Cancer

The Silk Scarf, Like Life,
Is Priceless

“I love this scarf,” Jan exclaimed with a smile more beautiful than every rainbow I had ever seen. “But it is so expensive.” I tried to explain that it was not that expensive once you converted Canadian to American dollars. “But I have nothing for you for our anniversary,” she protested. 

“All I need is your love,” I explained without success. “I do not need a gift.” 

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Jan Chooses Life Over Death

“We have a diagnosis,” said Dr. Saksena. “You have non-Hodgkin’s Large B Cell Lymphoma, and it is very aggressive but also very treatable.” My heart skipped a beat when I heard the message.

My arm was around Jan’s shoulder. I pulled her toward me and held her hands. I did not cry, but my voice was almost overwhelmed with tears as I told her I loved her and we would be OK. 

Dr. Saksena wanted to start chemotherapy on Thursday. Jan said she could not as she had to speak at a YWCA event. We agreed on the following Tuesday. Dr. Saksena gave her a prescription for steroids starting now instead of a few days before treatment. 

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Beautiful the 
Carole King Musical

As we raced into the darkness below the Hudson, I held her hand and kissed her lightly on her lips. We had planned this weekend trip before knowing Jan had blood cancer, and that news was still the elephant in the room.

Two years ago today, we made this weekend excursion to New York. When we planned the trip, all we were concerned about was recovery from the first cataract surgery, and now we knew that the love of my life also had blood cancer.

My fears were minor compared to those she was bottling up inside her. We knew our journey of love was entering a new epoch, but neither of us knew what the future held for us. All we knew for sure was that our love would grow stronger despite our challenges.

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Blurry No More!

The Parkway was busy, but the traffic was moving. Jan was very quiet and barely responded to my requests to begin a conversation. My thumb lowered the volume on the radio almost to the point that we could scarcely hear NPR. We exited and stopped at the traffic light.  My head turned slightly toward her, and I said, “I love you! I know you are worried, but I am here now and forever for you!”

Jan responded with a weak and shaky voice. “I know, I know….”

We parked, and I came around the car and opened the door for her. I hugged her, and we walked toward the entrance. 

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The Jan Lilien Education Fund!

When No One is Watching

Read: February 2022

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When No One is Watching

by Alyssa Cole

When No One Is Watching by Alyssa Cole is a novel where the gentrification of a Brooklyn neighborhood takes on a sinister new meaning.

Sydney Green is Brooklyn-born and raised, but her beloved neighborhood seems to change every time she blinks. Condos are sprouting like weeds, FOR SALE signs are popping up overnight, and the neighbors she’s known all her life are disappearing. To hold onto her community’s past and present, Sydney channels her frustration into a walking tour and finds an unlikely and unwanted assistant in one of the new arrivals to the block—her neighbor Theo.

But Sydney and Theo’s deep dive into history quickly becomes a dizzying descent into paranoia and fear. After all, their neighbors may not have moved to the suburbs, and the push to revitalize the community may be more deadly than advertised.

When does coincidence become a conspiracy? Where do people go when gentrification pushes them out? Can Sydney and Theo trust each other—or themselves—long enough to find out before they too disappear?

Having lived in Brooklyn and seen the impacts of gentrification, redlining, and other practices, I found this book one that I truly enjoyed. The book will provide a detailed history lesson if you are like Theo and have no thought of these issues.

I enjoyed the visit to Weeksville, as I have been there on several professional occasions. The history of that community needs to be told.

I recommend this book.

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The Hero of This Book: A Novel

Read: November 2022

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The Hero of This Book: A Novel

by Elizabeth McCracken

The Hero of This Book: A Novel by Elizabeth McCracken is a searing examination of grief and renewal and a deeply felt relationship between a child and her parents. It is not a memoir but a remembrance of those we have lost. Ten months after her mother’s death, the narrator of The Hero of This Book takes a trip to London. The city was a favorite of her mother’s, and as the narrator wanders the streets, she reflects on her mother’s life and their relationship.

Thoughts of the past meld with questions of the future: Back in New England, the family home is now up for sale, its considerable contents already winnowed.

The following quote resonated with me.

I’ve always hated the notion, in life or in fiction, that the human personality is a puzzle to be solved, that we are a single flashback away from understanding why this person is cruel to her children, why that man has a dreamy, downcast look. A human being is not a lock and the past is not a key.

I highly recommend this book.

The Goodreads summary provides an overview,

The woman, a writer, recalls all that made her complicated mother extraordinary–her brilliant wit, her generosity, her unbelievable obstinacy, her sheer will to seize life despite physical difficulties–and finds herself wondering how her mother had endured. Even though she wants to respect her mother’s nearly pathological sense of privacy, the woman must come to terms with whether making a chronicle of this remarkable life constitutes an act of love or betrayal.

The Hero of This Book is a searing examination of grief and renewal and a deeply felt relationship between a child and her parents. What begins as a question of filial devotion ultimately becomes a lesson in what it means to write. At once comic and heartbreaking, with prose that delights at every turn, this is a novel of such piercing love and tenderness that we are reminded that art is what remains when all else falls away.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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She's Up to No Good

Read: July 2022

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She’s Up to No Good

by Sara Goodman Confino

After writing Road Trippin, I needed to read about other homeward-bound journeys that help us find peace and a future after a tragedy. Today I started reading She’s Up to No Good by Sara Goodman Confino. The book is a funny, poignant, and life-affirming novel about family, secrets, and broken hearts. It may be the best read for my days in San Diego.

It was the perfect read for my time at Camp, as it was a life-affirming novel. As much as I know that life continues, She’s Up to No Good reaffirmed my belief.

I highly recommend this book.

The Goodreads summary provides an overview.

Four years into her marriage, Jenna is blindsided when her husband asks for a divorce. With time on her hands and her life in flux, she agrees to accompany her eccentric grandmother, Evelyn, on a road trip to the seaside Massachusetts town where much of their family history was shaped.

When they hit the road, Evelyn spins the tale of the star-crossed teenage romance that captured her heart more than seventy years ago and changed the course of her life. She insists the return to her hometown isn’t about that at all—no matter how much she talks about Tony, her unforgettable and forbidden first love.

Upon arrival, Jenna meets Tony’s attentive great-nephew Joe. The new friendship and fresh ocean air give her the confidence and distance she needs to begin putting the pain of a broken marriage behind her.

As the secrets and truths of Evelyn’s past unfold, Jenna discovers a new side of her grandmother and of herself that she never knew existed—and learns that the possibilities for healing can come at the most unexpected times in a woman’s life.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. All donations are tax-deductible.

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Never Let Me Go

Read: August 2024

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Never Let Me Go

by Kazuo Ishiguro

I started reading “Never Let Me Go” by Nobel Prize winner Kazuo Ishiguro today. This novel, listed among The New York Times 100 Best Books of the Century, has also received critical acclaim for its unique narrative and thought-provoking themes. Written by the acclaimed and bestselling author of “The Remains of the Day,” it’s described as “a Gothic tour de force” with an extraordinary twist—a moving, suspenseful, beautifully atmospheric modern classic.

The story unfolds at Hailsham, an enigmatic and exclusive boarding school in the English countryside. The central characters, Kathy, Ruth, and Tommy navigate through mercurial cliques and mysterious rules. Teachers constantly remind the students of their specialness, adding an element of suspense and intrigue to the narrative.

As young adults, Kathy, Ruth, and Tommy reunite, prompting Kathy to reflect on their shared past and understand what makes them unique. The novel explores themes of identity and humanity, delving into the emotional depth of their lives, making it a genuinely thought-provoking journey that readers can deeply connect with.

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Man's Search for Meaning

Read: January 2022

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Man’s Search for Meaning

by Viktor E. Frankl

I remember reading portions of Man’s Search for Meaning by Viktor E. Frankl at different times, but I never finished the book. However, recently, eight and a half months after the passing of Jan, the book came up for discussion in one of my groups. Frankl’s theory of logotherapy, which derives from the Greek word for “meaning,” centers around the idea that the primary human drive is not pleasure, as Freud believed, but rather the search for what gives life meaning. I now have a framework for my life without Jan.

For those like me who are widows, Frankl understands suffering,

In some ways, suffering ceases to be suffering at the moment it finds a meaning, such as the meaning of a sacrifice.

Jan and I lived meaningful lives. My challenge now is to continue to find meaning in my life without Jan.

As Frankl writes,

Those who have a ‘why’ to live, can bear with almost any ‘how’.

The love Jan and I shared was one of my primary sources of meaning. In addition, I stopped working full-time at the end of 2018 and struggled to replace the purpose I had gained from repairing the world. After Jan died, I suffered the “provisional existence of an unknown limit.” Frankl experienced that when he was in the concentration camps.

I have replaced the loss of meaning and purpose with a series of activities:

  1. Planning to Celebrate Jan Day on her birthday this year;
  2. Writing my random thoughts on Jan, love, grief, life, and all things considered;
  3. Reading more than ever, including my Goodreads 2022 Reading Challange; and
  4. Walking more than I probably should.

I am also beginning to serve on the board of a few non-profits. It is time to transition from hands-on work to providing leadership differently.

Will this be enough to give my life meaning?

Ultimately, man should not ask what the meaning of his life is, but rather must recognize that it is he who is asked. In a word, each man is questioned by life; and he can only answer to life by answering for his own life; to life he can only respond by being responsible.

I must continue focusing on my search for meaning, as life will change over time.

My grief journey has taught me that love never dies,

For the first time in my life, I saw the truth as it is set into song by so many poets, proclaimed as the final wisdom by so many thinkers. The truth – that Love is the ultimate and highest goal to which man can aspire. Then I grasped the meaning of the greatest secret that human poetry and human thought and belief have to impart: The salvation of man is through love and in love.

My path forward is to keep Jan’s love alive and continue to share it with others.

I recommend this book without reservation.


The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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The New Wilderness

Read: October 2021

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The New Wilderness

by Diane Cook

The New Wilderness by Diane Cook. The New Wilderness is a timely book and one that resonated with me. When Jan and I met in 1973, it was a revolutionary time with movements encouraging communes and returning to the farm. Neither Jan nor I were interested in living in a commune. Reading this book helped reassure me that we made the correct choice.

The summary of the book is:

Margaret Atwood meets Miranda July in this wildly imaginative debut novel of a mother’s battle to save her daughter in a world ravaged by climate change; A prescient and suspenseful book from the author of the acclaimed story collection, Man V. Nature.

Bea’s five-year-old daughter, Agnes, is slowly wasting away, consumed by the smog and pollution of the overdeveloped metropolis that most of the population now calls home. If they stay in the city, Agnes will die. There is only one alternative: the Wilderness State, the last swath of untouched, protected land, where people have always been forbidden. Until now.

Bea, Agnes, and eighteen others volunteer to live in the Wilderness State, guinea pigs in an experiment to see if humans can exist in nature without destroying it. Living as nomadic hunter-gatherers, they slowly and painfully learn to survive in an unpredictable, dangerous land, bickering and battling for power and control as they betray and save one another. But as Agnes embraces the wild freedom of this new existence, Bea realizes that saving her daughter’s life means losing her in a different way. The farther they get from civilization, the more their bond is tested in astonishing and heartbreaking ways.

At once a blazing lament of our contempt for nature and a deeply humane portrayal of motherhood and what it means to be human, The New Wilderness is an extraordinary novel from a one-of-a-kind literary force.

When I finished this book, I read Pompeii Still Has Buried Secrets by  in The New Yorker. It reminded me of all of the threats to civilization that we face, who will be Pliny the Younger to be “the only surviving eyewitness account of the disaster.” Fleeing our cities for the wilderness is no longer an option!

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