning, she wasn’t expecting a collect call from an inmate at the Lee County Jail. And when she accepts, she certainly isn’t prepared to hear her mother’s voice on the other end of the line. However, explaining the situation to her younger siblings afterward was easy; all she had to say was, “Mom shot at some guy. He was messing with her mangoes.” They immediately understood. Answering the questions of the breaking news reporter—at the same newspaper where Annabelle worked as a restaurant critic––proved more difficult. Annabelle decided to go with a variation of the truth: it was complicated.

Thus commences The Mango Tree, a memoir that deftly weaves a tapestry of a mixed-race Filipina’s life in suburban Florida. Annabelle’s journey is not linear but a series of interconnected stories that delve into her upbringing, her father’s tragic demise, her mother’s longing for her homeland, and her quest for identity.

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Keepers of the House

Read: May 2021

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The Keepers of the House

by Shirley Ann Grau

The Keepers of the House by Shirley Ann Grau is a book that I read a portion of for a college class, but for reasons that I cannot now remember never got around to reading it from cover to cover. In the early stages of grief, I found a copy in our bookshelf and said, let me read it now. It was a decision that I did not regret.

Having grown up in the American South, the book resonated with me, as did the sections I read fifty years ago. It’s a many-layered indictment of racism and rage that is as terrifying as it is wise.

As someone who likes history and values the importance of place, the book’s focus on the continued ownership of the same land since the early 1800s by the Howland’s provided a broad historical perspective. Abigail Howland has learned many important family legacies, but not all.

However, when William’s, her grandfather, relationship with Margaret Carmichael, a black housekeeper, is revealed to the community, the racism and fury boil over. Abigail chooses to get even with the town her family built by punishing them.

The Keepers of the House is a book that I wish I had read in its entirety half a century ago. Having read it now, I recommend it to all who care about life and community.

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The Little Prince

Read: May 2021

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The Little Prince

by Antoine de Saint-Exupéry

The Little Prince by Antoine de Saint-Exupéry is often referred to as a children’s book. I read it as a child and later read it to my children. After Jan died, I picked it up again and read it more than once.

I have found quotes from the book very helpful during my grief journey. These are three that I often use in my writing and my conversations with friends and family.

The most beautiful things in the world cannot be seen or touched, they are felt with the heart.”

It is such a mysterious place, the land of tears.

You see, one loves the sunset when one is so sad.”

The first quote about beautiful things only felt in the heart summarizes how I knew Jan was the one for me within seconds of meeting her.

For those who have not read the book, this overview might help convince you to read it today!

The Little Prince describes his journey from planet to planet, each tiny world populated by a single adult. It’s a wonderfully inventive sequence that evokes the great fairy tales and monuments of postmodern whimsy. The author pokes similar fun at a business person, a geographer, and a lamplighter, all of whom signify some futile aspect of adult existence.

The Little Prince will be by my bedside as long as I live!

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