Blood Cancer United (BCU): CLIMB, CONQUER, CURE CANCER

Each year, I set out on a meaningful pilgrimage to the top of the One Gateway Center in Newark, a tribute to my beloved wife, Jan, and to everyone touched by the harsh reality of blood cancers. It’s staggering to think that every three minutes, someone in the U.S. receives a diagnosis of leukemia, lymphoma, or myeloma, and heartbreakingly, someone loses their fight every nine minutes.

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People Die, But Love
Lives On Forever!

“Penthouse, please,” I requested, my finger hovering over the button of the self-service elevator. The compact space could barely accommodate three people, yet somehow, it felt roomy. Jan stepped in beside me, her eyes sparkling with anticipation, and one of her friends joined us. In that moment, I couldn’t help but admire her. She had always captivated me, but on our wedding day fifty years ago, she was nothing short of breathtaking.

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Will My Heel Pain Stop My Daily Walking Streak?

“Richard!” A familiar voice called out just as I was about to step into the narrow alleyway between Sofia Color Lounge and the soon-to-open coffee shop where Beadsmith once stood. I turned around and saw—Eric! A genuine smile spread across my face as I recognized him. He was pushing a stroller, his daughter peeking out with bright, curious eyes.

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God’s Light, the Soul of Humanity,
Illuminates the Darkness

Rituals often become another item on our to-do lists, rushed and stripped of their more profound significance. When we overlook their meaning and purpose, we hinder our ability to heal from loss and navigate the complexities of grief.

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The Jan Lilien Education Fund!

Surfacing

Read: July 2021

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Surfacing

by Margaret Atwood

Surfacing by Margaret Atwood was a book I picked up on a random walk around the house. I had read The Handmaid’s Tale but was not ready to read The Testaments.

This book is a detective novel as well as a psychological thriller. A talented woman artist goes in search of her missing father on a remote island in northern Quebec. She had grown up on the island, and the journey includes her lover and another young married couple. When they arrive, the isolation and obsession of the artist shape all of their lives in unexpected ways. The marriage begins to fall apart, violence and death lurk just beneath the surface, and sex becomes a catalyst for conflict and dangerous choices.

Goodreads describes the book as,

Surfacing is a work permeated with an aura of suspense, complex with layered meanings, and written in brilliant, diamond-sharp prose. Here is a rich mine of ideas from an extraordinary writer about contemporary life and nature, families, and marriage, and about women fragmented… and becoming whole.

I also found myself captivated by the many layers of the book the search for her father, and the psychological impact on all four of them.

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Bug Hollow

Read: June 2025

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Bug Hollow: A Novel

by Michelle Huneven

Bug Hollow” by Michelle Huneven is a decades-spanning family saga that follows the messy yet loving Samuelson clan as they navigate life after the loss of their son, Ellis. When Sally Samuelson was eight years old, her golden boy brother, Ellis, went missing the summer after he graduated from high school. He eventually reappeared at the picturesque Bug Hollow, a final remnant of the beautiful Northern California counterculture of the seventies.

Although he found joy in communal life, his life was tragically cut short in a freak accident just weeks later, leaving the Samuelson family to grapple with their grief. From that point on, the world of the Samuelsons never spun on the same axis, especially after Julia, Ellis’s girlfriend from Bug Hollow, showed up pregnant on their doorstep.

Each member of the Samuelson family has sought their form of solace: Sybil Samuelson pours herself into teaching to numb her pain after losing her beloved son; her husband, Phil, found comfort in a new love that developed while he was working as an engineer in Saudi Arabia; Katie, the high-achieving middle child, comes home to try to make peace with her mother following a cancer diagnosis. Meanwhile, Sally has become the de facto caretaker of Eva, the child Ellis never had the chance to know.

Michelle Huneven is known for her five enthralling novels, which chronicle the lives of middle-class Americans in her vividly portrayed native California. Her characters struggle with addiction, painful romances, and profound losses as they continue to seek meaning and strive to be good. She captures the Samuelson family with remarkable precision and deep empathy as they fracture and rebuild time and again.


Michelle Huneven is the author of Round RockJameslandBlameOff Course, and Search. Her books have been New York Times Notable Books and finalists for the Los Angeles Times Book Prize and the National Book Critics Circle Award. She is the recipient of a Whiting Award for Fiction, a Guggenheim Fellowship, a James Beard Award, and a Literature Award from the American Academy of Arts and Letters. She received her Master of Fine Arts degree from the Iowa Writers’ Workshop and teaches creative writing at the University of California, Los Angeles.



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The Heaven & Earth Grocery Store

Read: November 2023

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The Heaven & Earth Grocery Store

by James McBride

I started reading The Heaven & Earth Grocery Store: A Novel by James McBride today. It’s the seventy-first book I’ve read this year and the two hundredth since January 1, 2019. The novel’s narrative begins in 1972 when workers in Pottstown, Pennsylvania, were digging the foundations for a new development. They were surprised to find a skeleton at the bottom of the well. The identity of the skeleton and how it ended up there were long-held secrets that the residents of Chicken Hill kept.

Jewish immigrants and African Americans lived together in this run-down neighborhood and shared their aspirations and hardships. Moshe and Chona Ludlow resided in Chicken Hill when Moshe integrated his theatre, and Chona ran the Heaven & Earth Grocery Store. When the state officials searched for a deaf boy to institutionalize him, it was Chona and Nate Timblin, the Black janitor at Moshe’s theatre and the unofficial leader of the Black community on Chicken Hill, who collaborated to keep the boy safe.

As the stories of these characters intertwine and develop, it becomes evident how much the individuals living on the outskirts of white, Christian America struggle to survive and what they must do to make it through. As the truth is ultimately disclosed regarding the events that occurred on Chicken Hill, including the involvement of the town’s white establishment, McBride illustrates to us that, even in the darkest of times, love and community – the very essence of heaven and earth – help us endure.

Bringing his masterly storytelling skills and deep faith in humanity to The Heaven & Earth Grocery Store, James McBride has written a novel as compassionate as Deacon King Kong and as inventive as The Good Lord Bird.

The Jan Lilien Education Fund sponsors ongoing sustainability and environmental awareness programs. Regarding gifts made this month, I will match dollar for dollar. All donations are tax-deductible.

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When No One is Watching

Read: February 2022

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When No One is Watching

by Alyssa Cole

When No One Is Watching by Alyssa Cole is a novel where the gentrification of a Brooklyn neighborhood takes on a sinister new meaning.

Sydney Green is Brooklyn-born and raised, but her beloved neighborhood seems to change every time she blinks. Condos are sprouting like weeds, FOR SALE signs are popping up overnight, and the neighbors she’s known all her life are disappearing. To hold onto her community’s past and present, Sydney channels her frustration into a walking tour and finds an unlikely and unwanted assistant in one of the new arrivals to the block—her neighbor Theo.

But Sydney and Theo’s deep dive into history quickly becomes a dizzying descent into paranoia and fear. After all, their neighbors may not have moved to the suburbs, and the push to revitalize the community may be more deadly than advertised.

When does coincidence become a conspiracy? Where do people go when gentrification pushes them out? Can Sydney and Theo trust each other—or themselves—long enough to find out before they too disappear?

Having lived in Brooklyn and seen the impacts of gentrification, redlining, and other practices, I found this book one that I truly enjoyed. The book will provide a detailed history lesson if you are like Theo and have no thought of these issues.

I enjoyed the visit to Weeksville, as I have been there on several professional occasions. The history of that community needs to be told.

I recommend this book.

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Tenth of December: Stories

Read: July 2024

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Tenth of December: Stories

by George Saunders

One of the most important and blazingly original writers of his generation, George Saunders, is an undisputed master of the short story. The Tenth of December is his most honest, accessible, and moving collection yet. It is one of the New York Times’ 100 Best Books of the Century. The book is structured as a collection of short stories, each offering a unique and compelling narrative.

In the taut opener, “Victory Lap,” a boy witnesses the attempted abduction of the girl next door and is faced with a harrowing choice: Does he ignore what he sees or override years of smothering advice from his parents and act?

In “Home,” a combat-damaged soldier moves back in with his mother and struggles to reconcile the world he left behind with the one he has returned to.

In the title story, a stunning meditation on imagination, memory, and loss, a middle-aged cancer patient walks into the woods to commit suicide, only to encounter a troubled young boy who, throughout a fateful morning, gives the dying man a final chance to recall who he is.

An unfortunate, deluded owner of an antique store; two mothers struggling to do the right thing; a teenage girl whose idealism is challenged by a brutal brush with reality; a man tormented by a series of pharmaceutical experiments that force him to lust, to love, to kill—the unforgettable characters that populate the pages of Tenth of December are vividly and lovingly infused with Saunders’s signature blend of exuberant prose, deep humanity, and stylistic innovation.

Writing brilliantly and profoundly about class, sex, love, loss, work, despair, and war, Saunders cuts to the core of the contemporary experience. These stories take on the big questions and explore the fault lines of our morality, delving into what makes us suitable and what makes us human. They are not just stories but profound explorations that will stimulate your intellect and make you ponder.

Unsettling, insightful, and hilarious, the stories in Tenth of December—through their manic energy, their focus on what is redeemable in human beings, and their generosity of spirit—not only entertain and delight but also fulfill Chekhov’s dictum that art should “prepare us for tenderness.” The humor in these stories will keep you entertained and laughing, even as they delve into profound themes.


George Saunders is the author of thirteen books, including the novel Lincoln in the Bardo, which won the Booker Prize, and five collections of stories, including Tenth of December, which was a finalist for the National Book Award, and the recent collection Liberation Day (selected by former President Obama as one of his ten favorite books of 2022).

Three of Saunders’s books—Pastoralia, Tenth of December, and Lincoln in the Bardo—were chosen for The New York Times’s list of the 100 Best Books of the 21st Century. Saunders hosts the popular Story Club on Substack, which grew out of his book, A Swim in a Pond in the Rain. In 2013, he was named one of Time’s 100 Most Influential People. He teaches in the creative writing program at Syracuse University.



When you purchase a book through one of my links, I earn a small commission that helps support my passion for reading. This contribution allows me to buy even more books to share with you, creating an incredible cycle of discovering great reads together! Your support truly makes a difference!


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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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