Tag: Hospice

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Read: April 2024

The Cemetery of Untold Stories

by Julia Alvarez

Today, I began reading Julia Alvarez‘s novel “The Cemetery of Untold Stories.” The book explores whose stories deserve to be told and whose should remain buried. In the end, Alma, the main character, finds meaning in the power of storytelling. Julia Alvarez reminds us that our stories are never truly finished, even at the end.

Alma Cruz, a famous writer, doesn’t want to suffer the same fate as her friend, who became mentally unstable after struggling to finish a book. So, when Alma inherits a small plot of land in her native Dominican Republic, she turns it into a cemetery for her unfinished stories. She hopes her characters will finally be able to rest in peace.

However, they have other ideas and soon begin to rewrite and revise themselves, even talking and interacting with one another. Fortunately, Filomena, a local woman hired as the groundskeeper, becomes a listener to Alma’s characters’ secret tales. These tales include those of Bienvenida, the abandoned wife of dictator Rafael Trujillo, who was erased from official history, and Manuel Cruz, a doctor who fought in the Dominican underground and escaped to the United States.

Read: September 2021

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The Vanishing Half

by Brit Bennett

The Vanishing Half by Brit Bennett was a true page-turner, and I did not want to stop reading it even when I got to the last page. I am not a fan of sequels, but if I was ever going to change my mind, this is the book I would want to read a sequel.

Ms. Bennett focuses on two twins who run away from home at age 16. They have grown up in Mallard, a fictional town in Louisiana. “In Mallard, nobody married dark,” Bennett writes starkly. Over time, its prejudices deepened as its population became lighter and lighter, “like a cup of coffee steadily diluted with cream.” The twins, with their “creamy skin, hazel eyes, wavy hair,” would have delighted the town’s founder. One of the women chooses to pass as white while the other does not.

The Vignes twin sisters will always be identical. But after growing up together in a small, southern black community and running away at age sixteen, it’s not just the shape of their daily lives that is different as adults, it’s everything: their families, their communities, their racial identities. Many years later, one sister lives with her black daughter in the same southern town she once tried to escape. The other passes for white, and her white husband knows nothing of her past. Still, even separated by so many miles and just as many lies, the fates of the twins remain intertwined. What will happen to the next generation, when their own daughters’ storylines intersect?

Weaving together multiple strands and generations of this family, from the Deep South to California, from the 1950s to the 1990s, Brit Bennett produces a story that is at once a riveting, emotional family story and a brilliant exploration of the American history of passing. Looking well beyond issues of race, The Vanishing Half considers the lasting influence of the past as it shapes a person’s decisions, desires, and expectations, and explores some of the multiple reasons and realms in which people sometimes feel pulled to live as something other than their origins.

The question of why people choose to live differently than their origins is one that I often ponder. Growing up in a small town and living in a metropolis raises questions for me as to what my life is now and what was once.

I strongly recommend this book.

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Read: June 2022

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Midwives: A Novel

by Chris Bohjalian

Midwives by Chris Bohjalian is “a compulsively readable novel that explores questions of human responsibility that are as fundamental to our society now as they were when the book was first published.” Forty years after the book was published, it is just as relevant, if not more so. Indeed, the book’s topics are more relevant today with the current set of decisions by the Supreme Court.

After reading The Pull of the Stars and watching every season of Call the Midwives, this was the logical next book for me to read. It is also one that I know Jan read and liked.

I highly recommend this book!

The Goodreads summary provides a concise overview.

The time is 1981, and Sibyl Danforth has been a dedicated midwife in the rural community of Reddington, Vermont, for fifteen years. But one treacherous winter night, in a house isolated by icy roads and failed telephone lines, Sibyl takes desperate measures to save a baby’s life. She performs an emergency Caesarean section on its mother, who appears to have died in labor. But what if—as Sibyl’s assistant later charges—the patient wasn’t already dead, and it was Sibyl who inadvertently killed her?

As recounted by Sibyl’s precocious fourteen-year-old daughter, Connie, the ensuing trial bears the earmarks of a witch hunt except that all its participants are acting from the highest motives—and the defendant increasingly appears to be guilty. As Sibyl Danforth faces the antagonism of the law, the hostility of traditional doctors, and the accusations of her conscience, Midwives engages, moves, and transfixes us as only the best novels ever do.

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Read: June 2023

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Everything’s Fine

by Cecilia Rabess

I started reading Everything’s Fine by Cecilia Rabess today, a stunning debut introducing a talented new author. However, I found it easier to decide to read it after reading in the New York Times that some reviewers on Goodreads criticized the book’s premise without reading it. It’s unfair to criticize something after experiencing it first-hand.

On Jess’s first day at Goldman Sachs, she’s disappointed to learn that she’ll be working with Josh, a white conservative she used to argue with in college. Josh enjoys playing devil’s advocate and can be challenging to deal with.

But when Jess realizes she’s the only Black woman on the team and is being overlooked, Josh offers his support in imperfect but meaningful ways. As they develop an unlikely friendship with undeniable chemistry, it eventually becomes an electrifying romance that shocks them both.

Despite their differences, their attraction brings them together, and Jess starts to question whether happiness is more important than being right. However, as the cultural and political landscape shifts in 2016, Jess, who is just discovering herself, must decide what she’s willing to compromise for love and if everything is excellent. This poignant and sharp novel by Cecilia Rabess asks if they will and if they should.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Read: April 2023

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Commitment: A Novel

by Mona Simpson

The novel Commitment by Mona Simpson delves into the complexities of family and duty when a parent falls ill. It sheds light on the significant impact of untreated mental health crises and highlights the under-appreciated role of friends in shaping the lives of children left to their own devices.

A hardworking single mother, Diane Aziz falls into a deep depression after dropping off her oldest son, Walter, at college. Despite her struggles, her closest friend is vital in keeping the family together and their mother’s dreams alive.

This is a story of one family’s struggle to navigate the crisis of their lives, a struggle that may resonate with many readers. Walter discovers a newfound passion for architecture, but financial struggles threaten his academic pursuits. Meanwhile, Lina fights to attend an Ivy League school, and Donny, the youngest sibling, battles a dangerous drug addiction.

As someone with different personal experiences, I still found Commitment to affirm the importance of biological and chosen families.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Gifts made this month; I will match dollar-for-dollar. All donations are tax-deductible.

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Read: September 2021

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Breathe

by Joyce Carol Oates

Reading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

If there is no one to love, do we merit existence?
Never come to the end of kissing.
The first principle of life is; Breathe.
Shy in the language of intimacy.
As if a life lived with strangers could compensate for the emptiness in your heart.
No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Hospice

Flowers Everywhere

From One Rose to a
Home Full of Flowers

Hospice

From One Rose to a Home Full of Flowers

From One Rose to a
Home Full of Flowers