Blood Cancer United (BCU): CLIMB, CONQUER, CURE CANCER

Each year, I set out on a meaningful pilgrimage to the top of the One Gateway Center in Newark, a tribute to my beloved wife, Jan, and to everyone touched by the harsh reality of blood cancers. It’s staggering to think that every three minutes, someone in the U.S. receives a diagnosis of leukemia, lymphoma, or myeloma, and heartbreakingly, someone loses their fight every nine minutes.

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People Die, But Love
Lives On Forever!

“Penthouse, please,” I requested, my finger hovering over the button of the self-service elevator. The compact space could barely accommodate three people, yet somehow, it felt roomy. Jan stepped in beside me, her eyes sparkling with anticipation, and one of her friends joined us. In that moment, I couldn’t help but admire her. She had always captivated me, but on our wedding day fifty years ago, she was nothing short of breathtaking.

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Will My Heel Pain Stop My Daily Walking Streak?

“Richard!” A familiar voice called out just as I was about to step into the narrow alleyway between Sofia Color Lounge and the soon-to-open coffee shop where Beadsmith once stood. I turned around and saw—Eric! A genuine smile spread across my face as I recognized him. He was pushing a stroller, his daughter peeking out with bright, curious eyes.

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God’s Light, the Soul of Humanity,
Illuminates the Darkness

Rituals often become another item on our to-do lists, rushed and stripped of their more profound significance. When we overlook their meaning and purpose, we hinder our ability to heal from loss and navigate the complexities of grief.

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The Jan Lilien Education Fund!

Half in Shadow

Read: December 2021

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Half in Shadow: A Novel

by Gemma Liviero

Half in Shadow by Gemma Liviero is an unforgettable novel about courage, love, and consequences at the dawn of World War I. In German-occupied Belgium, a tragic loss forces Josephine Descharmes to navigate dangerous new territory. By day it’s compliance, serving German officers at the Hotel Métropole. By night it’s resistance, working with her brothers underground to help Allied soldiers and civilians across the border into Holland. Both paths put her and her family at significant risk.

Before Jan’s death, I preferred to read non-fiction or fiction about historical events. Although I had read nothing by the author before this novel, I decided to read based on the summary. When I finished the book, the author described her goal as a writer in a manner that confirmed my decision.

“Much of my aim in the stories I write is to put human faces, be they fictional, to the many who lived through these events and imagine the experiences and reactions by innocent parties thrust into such situations.”

— Half in Shadow: A Novel by Gemma Liviero

Josephine’s involvement in the resistance begins slowly and gains strength with every page. Her brothers Eugene, Xavier, and her mother become realistic due to the precise writing of Ms. Liviero.

Arthur, the English soldier who falls in love with Josephine, becomes an equal member of the resistance and the family. Franz, the German in love with Josephine, is not as strongly defined as appropriate as he is the enemy.

The Amazon overview provides a brief overview of the novel.

As Josephine struggles to keep her family safe, Arthur, a grief-stricken English soldier trapped behind enemy lines, finds purpose and hope with Josephine and her work. Meanwhile, Franz, a German officer remorseful for war casualties, offers her protection and opportunity. These two men from opposing sides will open her heart and test her loyalties.

Amid the sorrows of war and threats of mortal danger and betrayal, Josephine must steer her fate. In a country deprived of freedom, she will make an impossible choice—one that will forever impact the family she cherishes and the man she loves.

The book’s conclusion, which I will not reveal, brings together all of the novel’s threads in a way that reminded me of the power of love and family.

This is one of the best books I have ever read. I highly recommend it.

Half in Shadow is the first time I have gotten a book from Amazon First Reads. I highly recommend First Reads as a way to read books earlier than their regular release. Half in Shadow is not scheduled to be published until January 1, 2022.

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Breathe

Read: September 2021

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Breathe

by Joyce Carol Oates

Celebrate JanReading Breathe by Joyce Carol Oates was a book I knew I needed to read once Jan was diagnosed. Although the book might trigger negative memories, I finally read Breathe. It was what I needed to read at this point in my journey.

Ms. Oates wrote the book in 2019 after her husband, Charlie Gross, died. The novel is a story of love, loss, and loneliness, topics that I write about on this blog. I needed to read the book both for my mental health and for the readers of Sharing Jan’s Love.

The protagonist, Michaela, loses her husband while they are on a sabbatical in New Mexico. Her husband, Gerard, writes a book and teaches a class on memories. Jan and I never considered relocating before her illness, but this book convinced me that it would have aggravated my grief journey.

One of the parallels I observed while reading the novel is the similarity between Gerard’s reluctance to let family, friends, and co-workers know of his illness. Jan shared that reluctance in the early days, but I convinced her that the only chance of beating cancer was with the help of family and friends.

This dialogue could easily be one that Jan and I had.

Of course you want to summon his family—his (adult) children—but quickly, he says no.

Still waiting.

But – When?

Just not yet.

He is not an alarmist. (You are the alarmist.)

The novel is written in two parts – The Vigil and the Post-Mortem.

The opening paragraphs set the tone.

A Hand is gripping yours. Warm, dry hand gripping your slippery, humid hand.

Whoever it is urging you – Breathe!

Leaning over you begging you – Breathe!

As one mourning the death of the love of his life, I found several phrases in the book helpful in understanding what I have gone through and will continue to confront.

Among them is grief-vise, which I have written about in this stream.

In the grip of the grief vise, all that you will do, all that you even imagine doing, will require many times more effort.. Hardly daring to breathe for the grief-vise will tighten around your chest, squeezing the very air out of your lungs.

In the early stages of grief, the vise was strangling me. Breathing was impossible, and weeping was constant at times.

Michaela struggles with her grief. Seeing her husband every time she sees a man alone, even if they are older or younger than he was. I know I have felt Jan’s presence and still expect her to walk into our apartment.

Her struggles with a grief counselor and overly helpful friends are an experience I have not had but are familiar to those suffering from losing a loved one.

The last chapters are ones in which time becomes confusing and chaotic. At times, I was uncertain about which were real or imagined. The end, like all good novels, was ambiguous.

These are some of the other phrases I have found useful and will include in posts.

  • If there is no one to love, do we merit existence?
  • Never come to the end of kissing.
  • The first principle of life is; Breathe.
  • Shy in the language of intimacy.
  • As if a life lived with strangers could compensate for the emptiness in your heart.
  • No purpose in your life. No compass.

What you love most, that you will lose. The price of your love is your loss.

I recommend this book to all readers, even those struggling with grief.

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Private Rites

Read: February 2026

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Private Rites: A Novel

by Julia Armfield

From Julia Armfield, the beloved and award-winning author of Our Wives Under the Sea, comes a speculative reimagining of King Lear. Private Rites centers on three sisters navigating queer love and loss in a world that is drowning. It has been raining for so long that the landscape has reshaped itself, and old rituals and religions are beginning to resurface. Sisters Isla, Irene, and Agnes have not spoken to each other in some time.

However, when their father—an architect who was both cruel and revered—passes away, their lives are forever changed. His death offers the sisters an opportunity to come together in a new way. In the grand glass house they grew up in, their father’s most famous creation, the sisters sort through the secrets and memories he left behind, until a revelation in his will shatters their fragile bond.

The sisters are more estranged than ever, and their lives spin out of control: Irene’s relationship is straining at the seams, Isla’s ex-wife keeps calling, and cynical Agnes is falling in love for the first time. But something even more sinister might be unfolding, something related to their mother’s long-ago disappearance and the strangers who have always seemed unusually interested in the sisters’ lives. Soon, it becomes clear that the sisters were chosen for a very particular purpose, one with shattering implications for their family and their imperiled world.


Julia Armfield is the author of the novels Private Rites and Our Wives Under the Sea, which was a finalist for the Lambda Literary Award and the 2022 Goodreads Choice Award for Best Horror and Best Debut Novel, and the story collection salt slow. Her work has appeared in Granta, Lighthouse, Analog Magazine, Neon, and Best British Short Stories 2019 and 2021. She is the winner of the White Review Short Story Prize and a Pushcart Prize, and shortlisted for the Sunday Times Young Writer of the Year Awards in 2019. She lives and works in London.



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The Safekeep: A Novel

Read: July 2025

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The Safekeep: A Novel

by Yael van der Wouden

A house is a treasured possession, and “The Safekeep,” a debut novel by Yael van der Wouden, presents a gripping story of desire, suspicion, and obsession between two women staying in the same house in the Dutch countryside during the summer of 1961. The novel provides a profound exploration of the legacy of World War II and the darker elements of our shared history.

It is 1961, and the rural Dutch province of Overijssel is quiet. Bomb craters have become lakes, buildings have been repaired or rebuilt, and the war is truly over. Living alone in her late mother’s country home, Isabel knows her life is as it should be—led by routine and discipline. But all is upended when her brother Louis brings his graceless new girlfriend Eva, leaving her at Isabel’s doorstep as a guest, to stay for the season.

Eva is the complete opposite of Isabel: she sleeps late, stomps around the house, and handles things she shouldn’t. In response, Isabel becomes increasingly obsessed and furious, especially as items begin to go missing around the house—a spoon, a knife, a bowl. As her suspicions grow, Isabel’s paranoia eventually leads to infatuation, culminating in a revelation that shatters everything she has ever known. It seems that the war might not truly be over, and neither Eva—nor the house they inhabit—is what they appear to be.

For my house will be called a house of devotion for all,” in Isaiah 56:7, serves as a closing that reminds us that a house not open to all is not a home.


Yael van der Wouden is a writer and a teacher. The Safekeep, her debut novel, was a finalist for the 2024 Booker Prize and has been longlisted for the 2025 Aspen Words Literary Prize. It was also named a New York Times Notable Book of the Year and a best book of the year by The Washington Post, Time, The Economist, Kirkus Reviews, The Times (London), The Independent, BookPage, and others. She lives in Utrecht, Netherlands.



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The Invisible Life of Addie LaRue

Read: May 2022

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The Invisible Life of Addie LaRue

by V.E. Schwab

The Invisible Life of Addie LaRue by V.E. Schwab is a page-turner, and one of the rare books I have read that I wish had not ended. On the last page, I wanted Addie’s story to continue now that she had modified her deal with the dark side to save Henry Strauss. It was not that I wished Addie and Henry to reunite; it was to see how Addie’s life with Luc would continue. I recommend this book without any reservations!

Both Jan and I have always enjoyed books and movies about time travel. One of the first books I read after Jan died was The Time Traveler’s Wife, and now I am reading another time-travel book. If I could travel back in time, I would love to spend tens of thousands of days with her again.

But time travel is not possible. Or is it? Her spirit returns to me whenever I am paralyzed, encouraging me to dust myself off and keep going. Maybe one day we will travel together!

The Goodreads summary includes an overview.

France, 1714: in a moment of desperation, a young woman makes a Faustian bargain to live forever and is cursed to be forgotten by everyone she meets.

Thus begins the extraordinary life of Addie LaRue and a dazzling adventure that will play out across centuries and continents, across history and art, as a young woman learns how far she will go to leave her mark on the world.

But everything changes when, after nearly 300 years, Addie stumbles across a young man in a hidden bookstore, and he remembers her name.


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We the Animals

Read: July 2024

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We the Animals

by Justin Torres

Today, I embarked on the literary journey of We the Animals by Justin Torres. This novel, listed among the New York Times’ 100 Best Books of the Century, is a groundbreaking work of art. The author of Blackouts immerses us in the tumultuous heart of a family, the intense bonds of three brothers, and the mythic impact of this fierce love on the individuals we are destined to become.

The narrative unfolds as three brothers navigate their way through childhood, a journey filled with emotional highs and lows, from playful acts like smashing tomatoes on each other to finding solace in each other’s company during their parents’ conflicts and even tiptoeing around the house as their mother rests after her graveyard shift. Paps and Ma, hailing from Brooklyn—he’s Puerto Rican, she’s white—share a profound and challenging love, shaping and reshaping the family numerous times. Life in this family is intense and all-consuming, filled with disorder, heartache, and the ecstasy of belonging to each other.

From the intense familial unity, a child feels to the profound alienation he endures as he begins to see the world, this beautiful novel doesn’t just tell a coming-of-age story; it reinvents it in a sly and punch-in-the-stomach powerful way. It delves into themes such as love, the meaning of family, and heartache, adding another layer of depth and complexity to the story.

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